Cerebral Palsy Research Network - CPRN

Cerebral Palsy Research Network - CPRN Cerebral Palsy Research Network (CPRN) | Community | Research | Education | Wellness

Advancing Research. Creating Earlier Opportunities.✨Today is World Cerebral Palsy Day — a day to celebrate the people wi...
10/06/2026

Advancing Research. Creating Earlier Opportunities.✨

Today is World Cerebral Palsy Day — a day to celebrate the people with cerebral palsy and the families, clinicians, researchers, and advocates working toward a better future.

At the CP Research Network, we’re working to turn research into meaningful change for the CP community. Through the world’s largest clinical cerebral palsy registry, our community registry, and partnerships with researchers and people with lived experience, we’re building a stronger foundation for understanding CP and improving outcomes.

That work also means making research accessible to families. Our new Early Detection Family Resource gives families information they can use to better understand early signs of cerebral palsy, ask informed questions, and navigate what comes next.

Together, we’re advancing research, empowering families, and creating a future with earlier answers and better outcomes.
This World CP Day, help us keep that work moving!

Have a birthday or special occasion coming up? Celebrate with a purpose!Introducing Celebrations for CP — a new way to t...
10/03/2026

Have a birthday or special occasion coming up? Celebrate with a purpose!

Introducing Celebrations for CP — a new way to turn your next celebration into an opportunity to support cerebral palsy research.

Whether it’s your birthday, anniversary, graduation, or another milestone, your celebration can help advance research and create a brighter future for people with CP and their families.

🎁 Invite others to make a gift!

Ready to get started? Check out our Celebrations for CP blog post and toolkit, to make your next milestone matter.

🔗 cprn.org/celebrate-with-a-purpose/

New resource from the CP Research Network 💚Early identification of cerebral palsy can help children and families access ...
10/01/2026

New resource from the CP Research Network 💚

Early identification of cerebral palsy can help children and families access appropriate care, resources and support sooner.

The Early Detection Family Resource was created to help make information about early detection more accessible and provide a resource for families, clinicians and others supporting children who may be at risk for CP.

We’re excited to officially share this resource with the CP community.

🔗 Link to Purchase on Amazon:
https://a.co/d/05n0jrCn

Connecting, sharing, and advancing cerebral palsy research together. The Cerebral Palsy Research Network is at the AACPD...
09/29/2026

Connecting, sharing, and advancing cerebral palsy research together.

The Cerebral Palsy Research Network is at the AACPDM 80th Annual Meeting in Philadelphia, connecting with researchers, clinicians, advocates, families, and people with lived experience across the CP community.

From toolkits to research, we’re proud to share resources and create opportunities for meaningful conversations—including offering attendees an early look at our Early Detection Family Research resource.

Together, we’re turning knowledge, collaboration, and lived experience into progress for the cerebral palsy community. 💚

Cortical/Cerebral Visual Impairment (CVI) is a brain-based visual impairment that affects how the brain processes visual...
09/28/2026

Cortical/Cerebral Visual Impairment (CVI) is a brain-based visual impairment that affects how the brain processes visual information. CVI affects both children and adults, but many people may not know that they have it. For some individuals, CVI symptoms can affect daily life in social settings, at work, and at school. https://cprn.org/LEARNING-ABOUT-CVI/

We have a new blog post, Learning About CVI by Danielle Shealy. Check it out to learn more about the evolving understanding of CVI and read about her personal experience.

CP RESOURCES AVAILABLE ON AMAZON! 💚Looking for trusted, practical resources to better understand and navigate life with ...
09/25/2026

CP RESOURCES AVAILABLE ON AMAZON! 💚

Looking for trusted, practical resources to better understand and navigate life with cerebral palsy? Our Cerebral Palsy Research Network resources are available on Amazon!

These resources are designed to support individuals with CP, families, caregivers, clinicians, educators, and members of the CP community with accessible information and tools they can use at every stage of the journey.

✨ Available now:
📘 Navigating Life with Cerebral Palsy — $19.95
📗 The Cerebral Palsy Toolkit: From Diagnosis to Understanding — $8.49 for a limited time!
📙 Kit de Herramientas para la Parálisis Cerebral — $13.25 for a limited time!

🛒 Get your copy on Amazon today: https://bit.ly/4xEskux

Cerebral palsy doesn’t end at 18 — and neither should our understanding of it. Research across the lifespan helps us bet...
09/22/2026

Cerebral palsy doesn’t end at 18 — and neither should our understanding of it. Research across the lifespan helps us better understand the changing needs, experiences and priorities of people with CP as they move through adulthood and aging. At the CP Research Network, our research includes the lifespan of people with CP—not just pediatrics.

Research is stronger when we work together.Through the CP Research Network, researchers, clinicians, and people with liv...
09/16/2026

Research is stronger when we work together.

Through the CP Research Network, researchers, clinicians, and people with lived experience come together to ask meaningful questions, share collective expertise, and advance work that can make a real-world difference for people with cerebral palsy.

As Dr. Cristina Sarmiento shared, “It’s such a passionate community of community members, researchers, clinicians… and it’s just so powerful. I feel like we’re able to do so much together.”

Your support helps make this collaboration—and the research it inspires—possible.

🔗 Learn more and support our work at CPRN.org.

What happens after you join a research registry? 💭Participation can help researchers identify trends, answer important q...
09/10/2026

What happens after you join a research registry? 💭

Participation can help researchers identify trends, answer important questions, and shape future studies all while protecting participant privacy. Learn how your involvement makes a difference.

Addressing a person with CP’s overall health means having clarity about the source of their symptoms and the conditions ...
09/06/2026

Addressing a person with CP’s overall health means having clarity about the source of their symptoms and the conditions impacting them. Did you know 95% of people with CP have another/co-occuring health condition?

For example, 40% of people with CP also have a diagnosis of epilepsy. 💚

Discuss unaddressed or new symptoms with your care team or primary care doctor. Knowledge builds awareness. Awareness helps improve care.

Address

PO Box 8347
Greenville, SC
29604

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 10am - 6pm
Sunday 10am - 10pm

Alerts

Be the first to know and let us send you an email when Cerebral Palsy Research Network - CPRN posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share