Drake Rayden Foundation

Directions Website Contact the organization

Drake Rayden Foundation Drake's Path is about our son, Drake's, journey with finding hope in a hopeless situation. Drake is only one of 500 children in the world that has the disease.

Drake was diagnosed with Non Ketotic Hyperglycinemia (NKH) when he was about a week old. Drake has the most severe form with a very short life expectancy. Drake's parents, Eric and Tarah OSullivan, have started the Drake Rayden Foundation to raise awareness and funds in hopes of finding better treatment and a cure to this devastating disease.

My goodness to be this close! We are incredibly grateful to announce that we are under $400,000 with our total now left ...
10/16/2026

My goodness to be this close!

We are incredibly grateful to announce that we are under $400,000 with our total now left to raise at $397,459 and a grand total of $1,202,541 raised towards the project!

To God Be Glory!

Drake celebrated his 10th Birthday this week. 10 years of this journey and we could never have written such a miraculous ending. An ending to a decade that also launches a beautiful new beginning!

With so much excitement and celebration we still have work to do. We are closer than we have ever been and WE NEED YOU TO HELP US FINISH STRONG!

If you have been praying, please continue! We are getting down to the wire for what funding the project needs to keep moving forward and funding received!

It has definitely been a faith walk! If you have not donated please do so now! We need every penny to keep this trail on track for end of this year!

Drake and Vivian need you now!
Donate and Tell a friend TODAY!

****Learn More and watch Drake and Vivian's story here:
DrakeRaydenFoundation.com****

Give Now to support Drake and Vivian's Gene Therapy_NKH Gene Therapy

All donations are tax deductible:
The Drake Rayden Foundation is a 501(C)3 Non Profit

GoFundMe: https://gofund.me/ead9af419
Paypal Link: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6
Venmo: https://venmo.com/u/DrakeRaydenFoundation

Mail Checks to Drake Rayden Foundation
2607 Woodruff Road, Suite E PMB 352
Simpsonville, SC 29681

Learn More at DrakeRaydenFoundation.com

This precious Mama is such a blessing! She happens to be an amazing artist as well!She has paintings that she is selling...
10/10/2026

This precious Mama is such a blessing! She happens to be an amazing artist as well!

She has paintings that she is selling and supporting Drake and Vivian!

Such a precious blessing! Please help us share!

What an AMAZING week! Vivian was super excited when we told her the update and we even got a little smile from her!Ya’ll...
10/09/2026

What an AMAZING week! Vivian was super excited when we told her the update and we even got a little smile from her!

Ya’ll, look at the story Father is writing!

We are officially under $500,000 with our total now left to raise at $459,823! Amazing!
Praise the Lord for all He is doing!

If you have been praying, please continue! We are getting down to the wire for what funding the project needs to keep moving forward and funding received! It has definitely been a faith walk! If you have not donated please do so now! We need every penny to keep this trial on track for end of this year!

Drake and Vivian need you now!
Donate TODAY! Every $$ counts!

We are so close to the trial and working on the gazillion details to prep for the day, but today we celebrate YOU! Our precious donors are amazing, and all that you are doing to help share Drake and Vivian’s story, pray with our family, and your generosity to help make this treatment happen!

To God be the Glory for all He is doing through your support!

Please PRAY, Please GIVE and Please SHARE.
Help Drake and Vivian get to the treatment!

****Learn More and watch Drake and Vivian's story here:
DrakeRaydenFoundation.com****

Give Now to support Drake and Vivian's Gene Therapy_NKH Gene Therapy
All donations are tax deductible:

The Drake Rayden Foundation is a 501(C)3 Non Profit

GoFundMe: https://gofund.me/ead9af419
Paypal Link: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6
Venmo: https://venmo.com/u/DrakeRaydenFoundation

Mail Checks to Drake Rayden Foundation
2607 Woodruff Road, Suite E PMB 352
Simpsonville, SC 29681

Learn More at DrakeRaydenFoundation.com

10/07/2026

We love Gabriel O'Sullivan! Thank you for helping Drake and Vivian!

**WE ARE SO EXCITED TO SHARE THIS UPDATE!**We are still overwhelmed by the incredible momentum coming out of our event, ...
10/02/2026

**WE ARE SO EXCITED TO SHARE THIS UPDATE!**

We are still overwhelmed by the incredible momentum coming out of our event, Looking Up and Counting Down. What an amazing night of hope, generosity, prayer, and people coming together for Drake and Vivian.

