Levi's Legacy DIPG Foundation

09/26/2026

ABSOLUTELY!

I know when you look at me now, lying in bed, unable to walk or talk, you think, “Poor thing. She has cancer.”

You pity me.

You see the disease. The disease that changed my face and body.

You do not see who I was 10 months ago, with a tiara on my head and a beautiful dress to twirl in.

No, I don’t want your pity.

I want you to be angry.

Angry that we have self-driving cars, robots, AI and technology that can do things we once thought impossible… yet children with brain cancer are still being told there is no cure.

Don’t feel sorry for me.

Be angry for me. Advocate for me.

Don’t virtue signal with “thoughts and prayers”

Take action, because 10 months should never be enough time for cancer to take this much from a child.

I don’t need pity. I need a future I rightfully deserve.

09/13/2026

Pediatric brain tumors are not one single disease. Every diagnosis has its own biology, treatment challenges, and deeply personal story.

Pediatric brain-tumor diagnoses include:

🎗️ Low-grade gliomas, including pilocytic astrocytoma
🎗️ High-grade gliomas, including grade 4 glioblastoma
🎗️ Diffuse midline glioma, including DIPG
🎗️ Medulloblastoma
🎗️ Ependymoma
🎗️ Atypical teratoid/rhabdoid tumor (AT/RT)
🎗️ Embryonal tumor with multilayered rosettes (ETMR)
🎗️ Craniopharyngioma
🎗️ Germ cell tumors
🎗️ Choroid plexus tumors
🎗️ Pineoblastoma

These are only a few of the many pediatric brain-tumor diagnoses. Each category can include additional tumor types and molecular subtypes, making every child’s diagnosis and treatment journey unique. During Childhood Cancer Awareness Month, we honor the children fighting, remember the children we have lost, and stand beside every family forever changed by a pediatric brain tumor. 💛🎗️

09/11/2026

💛 September is Childhood Cancer Awareness Month — and for us, it’s personal. 💛

This month, we’re honored to host our Levi’s Legacy DIPG Foundation fundraising event, made possible by the generosity of StarCycle Vancouver and the Under the Stars donation ride (Sept 12th). Their support behind it means so much to the families we are here to help and the research we can contribute to.

Our local businesses and friends generously donated many gifts and experiences. We even have a three-night Palm Springs, Airbnb stay (blackout dates apply) for those not in the local area. Every raffle ticket purchased, every dollar given, becomes part of the fight for children who deserve more tomorrows. 100% of the donations go directly to LLDF.

If you’re nearby and want raffle tickets, message us. If you’d like to give directly, our Venmo is on the donation flyer. Your kindness doesn’t just help — it matters. It fuels research, supports families, and keeps Levi’s legacy alive in the most powerful way.

Thank you for joining our fight for kids who deserve the world. 🎗️💛

09/08/2026

GOOOOOO GAVIN!!!! What a fun day!!
We love you!!🎉🎉🎉

07/21/2026

Amazing news for Hazel!! 🎉🎉🎉

Hazel's Bone Marrow was negative which declares her as "No Evidence of Active Disease"!!!! Praise God!

We are just now boarding our plane to NYC to begin a new trial tomorrow. I'll add some more details then.

07/16/2026

Oh Viv, you are so loved and so missed! 🦖🦕❤️

365 days since my heart shattered into a million pieces. 365 days since I held you as you took your final breath at 10:17am. 365 days at 3:37pm since they took you away from my arms.

365 days ago you earned your wings. 🪽

365 days living without you. Well, I don't know if I'd call it living, it's been more like surviving, taking one breath at a time, but barely holding on and barely breathing at the same time. The only reason I've kept moving forward is because of your big brother. You’re so deeply missed, Viv!

Life will never be the same without you, babygirl. You only had 10 short years here, but the impact you made will last a lifetime. You brought so much love, joy, and light into every life you touched.

For an entire year, Viv hasn't gotten the chance to simply be a kid. She missed all of 5th grade, the laughter, the friendships, the scraped knees, the lessons, the memories, and all the little moments that make childhood so special.

She has missed so much, and she'll continue to miss the milestones she deserved to experience. That's what breaks me the most. All the dreams she should have lived, all the lives she would have touched, all the good she would have brought into this world.

DIPG stole all of that. It should have never taken my little girl. Vivi you so deserved a full happy life. 💔

Fly high, my sweet angel. I'll never understand why you were taken so young. The pain is impossible to put into words, and there are still days I don't know how to keep going with you being gone. But your love, your light, and your beautiful spirit will live on forever through everyone who was lucky enough to know you.

I love you endlessly, Viv. I miss you every single day. 🦖❤️‍🩹

05/30/2026

Natalie passed away on the same day as Levi, just hours apart. 💔 Her mom Amanda is a treasured friend and advocate 🎗️ Go Gray in May for Nat, Levi, and all of our beautiful warriors and “angels” 🎗️

Go Gray in May! Meet Natalie! Natalie had just turned 15 years old when her life changed forever. On December 4th, 2018, she began experiencing difficulty walking and talking, along with a severe headache. What initially seemed like the flu quickly became much more serious. She was rushed to the ER in her hometown and then transferred by critical care team to Batson Children’s Hospital.
Upon arrival, Natalie was placed on a ventilator and underwent procedures to relieve fluid buildup on her brain. Doctors first suspected the flu, then meningitis, then encephalitis. Soon, they discovered a mass on her brain stem. Two days later, the devastating diagnosis was confirmed to be DIPG. The diagnosis came as a complete shock. Just one week earlier, Natalie had been an active teenager, enjoying life and riding her four-wheeler.
Natalie began radiation treatment, and her tumor remained stable without growth for months. However, she faced numerous complications, including kidney stones and a pseudomonas infection acquired during a hospital stay. Following kidney surgery, Natalie developed sepsis. Despite her incredible strength and determination, she lived only 30 days after the sepsis diagnosis. At that time, her tumor remained under control.
On October 11th, 2019, Natalie gained her wings at the age of 15 after a ten month fight.
She was less than a month away from turning 16💔

05/30/2026

Had a beautiful but hard day celebrating Levi’s 10th Birthday today. So exhausted so I’ll just post this pic tonight. Hope to share the rest of the day tomorrow.

05/29/2026

🎉🎉🎉50% Off EVERYTHING!! 🎉🎉🎉
Discount will automatically apply at Checkout! SHOP TILL YOU DROP!!
💙💚🐞HAPPY 10th BIRTHDAY LEVI!! 🐞💚💙

05/25/2026

Hi friends! Please share! Our restock sale is open now. You can make your garden beautiful and fight pediatric brain cancer at the same time!! 🎗️🐞🎗️ 25% off discount code is LIVELIKELEVI

RESTOCK OPEN NOW!! 25% discount code is LIVELIKELEVI
🎉🎉🎉