South Carolina Advocates For Epilepsy

South Carolina Advocates For Epilepsy South Carolina Advocates For Epilepsy devotes its energy to passionately advocating for members of the epilepsy community.

Proud member of Epilepsy Alliance America!

Raise a glass. Raise awareness. 💜Join us for Thankful Thursday at Cannon Distillery on April 30th from 6–9 PM!✨ 10% of a...
04/13/2026

Raise a glass. Raise awareness. 💜

Join us for Thankful Thursday at Cannon Distillery on April 30th from 6–9 PM!
✨ 10% of all sales go to S.A.F.E. – South Carolina Advocates for Epilepsy, supporting programs and resources for individuals and families impacted by epilepsy across our state.

🎉 Bonus perks:
• Everyone who attends can sign up for a FREE tasting at a future date
• Enter to win a Cannon Distillery product package in our raffle
Every sip supports the 1 in 26 who will be diagnosed with epilepsy in their lifetime.

📍 Location: 1734 Signal Point Road, James Island
🕕 Time: 6:00 – 9:00 PM

Bring your friends, enjoy a great evening, and make a meaningful impact—one drink at a time.

Today is World Health Day — a reminder that health is not one-size-fits-all.For the 1 in 26 people who will be diagnosed...
04/08/2026

Today is World Health Day — a reminder that health is not one-size-fits-all.

For the 1 in 26 people who will be diagnosed with epilepsy in their lifetime, health includes understanding seizures, access to the right care, and a community that knows how to respond with confidence and compassion.

Epilepsy is more than seizures — it can impact mental health, independence, education, and daily life. That’s why awareness, education, and advocacy matter.

This World Health Day, let’s commit to:
💜 Learning seizure recognition first aid
💜 Supporting those living with epilepsy
💜 Breaking the stigma through understanding

Together, we can build a healthier, more inclusive world for everyone.

💜 You’re not alone—and you don’t have to navigate epilepsy alone either. 💜This April, we’re bringing our community toget...
04/06/2026

💜 You’re not alone—and you don’t have to navigate epilepsy alone either. 💜

This April, we’re bringing our community together through two powerful virtual support groups designed to educate, encourage, and connect:
👩‍👧 Caregiver Support Group
🗓 April 9 | ⏰ 7:00 PM
A space for caregivers to share experiences, gain practical guidance, and find support from others who truly understand.
✨ This month, we’re excited to welcome Paige Marinelli, LCSW and a person living with epilepsy, who will share helpful information and practical tips for caregivers.

🧑‍🤝‍🧑 Patient Support Group (Ages 14+)
🗓 April 21 | ⏰ 7:00 PM
A welcoming environment to connect with others living with epilepsy, build confidence, and access reliable information.

✨ Whether you’re caring for someone or living with epilepsy yourself, these groups offer:
✔ Meaningful connection
✔ Trusted education
✔ Encouragement and empowerment
📩 Email [email protected] to request your meeting link.

Together, we move forward—stronger. 💜

Help Shape a New Seizure Alerting DeviceDDF is excited to share that an epilepsy technology company is developing a new ...
04/01/2026

Help Shape a New Seizure Alerting Device

DDF is excited to share that an epilepsy technology company is developing a new EEG-based seizure alerting system designed specifically for continuous use during sleep at home by people living with epilepsy.
This digital health company is modernizing brain health solutions to improve seizure monitoring and detection. They want to learn directly our Danny Did community, to better understand your experiences and what features would matter most in a sleep seizure alerting system. Your insights will directly help shape the design and development of this device.
Who? People living with seizures of any type or caregivers are invited to this study.
What’s involved:
• A 1:1 or small group virtual interview (~45 minutes)
• Questions about your experience and needs.
• Compensation provided in the form of an eVisa gift card

Your voice can help ensure this technology is built with families in our community — not just for them.

To learn more or express interest, please use this form: https://tinyurl.com/bdzj7ecr

🌟 Join Us for Epilepsy Awareness Day — April 25, 2026! 🌟We’re excited to invite our community to Epilepsy Awareness Day ...
03/31/2026

🌟 Join Us for Epilepsy Awareness Day — April 25, 2026! 🌟
We’re excited to invite our community to Epilepsy Awareness Day in Orlando — a powerful day of learning, connection, and advocacy for everyone impacted by epilepsy. 💜
With more than 2,200 people already registered, this is the East Coast’s largest epilepsy gathering — bringing together patients, caregivers, medical professionals, advocates, and supporters from across the country.

📚 Educational sessions
💬 Support resources
🤝 Community connection
✨ A little Disney magic

And yes — S.A.F.E. will be there! 🙌 We would love to see you and represent South Carolina together.
🆓 Registration is FREE (required to attend)
👉 Sign up today: epilepsyawarenessdayfl.org

Let’s show up, raise awareness, and remind every family affected by epilepsy that they are not alone. 💜

Today, on Physician’s Day, we take a moment to recognize and thank the dedicated providers who stand beside individuals ...
03/30/2026

Today, on Physician’s Day, we take a moment to recognize and thank the dedicated providers who stand beside individuals living with epilepsy every single day.

