Lipedema Foundation

06/05/2026

Lipedema Literacy starts with trusted information. This Lipedema Awareness Month, learn from Foundation Project Manager Kasi Grosvenor, as she shares her personal journey and discusses why Lipedema literacy matters on the Stronger than Lipedema podcast.

In this episode, Kasi discusses:
- How pain and functional limitations can become normalized
- Why functional capacity evaluations may reveal impacts that often go unnoticed
- The realities of surgery as a management tool, not a cure
- Common coexisting conditions and ongoing challenges in diagnosis and care
- The importance of finding trusted, evidence-based resources

Kasi also highlights resources available through bit.ly/46NFIj8, provider directories, educational brochures, and the Legato Library.

Listen now: bit.ly/4ft9EbZ

06/05/2026

The National Commission on Lymphatic Disease (NCLD) Report will be presented during the public session of the National Heart, Lung, and Blood Advisory Council (NHLBAC) on June 9.

We are proud that Lipedema Foundation Founder Felicitie Daftuar served on the Commission, helping shape this important work to advance understanding of lymphatic diseases.

Join virtually to hear the report presentation and learn about the commission's recommendations.

Tuesday, June 9
8:30 AM-12:00 PM ET

Watch live: bit.ly/4g0taN0

We encourage our community to attend and witness the results of this important collaborative effort.

The 315th Meeting of the National Heart, Lung and Blood Advisory Council - June 9th, 2026.

06/04/2026

Recognizing the signs of Lipedema is not always straightforward, especially when symptoms overlap with other complex conditions.

We were part of an important conversation on the Bendy Bodies Podcast about earlier recognition of Lipedema and its connections with hypermobility, POTS, MCAS, hEDS/HSD, and related conditions.

Foundation VP of Research Jesse Cochrane and Project Manager Kasi Grosvenor joined the podcast to discuss why so many people go years without clear answers, the signs and symptoms that are often missed, and where research is helping move understanding forward.

If you’ve ever wondered how these conditions intersect, this episode is worth a listen. Thank you to Bendy Bodies Podcast for the opportunity to be part of this important conversation. 💙 Hypermobility MD

Spotify: bit.ly/4e8HAs9
Youtube: bit.ly/4dQZXTy

06/03/2026

How do people begin recognizing the signs of Lipedema if they’ve never been told what to look for?

This week’s Lipedema Literacy focus is Know the Signs, and Allison Jacobs is sharing her story of learning about Lipedema after followers began commenting that some of her symptoms looked familiar.

After researching the signs and symptoms, she began connecting experiences that had previously gone unexplained.

Stories like Allison’s are an important reminder of why awareness matters. Too many people spend years without answers simply because the signs are not widely recognized.

Thank you, Allison, for sharing your story and helping more people learn what to look for. 💙

Learn more about common signs and symptoms here: bit.ly/49rYbFH

06/02/2026

"Learn the signs, symptoms, and treatments for Lipedema, a misunderstood condition affecting millions worldwide."

06/02/2026

This year’s Lipedema Awareness Month campaign is organized around weekly themes, giving all of us a shared way to focus the conversation throughout June.

This week’s theme: Know the Signs

Recognition remains one of the biggest challenges in Lipedema, and too many people spend years searching for answers before receiving a diagnosis. This week, we’re focused on helping more people understand the common signs and symptoms.

Want to help raise awareness with us? Our toolkit includes ready-to-use social media copy, customizable graphics, and educational resources you can share directly or personalize for your own audience.

Download the toolkit and join the conversation: bit.ly/49rYbFH

06/01/2026

It’s time to bring more awareness, more understanding, and more momentum to Lipedema. 💙

Lipedema Awareness Month is here, and throughout June, we’ll be sharing educational resources, research updates, expert perspectives, community stories, and opportunities to take action.

This month is about helping more people recognize the signs, access trusted information, and feel less alone in the process.

Explore everything happening this month here: bit.ly/49rYbFH

05/29/2026

Join Lipoedema UK and the Royal Society of Medicine for Lipoedema in the Spotlight: Expert Opinion on What Clinicians and Patients Need to Know during Lipoedema Awareness Month.

This free international webinar brings together researchers, clinicians, and people with lived experience to discuss diagnosis, treatment, research, quality of life, and future directions in care for people living with Lipoedema.

We’re also proud that Lipedema Foundation CEO, Jonathan Kartt, will contribute to the conversation alongside international experts.

Important: Attendees must first create a free Royal Society of Medicine (RSM) account before registering for the webinar.

Open to healthcare professionals, researchers, and people living with Lipoedema.

Register: bit.ly/4vkVpuy

For registration support: [email protected]

05/28/2026