Drake Rayden Foundation

09/04/2026

Still getting the words together to explain what we experienced in Ohio!

More to come but God is so faithful!

Grateful would be an understatement.

Thank you to everyone who supported us last Monday. Whether you golfed, sponsored, bid, donated, spread the word, or simply showed up, you made the difference.

We can’t wait to share more photos and information soon. But from the bottom of our hearts, thank you.

09/01/2026

🚨 THE TIME TO GIVE IS NOW.🚨

To everyone who has prayed, given, shared, and stood beside Drake and Vivian — this is the moment we have been working toward.

The science is there. Their gene therapy is being manufactured. We are no longer raising money for something that may happen years from now. We are raising the critical funding needed to get Drake and Vivian to treatment.

We need our people to step forward now.

If you have been waiting to give, please give now.
If you have already given, would you consider giving again?
And please SHARE THIS VIDEO and personally send it to people who may be willing to stand with us.

We have come too far — and we are too close — to let funding be what stands between these children and the treatment we have spent years fighting to create.

❤️ Give today:
Donate through GoFundMe : Link in comments

🧬 Follow our progress & sign up for updates:
DrakeRaydenFoundation.com

This is our final push. The need is real. The time is now. Please give — and then help us get this update into the hands of someone else who will. 💙

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08/27/2026

Why are NKH seizures different from other seizure disorders? 💙
Because they are not caused by the brain misfiring. They are caused by glycine — an amino acid the body cannot break down — building up to toxic levels and poisoning the brain from birth.
Most seizure medications target electrical activity. They cannot touch glycine toxicity. Which means NKH families spend years trying medication after medication knowing none of them are a real answer.
Gene therapy is the real answer.
Donate here: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6

08/25/2026

So incredibly grateful for all the teams of people working together to make this a reality!

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08/25/2026

What an amazing day it was! Truly grateful for such an amazing tournament!

Much more to come!

08/25/2026

Today our faith becomes sight!

08/25/2026

Day 3: Today our faith becomes sight!

08/25/2026

Most people have never heard of Nonketotic Hyperglycinemia. 💙
It is a rare genetic disease that prevents the body from breaking down glycine. When glycine cannot be broken down it builds up to toxic levels in the brain — causing seizures, profound neurological damage, and a body that causes as much pain as it fights to survive.
85% of children with severe NKH do not survive infancy.
Drake and Vivian did. And November 2026 is their chance at more than survival.
We held onto Galatians 6:9 through every hard season of this fight. The harvest is almost here. Help us get them there.
Donate here: https://www.paypal.com/donate/?hosted_button_id=GT857Y2Y6WFB6

08/25/2026

Long amazing day..so many God moments to come…. But here is a quick update