Often Awesome

01/29/2023

It’s been a while but I wanted to share that we’re riding again (after 7 years) in ALS TDIs Tri-State Trek. We’d love to have more people join us as a part of the ride or crew.

ALS TDI is on amazing organization and I know they’ll never stop looking for treatments and ultimately a cure.

- Rachel

We Need More Cowbell! Join us for the new and improved Tri-State Trek on June 24-25, 2023!

09/20/2016

Want to make a difference today? Check this out!

Message from our friend and ALS advocate Michele Dupree:
'Exciting and amazing way to advance research at ALS TDI for the next 24 hours!
PLEASE REPOST!
My donation of $25 was matched TWICE so it's become $75
Pleaseeeeeee donate right now and share! A Life Story Foundation secured this event and every donation goes to research!!
The Giving Challenge is LIVE! Donations mean more during . For the next 24 hours, until 11:59am Wednesday, donations will be matched up to $100, and new donors will be matched two times, thanks to Community Foundation of Sarasota County and The Patterson Foundation!
'

We believe each one of us has the potential to impact a person, a cause, a community. On September 20 and 21, you can be the one to make a difference by supporting the local nonprofit causes you love during the 2016 24-hour Giving Challenge, presented by the Community Foundation of Sarasota County.

06/29/2016

Team Often Awesome at the top of St. John's hill. The team rode over 270 miles on the Tri-State Trek last weekend and has raised over $7,000 to help ALS TDI find a cure for ALS.

Still want to help support our efforts? http://tst.als.net/oftenawesome

But the bigger question is...who's joining us next year for one, two or three days? You can pre-register here! https://www.classy.org/events/tri-state-trek-2017-pre-registration/e85774

06/24/2016

Team Often Awesome finishes day 1 of the Tri State Trek. 104 miles in the books to help end ALS.

Help support research and ALS TDI. Plus we appreciate the mental boost going in to day 2 :)

http://tst.als.net/oftenawesome

05/17/2016

Hey Greensboro! Every single Friday night from 5:30PM-6:30PM for May and June, get your yoga on at Radiance Yoga while supporting Often Awesome! All funds raised will go to Team Often Awesome's Tri State Trek ride so your money will be going to help find a treatment and a cure for ALS. We're riding 270 miles and you get to relax. Win, win.

Check out Radiance Yoga online here: http://www.radianceyogagreensboro.com/

02/21/2016

We often get questions about how people can help...THIS is the kind of thing everyone can do everyday.

Please sign to help drive help advocate for the patient care that is needed desperately.

ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues. There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare. There is also a great disparity bet…

02/08/2016

Thank you to everyone who came out Thursday night to support our first fundraising event - wine and paint at Muse Paintbar at Patriot Place! We had a blast and raised just shy of $500 between the ticket sales and change collected.

01/18/2016

Holy cow! Blake shared this past week that this episode of Often Awesome The Series hit over 100,000 views. Thank you Blake and Andy for your work on this and letting Tim still tell the world about ALS.

Episode 32 : "A Day in the Life" — This episode focuses on the daily routine that Tim lives with. The care that he receives from his wife, friends and nurses...

01/16/2016

Greensboro family...it looks like we may have a Tri State Trek fundraiser in the works for the end of April! Keep an eye out for some wine and paint for you too - likely a Sunday afternoon! Thanks to Mary Anne and Sara for making sure we get fundraising going everywhere!

01/09/2016

RunDisney races are known to sell out within an hour. For some reason, the first ever Star Wars Dark Side 1/2 Marathon at Walt Disney World in Orlando in April still hasn't sold out. We think it's because we need more people to run with Team Often Awesome. Let us know if anyone else wants to join our 4 person team! You can register through runDisney here - http://www.rundisney.com/star-wars-wdw-half-marathon/.

It is a weekend of galactic fun and fantastic runs during the Inaugural Star Wars Half Marathon The Dark Side at the Walt Disney World Resort Youll be running on Darth Vaders turf with the Emperors white uniformed storm troopers cheering you on your way Darth Vader the Galactic Empire Sith Lord has…

12/26/2015

Often Awesome is officially participating in the Tri-State Trek June 24th-26th, 2016. The TST raises money to support ALS TDI, a nonprofit who works tirelessly to find a treatment and cure for ALS. Their employees are amazing and were unbelievably supportive for ALS patients and their families too which becomes apparent when seeing how many employees commit to ride the 270 miles for the Trek.

We'd love to have anyone interested join us for one, two or all three days or you can support our team (or individuals on our team) right here - http://tst.als.net/oftenawesome.

Help us help ALS TDI make ALS suck less.

10/27/2015

From our friend Steve Saling :
"Okay, here we go again. frown emoticon Medicare continues to try to deny technology to the disabled. First, it was the computers that allow pALS to speak but we beat them back with the Steve Gleason Act. Now, Medicare is trying to deny the disabled the customized power wheelchairs that allow people like me to live a mobile lifestyle. I don't know why they want me stuck in my bed for the rest of my life but I need your help to tell Congress to block this wrongful action. It has to be passed before January 1 so please take 10 minutes to add your voice to mine today. The link below will explain a little more and shows the letter I wrote. Thank you for your support once again and please share."

This Act will prevent the Medicare program from cutting payments for complex rehab wheelchair accessories such as custom head support and seating systems, mounting hardware, adjustable leg rests, and specialty drive controls among other wheelchair accesso