Because of YOU, we have now raised $987,962.00 plus the $21,967 on our GoFundMe to report we have officially raised
$1 Million Dollars of our $1.6 Million needed for the trial!
Praise be to God! — We are officially 62% funded!

We cannot express how grateful we are to every person who has given, prayed, shared our story, attended the event, connected us with others, or stood beside our family throughout this journey. Every gift—large and small—has helped move this treatment one step closer to Drake and Vivian.

Every week we will update our GoFundMe Campaign to reflect the donations we have received through cash, checks, Venmo, and PayPal. As the GoFundMe donations go up, you will also see the amount needed go down. This is why! We want to give you the most accurate numbers as we receive them!

We are so extremely excited to say we only need $612,038.00 left to fund the trial!

These dollars are directly connected to the remaining steps necessary to make this gene therapy treatment available to Drake and Vivian.

Every week we will be updating you on our project, funding received and the final numbers needed to get us to the trial. We are so incredibly close and every dollar counts!

Please continue to pray with us and share our efforts. Every share puts Drake and Vivian’s story in front of someone new—someone who may give, connect us with another step, or help us reach the person who can make a significant difference in closing this final funding.

From the bottom of our hearts, THANK YOU for loving Drake and Vivian, for believing that treatment is possible for NKH, and for helping us continue moving toward the gene therapy trial for Drake and Vivian scheduled for the end of this year!

Please PRAY, Please GIVE and Please SHARE.
Help Drake and Vivian get to the treatment!

****Learn More and watch Drake and Vivian's story here:
DrakeRaydenFoundation.com****

Give Now to support Drake and Vivian's Gene Therapy_NKH Gene Therapy

All donations are tax deductible:
The Drake Rayden Foundation is a 501(C)3 Non Profit

GoFundMe: https://gofund.me/ead9af419
Paypal Link: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6
Venmo: https://venmo.com/u/DrakeRaydenFoundation

Mail Checks to Drake Rayden Foundation
2607 Woodruff Road, Suite E PMB 352
Simpsonville, SC 29681

Learn More at DrakeRaydenFoundation.com

09/30/2026

We just hit the ONE MILLION DOLLAR MARK!!!

We are so incredibly excited to say that with our last event donations, we have officially made it to the 1 Million Dollar mark in funds received for the Gene Therapy Trial happening later this year for Drake and Vivian!

We will update very soon on exact numbers but we were so excited we wanted to share with you!!!!
-----------
Praise be to God for all He is doing through your support!

Please continue to share, continue to pray with us, as God is moving mightily to make a way for NKH to have a treatment!
----------
Saving Drake and Vivian
HeisEnough...EmetAbba

****Learn More and watch Drake and Vivian's story here:
DrakeRaydenFoundation.com****

Give Now to support Drake and Vivian's Gene Therapy_NKH Gene Therapy

All donations are tax deductible:
The Drake Rayden Foundation is a 501(C)3 Non Profit

GoFundMe: https://gofund.me/ead9af419
Paypal Link: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6
Venmo: https://venmo.com/u/DrakeRaydenFoundation

Mail Checks to Drake Rayden Foundation
2607 Woodruff Road, Suite E PMB 352
Simpsonville, SC 29681

Learn More at DrakeRaydenFoundation.com

Friday FDA Update:I am not sure if yall know this…But the Drake Rayden Foundation just had our FDA meeting about EmetAbb...
09/26/2026

Friday FDA Update:

I am not sure if yall know this…

But the Drake Rayden Foundation just had our FDA meeting about EmetAbba….

And it was GOOD!!!!

Faith is becoming sight friends!

My goodness how surreal to be here after a decade of praying and hoping!!

Will update very soon, but keep praying, keep sharing, and please join us in giving. We are almost there!!

Praise God! He is Enough!

More information or to give come to our website-

Non Ketotic Hyperglycinemia, NKH , is a rare gentic disorder. The Drake Rayden Foundation is a local, non profit located in Greenville / Spartanburg, South Carolina. Our mission is to bring awarenss and better treatment and research for patients and families living with NKH.

Address

Greer, SC
29651

Alerts

Be the first to know and let us send you an email when Drake Rayden Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Drake Rayden Foundation:

Shortcuts

Share