Cure ADSSL1

Cure ADSSL1 501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy

11/06/2023

Revisit the enlightening session by Naveen Baweja on “How Patients and Caregivers are moving the needle in US and India “at Indo US Bridging RARE Summit 202...

Save the Date Oct 7th!Join us in our mission to raise vital funds for the discovery of treatments for our children and i...
07/11/2023

Save the Date Oct 7th!

Join us in our mission to raise vital funds for the discovery of treatments for our children and individuals impacted by ADSSL1 Myopathy. You can make a difference by purchasing tickets, sponsoring a package, or donating through the provided link: https://one.bidpal.net/wavesofhope/welcome. Every contribution will directly benefit Biotech CureRareDisease, a non-profit organization dedicated to finding a cure. Together, let's pave the way towards a brighter future for those affected by rare diseases.

Thanks Dr. Shieh and Dr. Varughese for presenting ADSSL1 myopathy case in UCI Neuromuscular conference! Thank you Dr. Mo...
06/04/2023

Thanks Dr. Shieh and Dr. Varughese for presenting ADSSL1 myopathy case in UCI Neuromuscular conference! Thank you Dr. Mozaffar for this wonderful opportunity.

It was a great learning experience attending Global Genes RDDS and meeting other GAA members! Thank you Global Genes!!
05/04/2023

It was a great learning experience attending Global Genes RDDS and meeting other GAA members! Thank you Global Genes!!

04/20/2023

Read about the progress we have made and our programs

Q1 2023 Patient group meeting
02/27/2023

Q1 2023 Patient group meeting

01/11/2023

Cure Rare Disease, in partnership with Taconic Biosciences, has successfully developed a knock-in mouse model harboring a mutation known to cause ADSSL1 gene-related myopathy. This model will be used in in vivo testing, an essential step in the development of therapeutics for rare and ultra-rare gen...

12/20/2022

Cure Rare Disease’s goal is to develop life-saving, advanced modalities to treat all rare and ultra-rare diseases like ADSSL1.

Learn more about our pipeline and progress.
https://bit.ly/3uZWXgj

Thank you Park St. Claire community for supporting Cure ADSSL1 org by hosting a community event and raising $18,000 to a...
11/23/2022

Thank you Park St. Claire community for supporting Cure ADSSL1 org by hosting a community event and raising $18,000 to advance the research!

Cure ADSSL1 is a non-profit organization started by the Baweja family in 2022. Both our son and daughter have been diagn...
11/23/2022

Cure ADSSL1 is a non-profit organization started by the Baweja family in 2022. Both our son and daughter have been diagnosed with an ultra-rare neuromuscular disease - ADSSL1 myopathy. Our mission is to find a cure for ADSSL1 myopathy by accelerating the research.

Cure ADSSL1 is a 501(c)(3) public charity, founded in 2022 and based in Los Angeles, CA. The purpose of our group is to spread awareness, work with researchers to develop a treatment, raise funds for research efforts and support each other in the ADSSL1 myopathy community.

Address

1929 Calle Dulce
Glendale, CA
91208

Telephone

+13126319410

Website

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