Cure SMA - Illinois Chapter

11/25/2025

Incredible news for the SMA community!

Incredible news for the SMA community! Novartis has received FDA approval for Itvisma® (onasemnogene abeparvovec-brve)—a new SMA treatment option bringing greater independence and new possibilities for individuals living with SMA.

This is a meaningful step forward in our collective mission to address the critical unmet needs of older individuals living with SMA while empowering families with more options for care.

Learn more about this exciting development and what it means for individuals and families impacted by SMA: https://www.curesma.org/novartis-receives-fda-approval-of-itvisma-for-the-treatment-of-sma/

08/15/2025

The chapter is offering two events this Sunday, August 17th. Come to one or both! Join us for an accessible playground meet up at The Sandlot in Oakbrook from 1:00-3:00. Enjoy a meal at Anyways Pub in Oakbrook Terrace at 3:00. Fifteen percent of your purchase will be given back to Cure SMA. Come on out to connect with old friends and make new ones. We hope to see you there! Links to locations in comments.

07/23/2025

The Chicago Summit of Strength is coming up THIS Saturday, July 26! Have you registered? The Summit of Strength is a great opportunity to get up to speed about the latest advances in treatment, care, advocacy, and support. These half-day meetings will feature presentations by local and national experts. This is a free program which includes breakfast, lunch, and parking for all attendees. We look forward to seeing you in Chicago!

Cure SMA leads the way to a world without spinal muscular atrophy (SMA), the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide individuals with SMA and their families the support they need for toda...