Mother's Foundation

08/07/2024

05/04/2024

Columnist Oluwatosin Adesoye spent decades denying that her sickle cell disease was a disability. That's common and regrettable, she writes.

https://buff.ly/3tjx2TD

05/04/2024

Several therapies have been approved to help manage sickle cell disease and its related complications. Explore them here: https://buff.ly/3UwUNkK

05/04/2024

Columnist Mary Shaniqua explains why she hesitates to join a clinical trial, despite knowing that participation aids in treatment development. https://buff.ly/4bnpP5i

05/04/2024

Changes in how the brain works may lead to hypersensitivity to pain in sickle cell disease, not unlike sensitivity to pain in fibromyalgia. https://buff.ly/4bjyHsG

05/02/2024

Fertility tests in male adolescents with sickle cell may not be feasible if it implies travel to a reproductive center, a study suggests. https://buff.ly/3Jx3cPV

05/02/2024

A Phase 2 bone marrow transplant trial in SCD patients using haploidentical donors and lower intensity conditioning had high survival rates. https://buff.ly/4dnKGY3

02/23/2024

A study of routine screening as a tool for identifying pain in SCD found 1 in 3 children and teens experience persistent or chronic pain. https://buff.ly/49LVPPt

02/08/2024

Starting in 2025,a pricing model aims to make novel therapies more accessible to sickle cell patients in the US with limited resources. https://buff.ly/3w4ABxP

01/26/2024

A three-year NIH grant to a Kennesaw State University engineer will help in creating a device using light to monitor blood flow to the brain. https://buff.ly/3SGqDvH

01/09/2024

As a new year begins, columnist Dunstan Nicol-Wilson shares his hopes for what the future will bring for the sickle cell community. https://buff.ly/3S9x0XO

01/09/2024

After a median of three years of follow-up, 88% of the sickle cell patients evaluated after treatment with Lygenia gene therapy had no VOEs.

https://buff.ly/3tqcMQ6