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Baby Liam’s Heart Journey, Gretna, LA (2026)

10/01/2026

Day 1002

We are currently watching his baffle.
The baffle (the patch on the hole between the lower chambers of his heart) is made out of pericardium (the heart sac) - yes they cut a piece of it to make his baffle. The baffle isn’t expected to grow with his heart and there’s usually a chance that it will have to be replaced once the heart is fully grown (teenager or young adult) but sometimes it doesn’t have to be replaced.

Our current concern: (since November 2025)
There is a sub-aortic membrane growing off of the baffle (a piece of a scar tissue) and it’s just flapping around in front of the aorta. This membrane is expected to continue to grow as the heart grows. The good news is that it’s not attaching to the aorta or anything else. It continues to just flap around out there. The velocity continues to increase ever so slightly and it seems to directly correlate with the growth of the membrane. If it continues to increase it could eventually damage the aortic valve so we (not me but the doctors- though I feel like I could do it with my eyes closed these days) would have to go in and remove the membrane. However, (take a deep breath) they do think it might need to happen in the next 1-2 years (as of today’s echo) - I will send all the results from today to his dr in Texas to get her opinion.

In July- we saw his cardiologist in New Orleans and the number she gave me on the velocity had alarmingly increased from April in Texas. So I sent all the reports to his Texas cardiologist and she asked to see him sooner than planned so we went.

Well that appointment was yesterday- the two doctors measure in two different spots and that’s why there’s an alarming discrepancy - the GOOD NEWS is it hasn’t increased that much since April and we are not talking about surgery yet. 🙏🏻🙏🏻🙏🏻

If they have to end up doing this, it would be another open heart surgery. Also, (as advanced as technology is) it’s really hard for them (the doctors- not me- I would totally be able to tell) to see the difference between the heart muscle and the membrane so there’s no guarantee that they would be able to get it all and it usually grows back and would have to be removed again….and you get the picture how scary this could be
BUT
We can pray, hope, wish that none of this will actually happen. Maybe the membrane will stop growing. Hopefully even if it grows the velocity won’t continue to increase. We can wish that the baffle is the right size and will never need to be replaced.

Also- Saturday December 5th Liam will have his own team at the Heart Walk at Audubon Park. I’ll post more details in the comments if you want to donate and/or join us to celebrate him, his heart, and all of the others affected by heart disease!

09/16/2026

Day who knows anymore

I sent Liam’s results from his last nola cardiology visit to his Texas cardiologist just for awareness and because I trust her opinion and she asked to see him before his next appt which wasn’t scheduled until January
So…we will make the trip back to Texas in two weeks

But first, we go to Disney World next week for Liam’s first time!

Please keep Liam and my mama heart in your prayers!

07/31/2026

Day 940 of Baby Liam’s heart journey outside of mom!

A lot has happened since the last time I posted in December 🤦🏼‍♀️🫣

He had another echo and ekg in April in Texas. He was so calm and still for all of his tests. He also had a sedated CT scan this time (first time since his surgery) to take a better look at the coronary arteries (and everything in general) - they looked good and are growing.

You may also remember that we are currently watching his baffle.
The baffle (the patch on the hole between the lower chambers of his heart) is made out of pericardium (the heart sac) - yes they cut a piece of it to make his baffle. The baffle isn’t expected to grow with his heart and there’s usually a chance that it will have to be replaced once the heart is fully grown (teenager or young adult) but sometimes it doesn’t have to be replaced.

Our current concern: (since November)
There is a sub-aortic membrane growing off of the baffle (like a piece of a scar tissue) and it’s just flapping around in front of the aorta. This membrane is expected to continue to grow as the heart grows. The good news is that it’s not attaching to the aorta or anything else. It continues to just flap around out there. The velocity continues to increase ever so slightly and it seems to directly correlate with the growth of the membrane. If it continues to increase it could eventually damage the aortic valve so we (not me but the doctors- though I feel like I could do it with my eyes closed these days) would have to go in and remove the membrane. However, (take a deep breath) they do think it might need to happen in the next 1-2 years (as of today’s echo) - I will send all the results from today to his dr in Texas to get her opinion.

If they have to end up doing this, it would be another open heart surgery. Also, (as advanced as technology is) it’s really hard for them (the doctors- not me- I would totally be able to tell) to see the difference between the heart muscle and the membrane so there’s no guarantee that they would be able to get it all and it usually grows back and would have to be removed again….and you get the picture how scary this could be
BUT
We can pray, hope, wish that none of this will actually happen. Maybe the membrane will stop growing. Hopefully even if it grows the velocity won’t continue to increase. We can wish that the baffle is the right size and will never need to be replaced.

