08/13/2026
🚨UPDATE🚨 August 13, 2026
Ryan went to see his hepatologist yesterday morning. We have some both good and rather unfortunate news. Unfortunately, in order for Ryan to even BE offered for a liver donor, the doctor needs to see Ryan’s MELD score reach about 23 - 25. The reason for that is because Ryan’s blood type is O+ which is quite rare. And patients that have type-O blood are prone to develop “auto-immunities”.
The good news: He had been dealing with some strange blisters to his hands/fingers after intense itching flare-ups. He brought that up to his specialist and he assumes that it is a rare skin condition associated with Ryans Crohn’s/colitis/IBS and not related to liver cirrhosis. So, he will be contacting a skin specialist through Ochsner to contact me for a video appointment. The blisters are not infectious nor toxic as matter of fact.
He is still active on the waiting list though, but as of yesterday we now know that he cannot even get an offer just yet. As funny as it sounds, his liver health condition needs to worsen in order to go up the MELD score chart.