Organic Acidemia Association Public Page

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Organic Acidemia Association Public Page

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The Organic Acidemia Association is a 501c3 organization supporting families with rare OA disorders

We are a volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.

10/31/2026

🎃👻 Halloween is here! Wishing everyone a spooktacular day filled with plenty of treats, laughter, and fun.

Have a safe and happy Halloween from all of us at OAA! 🕸️🧡

10/30/2026

Check out our most recent issue of our newsletter: The Cofactor. Read about Finley and her family's story about living with PDE, how you can help advocate to have PDE added to newborn screening in your state, and creators who advocate and are living with an Organic Acidemia.
https://mailchi.mp/5dbe6495f67b/the-cofactor-october-roundup
disease

10/26/2026

10/22/2026

Halloween is almost here! You can make trick-or-treating less spooky with our Low-Protein Halloween Treat Guide. Our handy guide makes it easy to find protein and phe values for your favorite goodies. It also provides some tips for managing the higher-protein sweets in your candy pile.

🎃 Get the guide: https://loom.ly/wnt68so

💝 Finding flok’s tools helpful? You can help us build them with a donation to our Care That Connects campaign: giving.flok.org

10/21/2026

Every voice makes a difference 💙

The COMPASS Study is designed to capture real-world experiences of people living with methylmalonic acidemia (MMA) due to mutase deficiency (MUT) and propionic acidemia (PA). Your shared journey could shape future care.
➡️ Join today: https://go.pic.nc/3x1

10/20/2026

Every big build comes down to the small stuff — the nuts and bolts that hold it all together. 🔩 That's exactly what your survey answers are for the OAA dataset.
Small pieces, big impact. Complete your NORD 2.0 profile and fill out the surveys available to contribute today. https://oaaregistry.iamrare.org/
Anyone diagnosed with an organic acidemia is eligible. There are no age or geographic restrictions.

10/20/2026

📣Last Chance!! Registrations close TOMORROW, 10/21/26!📣

https://toysignup.santaslittlehackers.com/

10/06/2026

Every big build comes down to the small stuff — the nuts and bolts that hold it all together. 🔩 That's exactly what your survey answers are for the OAA dataset.
Small pieces, big impact. Complete your NORD 2.0 profile and fill out the surveys available. Together, we make a BIG impact. https://oaaregistry.iamrare.org/
Anyone diagnosed with an organic acidemia is eligible. There are no age or geographic restrictions.

Address

9040 Duluth Street
Golden Valley, MN
55427

Telephone

+17635591797

Website

http://www.oaanews.org/

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