The Foundation for Peripheral Neuropathy

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The Foundation for Peripheral Neuropathy Our purpose: to improve the lives of patients living with peripheral neuropathy
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Improving lives of those with PN via education+awareness and pursuing advocacy+lobbying+biobank growth+research for better treatments, one day, cures

Today is FPN Day, marking 19 years since Jack Miller, who lives with peripheral neuropathy, started the Foundation for P...
10/14/2026

Today is FPN Day, marking 19 years since Jack Miller, who lives with peripheral neuropathy, started the Foundation for Peripheral Neuropathy.

What began with one person's determination to find cures has grown into a community of patients, caregivers, researchers, and supporters all driving towards answers for those living with PN.

That community has power.

In 2020, after FPN and our community advocated for it, Congress made peripheral neuropathy eligible for federal Department of Defense research funding, opening the door for researchers to apply.

This past March, 19 of us held 34 meetings with congressional offices in 11 states to keep it that way.

These are just a few ways the community moves research forward: we fund promising research, speak up for it, share trusted education, and raise awareness of PN.

Next year, we celebrate 20 years, still working toward a future without peripheral neuropathy and making life better for people living with it today.

Join our mailing list to see how you can get involved. Link in the first comment

Hands that struggle with a button. Nights that don't bring rest. Months, sometimes years, waiting for someone to explain...
10/13/2026

Hands that struggle with a button. Nights that don't bring rest. Months, sometimes years, waiting for someone to explain why.

That's the reality for many people living with peripheral neuropathy, and most of it happens where no one can see.

That's why peripheral neuropathy research matters. It's how we come to understand PN and find better ways to treat, reduce, and ultimately prevent this complex condition from taking hold of people’s quality of life.

The Foundation for Peripheral Neuropathy has the community to make it happen:
- Those living with PN and their families who share their story
- Researchers who work tirelessly on answers
- And supporters and donors who believe progress is possible.

When those people connect, change moves faster.

This Wednesday, October 14, is FPN Day, marking 19 years of supporting those living with PN.

If you support peripheral neuropathy research, join us: https://f.mtr.cool/ghrg4hooag

If your hands or feet feel different since chemotherapy, you are not imagining it, and you are not alone.Some cancer tre...
10/06/2026

If your hands or feet feel different since chemotherapy, you are not imagining it, and you are not alone.

Some cancer treatments can damage the nerves outside the brain and spinal cord. When chemotherapy is the cause, it is called chemotherapy-induced peripheral neuropathy, or CIPN.

Join us Thursday, October 22 at 11 AM CT (12 PM ET) for a free webinar with neurologist Dr. Noah Kolb of the University of Vermont.

He will explain what causes CIPN, who may be at higher risk, the symptoms to look out for, treatment options, and what patients can expect over time. Then he will answer your questions live. Send yours when you register.

Can't join live? Register and we'll email you the recording
Register for free: https://f.mtr.cool/luudko4gu0

If someone you love is going through cancer treatment, please share this with them.

Sponsored by Lilly. For education, not medical advice.

The Foundation for Peripheral Neuropathy (FPN) is here to keep you informed, connected, and empowered on your neuropathy...
09/29/2026

The Foundation for Peripheral Neuropathy (FPN) is here to keep you informed, connected, and empowered on your neuropathy journey. Our eNewsletter, Neuropathy News: September Edition, is out at 5PM CT today!

This issue includes:
- Upcoming Webinar: Chemo-induced Peripheral Neuropathy - What Patients Need To Know
- FPN has expanded their funding to early-career investigators
- Can Eye Pain Actually Be Nerve Pain?

and more!

Sign up here to receive this edition of Neuropathy News: https://f.mtr.cool/udqp2vb337

One of the biggest unanswered questions in peripheral neuropathy? Why some people experience pain and others don't.Accor...
09/22/2026

One of the biggest unanswered questions in peripheral neuropathy? Why some people experience pain and others don't.

According to research published in Diabetes Care, only about one-third of people with diabetic peripheral neuropathy experience pain. The other two-thirds do not.