Liam has found his voice and is has become very opinionated. He’s potty training and doing a wonderful job.
He “graduated” from his therapy outlook and is no longer seeing any of his therapists at this point in time.

He loves trucks and Woody, Buzz and Jessie along with trains!

Him and Baileys are the best to friends.

He completed his first season of soccer shots.
First monster truck show
First x games
First sparkler
First beach trip

Our next visit to Texas is in January. Please pray for all good results.

Also- Saturday December 5th Liam will have his own team at the Heart Walk at Audubon Park. I’ll post more details in the comments if you want to donate and/or join us to celebrate him, his heart, and all of the others affected by heart disease!

12/16/2025

Day 712 of Baby Liam’s heart journey outside of mom!

A lot has happened since the last time I posted in September!
Liam switched classrooms and is with children all older then him, some a few weeks but most a few months. He’s absolutely loving school and walks in every day with no tears!

He had another echo and ekg in November in Texas. He was so calm and still for all of his tests. It made my momma heart so happy that we didn’t have to sedate him to get clear pictures.

You may remember earlier this year that we were concerned that his pulmonary arteries weren’t growing and we confirmed that they were in the spring. They are still growing and are not a concern at this time.

You may also remember that we are currently watching his baffle.
The baffle (the patch on the hole between the lower chambers of his heart) is made out of pericardium (the heart sac) - yes they cut a peace of it to make his baffle. The baffle isn’t expected to grow with his heart and there’s usually a chance that it will have to be replaced once the heart is fully grown (teenager or young adult) but sometimes it doesn’t have to be replaced.

Our current concern:
There is a subarctic membrane growing off of the baffle (like a piece of a scar tissue) and it’s just flapping around in front of the aorta. This membrane is expected to continue to grow as the heart grows. The good news is that it’s not attaching to the aorta or anything else. It continues to just flap around out there. The velocity continues to increase ever so slightly and it seems to directly correlate with the growth of the membrane. If it continues to increase it could eventually damage the aortic valve so we (not me but the doctors- though I feel like I could do it with my eyes closed these days) would have to go in and remove the membrane. More good news is they don’t think this is something that will need to happen in the next year or two. However, (take a deep breath) they do think it might need to happen in the next 3-5 years.

If they have to end up doing this, it would be another open heart surgery. Also, (as advanced as technology is) it’s really hard for them (the doctors- not me- I would totally be able to tell) to see the difference between the heart muscle and the membrane so there’s no guarantee that they would be able to get it all and it usually grows back and would have to be removed again….and you get the picture how scary this could be
BUT
We can pray, hope, wish that none of this will actually happen. Maybe the membrane will stop growing. Hopefully even if it grows the velocity won’t continue to increase. We can wish that the baffle is the right size and will never need to be replaced. I can dream that we will never spend another night in the hospital. Dreams do come true.

Liam is currently in physical therapy and speech therapy once a week. We don’t think he is delayed, but he is a little shy and needs to build up his core strength. He is learning to use his big voice when talking to other so don’t be afraid to tell him “use your big voice” when you see him 🙂

He absolutely loved trick or treating, enjoys Bucees as much as Mommy does and got to meet Mickey Mouse and all of his friends for the first time in his first ever cruise!

He thoroughly enjoyed Thanksgiving with family and friends. We spent it at the duck farm where he got one of his Christmas presents early from his maw and paw duck - a truck!

He has also grown much fonder of Santa Clause this year! We can’t wait for Christmas next week but this week, we mourn the loss of a dear family member and are so grateful we got to spend Thanksgiving with them. Please keep our family in your thoughts and prayers tomorrow and Wednesday especially, but always as we need all the prayers we can get!

09/01/2025

Day 607 of Baby Liam’s heart journey outside of mommy!

Liam will be 20 months old tomorrow!

We had an eventful weekend but also saw his Nola cardiologist last week. He was very calm for his echo and they are still showing some increased velocity around the baffle. Still not enough to do anything about at this time but we will see his Houston team in November and check again!

Liam is moving up to his new class tomorrow. He will be with kids around 3-4 months older than him because he was so advanced in his current class. This is super exciting for us because it means Liam is on track with his development physically and mentally and compared to other kids at his specific school - slightly ahead of the game! It also makes my mama heart sad because he’s growing so fast!
He moved to tables and chairs his height- no more high chairs 😞 (at least at school)

He has 4 teeth coming in now and only 4 more molars to come in after that!!!

He’s an eating machine eating almost anything he sees!

He loves trains, animals, trucks and being in the water! He loves his fur sister Baileys (and Charlie and Molly too)! He’s like a parrot trying to repeat everything he hears and we are working on stringing words together!

We saw dinosaurs, went to the train museum and had lots of swim time this weekend!

Thank you all for your continued prayers!

07/09/2025

Day 553 of Baby Liam’s Life Journey!

