Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Luke’s Posse: DIPG Ends Now, Charitable organisation, Guilford, CT.
Luke’s Posse is a tribute fund of The Morgan Adams Foundation
committed to raising imperative funds that directly support DIPG (Diffuse Intrinsic Pontine Glioma) research at Children’s Hospital Colorado, a nationwide leader in DIPG research.
05/05/2025
Friends! We are $400 away from reaching our $7000 goal to turn seven years of missing Luke into a "lucky seven"! Can you help?
was a happy, active, curious and loving five-year-old. He loved all things Hot wheels, colossal, squid, impromptu dance parties, The Beatles and his family. After symptoms that appeared suddenly, he was diagnosed with (Diffuse Intrinsic Pontine Glioma) and passed away in our arms just 17 days later.
This $7000 will move a groundbreaking discovery that has completely eliminated DIPG cells during testing closer to a clinical trial! To learn more about this study, please visit.
Today marks seven years since Luke Morin passed away from DIPG (Diffuse Intrinsic Pontine Glioma). Will you help make this a “lucky 7”?
Luke’s Posse (a tribute fund of The Morgan Adams Foundation) set a goal to raise $7,000 this month to move a groundbreaking treatment for children with DIPG brain tumors one step closer to a clinical trial!
About the Study:
Drs. Rajeev Vibhakar and Sujatha Venkataraman have developed immunotherapy treatments that safely and effectively target the protein that causes the DIPG tumors (a currently terminal diagnosis) – and leave normal cells unharmed. In fact, the team’s in vivo (animal study) testing has resulted in the tumors completely disappearing.
04/25/2025
Seven years ago today, the Earth lost a special little boy: our Lukie.
was a happy, active, curious and loving five-year-old. He loved all things Hot wheels, colossal, squid, impromptu dance parties, The Beatles and his family. After symptoms that appeared suddenly, he was diagnosed with (Diffuse Intrinsic Pontine Glioma) and passed away in our arms just 17 days later.
This year feels a tiny bit lighter than years past. I suppose time does heal in some ways? Regardless, we miss Lukie terribly every day and cherish the time we had together. I know he still shines brightly and is right by our side during the events of our lives, especially when his big sister Phebe is also shining brightly where she loves to be; performing on stage.
Would you help Luke's Posse reach our goal this month of raising $7000 to move a groundbreaking discovery that will closer to a clinical trial? Thank you for your consideration!
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(B Lauren Photography)
Thank you for joining Luke’s Posse - Together, we will end DIPG!
Luke Wyatt Morin was an extremely loving, caring, creative, articulate and playful child. He loved Hot Wheels, cowboys, The Beatles, squid (not eating them..just fascinated by them!) and adored his big sister Phebe. He would remind us daily of his love as he would randomly call down from the stairs, “Mommy/Daddy…. I love you!” Those who knew Luke knew he was meant for something special. Those who had just a brief encounter with Luke were given extra light in their lives.
After symptoms that appeared suddenly, on April 8, 2018, we received devastating news that there was an inoperable and very aggressive tumor in Luke’s brain called Diffuse Intrinsic Pontine Glioma (DIPG). Two radiation attempts and seventeen days later, embraced in our arms, Luke passed away. He was five years old.
Let that sink in.
Luke continues to inspire many. His posse will fight to end DIPG. His name will be spoken with countless names of children taken too soon by this horrible disease. His legacy will continue.
Never heard of DIPG? We hadn’t either. Now, its part of our daily vocabulary. DIPG (Diffuse Intrinsic Pontine Glioma) is a tumor located in an area of the brainstem called the pons. The pons controls many essential bodily functions (breathing, swallowing) and therefore makes this tumor inoperable and very difficult to treat. DIPG affects 200-400 children in the U.S. The average age of children affected is 5-9 . Those affected lose their ability to eat, swallow, talk, walk and sit up. All along, the child remains cognitively intact, fully aware and confused about what is happening to their bodies. DIPG is fatal upon diagnosis.
After our sudden and tragic loss, we founded the Luke Morin Fund for DIPG Research (Luke’s Posse) at Children’s Hospital Colorado, a nationwide leader in this type of research. 100% of donations/funds raised go to research; no admin fees, no overhead costs. With your support, this dedicated team can continue their ground-breaking work. Government funding does not prioritize childhood cancer. Philanthropy is our only hope.
Thank you for your support!
Cam, Jill, Phebe & Luke Morin