Epilepsy is more than a diagnosis—it’s a journey filled with uncertainty, resilience, and hope. Physicians play a critical role in that journey, helping patients navigate complex treatment options, manage seizures, create Seizure Action Plans (SAPs), and improve quality of life. Their expertise, compassion, and commitment make a lasting difference not only for patients, but for families and caregivers as well.

To the neurologists, epileptologists, nurse practitioners, physician assistants, primary care providers, and all healthcare professionals who support the epilepsy community—thank you for listening, advocating, researching, and never giving up on better outcomes.
Your work matters. Your care changes lives.

🎭✨ World Theatre Day & Epilepsy Awareness ✨🎭Today, on World Theatre Day, we celebrate the power of storytelling—the way ...
03/27/2026

🎭✨ World Theatre Day & Epilepsy Awareness ✨🎭

Today, on World Theatre Day, we celebrate the power of storytelling—the way a stage can bring unseen experiences to life and foster understanding.
For those living with epilepsy, every day can feel unpredictable, like stepping into the unknown without a script. But just like in theatre, strength, resilience, and support can transform even the most challenging moments into stories of courage.

* Imagine navigating bright lights, loud sounds, and long rehearsals while managing seizures.
* Imagine being misunderstood because others don’t see what’s happening behind the scenes.
That’s why awareness matters.

Let’s use today as a reminder to:
👏 Learn seizure first aid
👏 Support inclusive spaces in the arts and beyond
👏 Amplify the voices of those living with epilepsy
Because everyone deserves a standing ovation—not just for the roles they play, but for the battles they overcome daily.

💜 THANK YOU for making Purple Day 2026 so impactful! 💜We are incredibly grateful to everyone who showed up, shared posts...
03/26/2026

💜 THANK YOU for making Purple Day 2026 so impactful! 💜

We are incredibly grateful to everyone who showed up, shared posts, wore purple, and helped spark meaningful conversations about epilepsy. Your support is what drives awareness, understanding, and change in our community.

A special thank you to Groucho’s Deli in Summerville for hosting a Percentage Night and helping us turn a meal into a mission. Your partnership means so much!

We loved spending the evening surrounded by friends who believe in this cause as deeply as we do. 💜

Together, we are advocating, educating, and inspiring—one conversation at a time.

This Purple Day, stand with the epilepsy community by urging your legislators to support the National Plan for Epilepsy....
03/26/2026

This Purple Day, stand with the epilepsy community by urging your legislators to support the National Plan for Epilepsy. Together, let's make today a day of action and help create lasting change for the 3.4 million Americans living with epilepsy. https://www.votervoice.net/EAA/campaigns/122944/respond

🐾💜 Happy National Puppy Day! 💜🐾Today, March 23, we’re celebrating some very special puppies… the ones who grow up to bec...
03/23/2026

🐾💜 Happy National Puppy Day! 💜🐾

Today, March 23, we’re celebrating some very special puppies… the ones who grow up to become life-changing companions for people living with epilepsy.

These incredible dogs aren’t just pets—they become highly trained service animals that provide safety, independence, and peace of mind.

✨ How service dogs can assist people with epilepsy:
• Alerting to seizures before they happen (in some cases)
• Staying with their person during a seizure to provide comfort and protection
• Activating medical alert systems or seeking help
• Positioning themselves to prevent injury
• Providing deep pressure therapy to help with recovery
• Offering constant companionship, reducing anxiety and isolation

🐶 But becoming a service dog doesn’t happen overnight. It starts with puppies who are carefully selected for temperament, then raised and trained for 1–2 years to learn specialized skills tailored to their future handler’s needs.

💡 How do you get an epilepsy service dog?
The process typically includes:
• Completing a detailed application
• Providing medical documentation
• Participating in interviews and home assessments
• Being matched with a dog based on lifestyle and needs
• Completing handler training to build a strong working partnership

There may also be waitlists and fundraising involved, as training a service dog can cost tens of thousands of dollars.

🤝 Organizations that help provide epilepsy service dogs:
• Canine Assistants
• 4 Paws for Ability
• Paws With A Cause
• Service Dogs Inc.
• Little Angels Service Dogs

📸 The photos featured here are of S.A.F.E. member, Scarlett Stevenson, and her two incredible alert dogs, Roxie and Onyx—real-life heroes who provide daily support, safety, and companionship. After experiencing seizures in 2024, Scarlett became legally blind, creating a need for both a service dog to assist with her vision and a seizure alert dog for added safety.
Scarlett is working tirelessly to raise awareness about the importance of companion and alert dogs, how to obtain one, and what daily life looks like with two incredible service animals by her side. We are so very proud of Scarlett and her efforts to advocate, educate and inspire others dealing with an epilepsy diagnosis.

💜 On this Puppy Day, we honor the journey from playful pup to lifesaving partner—and the incredible impact these dogs have on the epilepsy community.

Address

Goose Creek, SC
29445

Opening Hours

Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm

Telephone

+18439917144

Website

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