Charley's Fund

09/08/2025

On World Awareness Day, we joined families, clinicians, and advocates around the world to recognize progress in research and care. We're grateful to collaborate with so many incredible organizations dedicated to this mission.

4 Jake's Sake Camp Promise Everest to End Duchenne Kindness Over Muscular Dystrophy The Hope for Gus Foundation United States Volt Hockey Association Walking Strong Parent Project Muscular Dystrophy The Akari Foundation Jett Foundation Best Day Ever Foundation, Inc. Charley's Fund Destroy Duchenne Finn's Friends MDFF Indiana Hunters Heart Foundation Team Joseph Little Hercules Foundation Muscular Dystrophy Association CureDuchenne

11/08/2023

Come join us at Somebody To Talk To for a Duchenne musclar dystrophy live zoom session on Neurology 101 with physician Dr. Ghosh @ 6:00 pm tommrow night. https://us06web.zoom.us/j/83337957375. Free event!

10/23/2023

Come this Thursday @ 6:00- 6:30pm to Charley’s session with Somebody To Talk Too on an “Introduction to Clinical Trails”. With our guest speakers Gabreila “Gabbi” Almanzar & Dr. Diana Castro MD. Discussing the ins & outs of participating in clinical trials. 💊🧪👩‍🔬

10/12/2023

Tonight! @ 6:00pm Charley will be a part of a discussion panel Duchenne muscular dystrophy & Independent living. Please join! Alan Chaulet Tayjus Surampudi Spread the word! David Gusick Mindy Huber-Cameron

07/29/2023

You can now stream Darius Goes West for free on Youtube. This movie never gets old. Watch it or watch it again! Love you forever, Big D.

Winner of over 25 festival awards. "A classic" - LA Times "An odyssey" - Variety "Remarkable" - Cinematical "The best film of the year" - DVD Talk Winner of over 25 festival awards. "A classic" - LA Times "An odyssey" - Variety "Remarkable" - Cinematical "The best film of the year" - DVD Talk The Mo...

01/01/2023

https://www.tiktok.com//video/7183463860429622574

This is THE BEST!! Reading all the comments made our day. We love NYC, we love Noble, and of course we love Charley!

Favorite place to eat in the East Village? 📍 Soothr (204 E 13th St, New York, NY 10003) $19 Chicken Khao Soi 🍗

12/31/2022

12/23/2022

This holiday season, we are grateful for collaboration. To the organizations and families who support The Duchenne Program at UMass Chan Medical School: We are honored to partner with you. And to the team that runs the clinic: Thank you for your hard work and dedication. Happy holidays to all!

12/31/2021

Sit back, relax, and let the new year roll in! BUT before you shut down for 2021, please consider making a final donation to Charley's Fund. This is our last major fundraising push!! Beginning January 2022, our full focus will turn to improving and enhancing The Duchenne Program at UMass Chan Medical School, the incredible full-service clinic your donations have helped support. Please go big for our final push! HAPPY NEW YEAR!!!!

https://support.charleysfund.org/campaign/charleys-fund-2021-annual-appeal/c380609

12/30/2021

BIG NEWS from Small Kids Big Change! Our awesome team of young fundraisers is just $283 dollars away from reaching a lifetime total of $50,000 raised for research!!! THANK YOU to these incredible kids and their families. You are making a difference for Charley and all guys with Duchenne. Big change really does smart small! Want to help push them over the goal line? Donate at the link here.

About Charley's Fund Founded by parents, fueled by the best minds in science and business, Charley’s Fund has one singular goal: translate research promise into real-life results for Charley and 200,000 like him worldwide. We are a small but mighty organization with a fierce spirit, a creative a.....

12/29/2021

Well this is super cool! A chance to go to Everest and help end Duchenne, hosted by our partners at the Hope for Gus Foundation. We hope some of our adventurous friends will check it out and consider joining the trek!

We have a final date for Everest to End Duchenne 2022! We will be leaving the 2nd week of March! We still have room for 4 MORE TEAM MEMBERS and there is plenty of time to fundraise and get ready!! Please message us or email for any questions - [email protected] JOIN US on an incredible adventure, raising funds for DMD!

11/30/2021

In honor of Giving Tuesday, please consider making a donation to our Big Birthday Blowout!! Charley turned 21 this month, and we're still celebrating this incredible milestone. The more money we raise, the more kids we can help!

About Charley's Fund Founded by parents, fueled by the best minds in science and business, Charley’s Fund has one singular goal: translate research promise into real-life results for Charley and 200,000 like him worldwide. We are a small but mighty organization with a fierce spirit, a creative a.....