Liam did number 1 on the potty for the first time this morning, no I didn’t get a picture but we FaceTimed Nanny Tracy to celebrate!

18 months and 1 week old!

Here are a few pics from recently

06/11/2025

Day 524 of Baby Liam’s heart journey outside of mommy’s belly!

We traveled to Houston last week and met with Liam’s cardiologist!
GREAT NEWS - she confirmed his pulmonary arteries ARE in fact growing! Such a big win and I’m so happy about this!

We are now watching his baffle/patch that closed his VSD/hole between the two bottoms heart chambers. We know that the baffle itself doesn’t grow. It was made out of Liam’s pericardium (the heart sac) to be a little bigger so that it does have room to stretch as Liam grows and our hope is always that he never needs another intervention, however, it’s (unfortunately) common to have to go in and change out his baffle at some point or another. When this is the case, it’s (hopefully) usually when they are a teenager or young adult, but sometimes it’s sooner.

Obviously, this is not affecting Liam at this point in time (if you’ve seen him lately you know he’s none stop)!
The plan is to wait and watch and follow up with his Houston team in November for a sedated echocardiogram so that we can get a clear and accurate picture of what is actually going on.

We also met with his developmental team and Liam is ahead of the game when it comes to meeting his milestones which is super exciting and a huge relief!

We had another stomach virus which was not pretty!

We go see his ENT tomorrow and have a hearing test to check on the placement of his tubes!
*Update* Wed 6/11/25 - Liam has a double ear infection again and both tubes were clogged. They unclogged them via suction in office and he will be getting drops AND oral antibiotics again. Bummer 😞

Liam is running, sharing, loving life!
He loves bubbles and Baileys! He’s saying more and more words and is learning new signs every time we practice!
He shakes his head yes and no in the correct use. He loves helping and is super independent!

Oh- and he had his second hair cut 😭

Thank you all for your continued prayers!

06/03/2025

516 Days outside of Mommy’s belly

17 months old!

We go to Houston this week to check in with Liam’s team! Please keep us in your prayers and here are 17 pictures for 17 months!

04/29/2025

Day 481 outside of mommy

Today we were told Liam has an upper respiratory infection.

My mama heart is broken because he’s been battling a runny nose since December, had a double ear infection over Mardi Gras and another one and strep over Easter. Last week he got tubes in and his adenoids removed and had a little reaction to being intubated and had to get a breathing treatment and oxygen to help. After that he struggled coming out of the anesthesia and still seemed to be in pain so I opted to give him a small dose of morphine after Tylenol and Motrin had both been given and didn’t seem to help. He finally came to and we headed home. They told me having his adenoids removed should help with his snotty nose and it’s only made it worse.

He’s also been running fever on and off since April 10th, he’s been to the pediatrician 4 times, the ent, the cardiologist, the ER and his surgery…
Now this
Pray for us
Pray for a quick recovery and that this is it for illnesses for this sweet boy
Pray that I don’t have a sympathy illness
Pray that our dog Baileys overcomes her double ear infection and allergies 🫣
Pray that I am in fact Cinderella and that all this house work will return a Prince Charming
Pray that another holiday doesn’t bring another illness

Oh, and we visited global wildlife 🥰

04/13/2025

Saturday, April 12th 2025
465 days outside of mommy’s tummy

Yesterday Liam had quite a few doctor’s appointments…

1st we saw his ENT where she confirmed he does in fact have another double ear infection and said both eardrums are bulging 😞
She gave us a different antibiotic and has recommended tubes and having his adenoids removed. I’m consulting his Texas cardiology and anesthesiology teams to understand risks and decide if we will have them done here or in Texas at TCH.

2nd he had an EKG where he helped put his stickers that hold the monitors on and take them off the like a big boy!

3rd he had an echocardiogram where he laid pretty still and cooperatively for 40+ minutes

4th we met with his cardiologist where she told us that she thinks his pulmonary arteries are actually growing that everything looks wonderful with his heart! She went on to say that she doesn’t think Liam will need an intervention any time soon! This makes my mama heart so happy but I think I’ll truly believe it when I hear his TCH team confirm it in June.

Liam is full blown walking and starting to run! He stomps his feet, claps his hands, gives hugs, kisses and high fives, is learned fist bumps and to blow kisses. He says banana, bubbles, baileys, signs more, no and all done, he loves reading books, swinging and sliding and anything outside! He also loves music and mommy’s singing 🙂

Thank you all for your prayers and we continue to ask for them because obviously they are working!

Baby Liam’s Heart Journey

10/01/2026

09/16/2026

07/31/2026

12/16/2025

09/01/2025

07/09/2025

06/11/2025

06/03/2025

04/29/2025

04/13/2025

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