As Dr. Brian Callaghan, Professor of Neurology at the Michigan Medicine, explains:

"We don't know why that is. And it's not related to the severity of the nerve damage."

More nerve damage doesn't necessarily mean more pain, and less pain doesn't necessarily mean less damage.

For researchers, this remains an important scientific question. For patients, it's a reminder that neuropathy doesn't look or feel the same for everyone.

Watch the full webinar to learn what researchers know, what they're still trying to understand, and why it matters for people living with peripheral neuropathy: https://f.mtr.cool/vhbhvfjfre

Stat Source: Hicks CW et al. Understanding the Impact of Diabetic Peripheral Neuropathy and Painful Diabetic Neuropathy. Diabetes Care. 2025.

We've come so far. Help us finish strong!Thanks to supporters like you, we've already raised more than $200,000 toward t...
09/17/2026

We've come so far. Help us finish strong!

Thanks to supporters like you, we've already raised more than $200,000 toward two FPN Emerging Investigators Program Grants.

This program helps attract talented new researchers to peripheral neuropathy research, bringing more brilliant minds and fresh ideas to the search for better treatments and cures.

A generous donor will match every gift dollar for dollar, up to $25,000.

That means together we can come close to fully funding two $150,000 scholarships and help launch the next generation of peripheral neuropathy researchers.

Please consider making a gift today. Double your impact now: https://f.mtr.cool/irf9bcj4tx

"We don't know what's wrong with you, and we don't know how to fix it." That's what Curtis M. was told at a leading rese...
09/15/2026

"We don't know what's wrong with you, and we don't know how to fix it."

That's what Curtis M. was told at a leading research hospital.

He was scheduled for a five-year follow-up. The call never came.

Unfortunately, Curtis's experience is not unique. It highlights the challenge PN patients and their clinicians face daily: They need for more answers.

That's why The Foundation for Peripheral Neuropathy (FPN) created its Peripheral Neuropathy Research Registry (PNRR).

The registry captures real-world experiences of people living with peripheral neuropathy and helps researchers better understand disease progression, symptom burden, and unmet patient needs.

Today, researchers are already using registry data to generate new insights and advance peripheral neuropathy research.

Every patient’s story helps shape what comes next in peripheral neuropathy research.

Learn how researchers are using the FPN's PNRR to accelerate discoveries: https://f.mtr.cool/uid6j8nfqf

Pain is real, even when others can't see it.For many people living with peripheral neuropathy, pain doesn't always show ...
09/13/2026

Pain is real, even when others can't see it.

For many people living with peripheral neuropathy, pain doesn't always show up on an MRI or other diagnostic tests. That can make it difficult to explain, understand, and treat.

In a recent Foundation for Peripheral Neuropathy webinar, Dr. Alexander Chamessian from WashU Medicine discussed why neuropathic pain is often misunderstood in clinical settings and why listening to patients' experiences is so important.

This Pain Awareness Month, we're committed to advancing research that leads to earlier diagnosis, better treatments, and improved quality of life for everyone living with peripheral neuropathy.

Watch the full webinar to learn more about the science behind neuropathic pain and the latest directions in research: https://f.mtr.cool/l9vs2h1jl3

Millions of people live with peripheral neuropathy. Progress towards treatments and a cure start with research.This year...
07/22/2026

Millions of people live with peripheral neuropathy. Progress towards treatments and a cure start with research.
This year, we're doubling our investment in young investigators by funding two groundbreaking research scholarships.

Your gift today will be matched 1-for-1, helping us accelerate discoveries and move closer to better treatments.

Every dollar counts. Every dollar is doubled. Donate Now: https://f.mtr.cool/iwcblvduzp

06/18/2026

🚨 Double Your Impact for Neuropathy Research 🚨

This year, we're funding TWO Clinical Research Training Scholarships instead of one—doubling our investment in the next generation of neuropathy researchers.

Even better? Every gift will be matched dollar-for-dollar up to $100,000.

Give today and help fund research that could lead to earlier diagnosis, better treatments, and future cures.

Donate Today: https://www.foundationforpn.org/donate/

Address

2700 Patriot Boulevard, Ste 250
Glenview, IL
60026

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+18778839942

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