Luke's Lids for Kids

09/11/2018

Ok LL4K folks there is a young man from MIchigan that needs our prayers urgently!!! I’m not gonna give a ton of details due to respect for his family but I will pass any prayers along to his mother.. PLEASE AND THANK YOU!!!!
His name is Riley!!!!

08/25/2018

Please please send up prayers for this amazing girl...this is her 3rd (!) bone marrow transplant and her body is so ill but she is determined. She just needs a little help from all of us. If you’ve never seen someone go through a BMT it’s hard to imagine how incredible it is that she is walking this road for a 3rd time, God Bless you sweet Ashtyn!

06/12/2018

Please send up prayers and positive thoughts for this sweet guy...poor baby is in so much pain.

05/10/2018

Sweet Emma we surround you in our love and prayers....❤️

Emma’s oxygen levels are dropping, so they put oxygen on her now. She also has fluid on her lungs. Another problem. Poor girl just can’t catch a break. Cousin Bailey came for a visit which made her smile. Her school also did a prayer for her this morning and wrote “Emma” on their arms. They held her photo and all touched shoulders so they can all hold her together. Thank you for the prayers. Thank you for walking along side us. We are so blessed.

05/09/2018

This sweet girl and her family have been a tremendous support to LL4K, please please pray hard for her. We love you Emma!!!

We are devastated and shaking as we write this, but trying to be strong for Emma.

She is bleeding in her stomach due to Graft Versus Host Disease (GVHD) of both her liver and stomach. Her blood counts continue to go down every 2 hours. This is very bad as they are already critically low. She is bleeding internally in her stomach. Tomorrow, they will sedate her do a colonoscopy and endoscopy to try to stop the bleeds. Even if its stopped, it won't cure anything. GVHD happens because Emma's body is rejecting her bone marrow transplant. This can be fatal.

We are at a complete loss right now. We are so heartbroken. We are in absolute fear. We need a miracle. We cannot loose her. Im so so sorry Emma. You deserve so much more.

04/13/2018

Please please pray hard for this family, this dear young man, and this momma. I cannot even imagine what it must be like for her to watch her boy go through this. 💔

03/31/2018

💔 please pray for her dear family
Godspeed Sweet Hazel

It is with overwhelming sadness that I share that Hazel went home to be with the Lord this morning. She was awake and talking and still sharing her joy with her parents, siblings and family and was in no pain right to the end. Right before she passed, she asked her mom and dad if she was going to die. She was scared at first but was assured and comforted by her parents that God was waiting and all would be perfect for her. When she realized that she would be going home to Jesus, she said goodbye and closed her eyes and made her final journey into the arms of the Lord.💔😥🙏 Everyone is asking what they can do. This came so fast Lauren and Aaron were not prepared. Please consider donating to Hazel's fund at: http://www.bumblebeefoundation.org/neuroblastoma-relapse-bees.html That is the best way you can help at the moment. Please keep the Hammersley’s in your prayers as they grieve and heal. Katie Quintas

03/29/2018

Please please prayers for this sweet girl and her family.

It is with the most broken heart that I share this update. The CT that Hazel had earlier this week to investigate her pneumonia, revealed that the fluid was not an infection, but a byproduct of such extensive disease progression, that her entire left lung is consumed. It has spread throughout much of her body and has grown so fast, that there is nothing left to do. We are shattered, but at peace that after 5 long years of fighting, our Hazel will get her miracle of healing on the other side of eternity. For now, she is very tired and sleep, but when awake, she is enjoying every moment with her family around her, smiling and loving. She doesn’t know exactly what is happening, for we don’t want her to spend her last days in fear, but just joy and love. But we have told her that it is okay to rest, it is okay to be done fighting and it is okay to do what she needs to do.

Please, be praying for us in this time, and if you would like to send your wishes, please do not come to the hospital, but Lea e your comments for us to read when we can.

To honor her, we ask that you make a donation to The St Baldricks Foundation ( http://bit.ly/In-Memory-of-Hazel ) to help the world to beat this beast. Our children deserve better!! Hold your loved ones extra tight today. Haze would just want you to spread the love!

03/24/2018

This sweet sweet girl could definitely use some extra love and prayers.

Last night was awful.

Emmi and I laid down a little after 10. She had a coughing fit for an hour and a half, coughing so violently that she ended up throwing up a lot of mucus.

The rest of the night followed suit. Coughing until she woke up crying. We gave her morphine, Benadryl, Tylenol and Ativan but none of those help a cough and unfortunately they didn't even take the edge off.

The nurse called respiratory in the middle of the night for a breathing treatment because her breathing seemed labored.

Respiratory came back around 5 this morning and decided to hook her up to oxygen. She's breathing too quickly and it's so labored that they're afraid she's going to tire herself out. The worry is that if her heart is beating so quickly that she's breathing that fast then it's going to put a strain on other parts of her body before long.

They also put on the constant oxygen and heart rate monitor so they could track her levels. Her oxygen kept dropping into the 80s even with the oxygen on.

The resident doctor on call decided that Emmi needed another x-ray too to check the progress of the pneumonia and her lungs in general. We headed down to radiology a little before 6 to get that done.

When we got back up to the room respiratory came again for another breathing treatment and to do CPT. While she was giving the breathing treatment the humidifier overflowed, or something, and ending up sending a bunch of water through the cannula and into Emmi's nose. The woman from respiratory changed the tubing and fixed the problem and got the cannula back on Em.

When the doctor on call came by for rounds she decided that Emmi needed to be sent back to the Special Care Unit for closer observation. The pulmonologist will also be coming to see her today instead of waiting until Monday after the steroids have run their course.

Emmi is completely exhausted and miserable and there isn't anything I can do to help.

Please keep praying for her.

https://www.gofundme.com/prayforemmi-medical-bill-help

03/20/2018

Our own Luke can appreciate why this is just so import!! ❤️ Lucas Gyomory

03/19/2018

Friends this young man has been fighting an uphill battle for a long time, I’ve been following his journey and he is such an inspiration. Things are difficult right now and they could all use some prayers and love. Cancer is a rotten beast.

Updates, hmm. Increasingly harder to write. I sit down, and frankly I just stare at the screen. I have so much to say, and so little at the same time.
Marik hasn’t been resting well at all. His anxiety is high, because he needs more oxygen. The problem is that Marik is stubborn. He does things his way, not mine. Sure, he is sick, but he is also 5 foot 10 and built like a wall. I’m not getting him to do anything he doesn’t want to do. I was in his room rubbing his back at 1 this morning. The night before, he was drenched in sweat, the night before that, up at 4:30 am.
We saw his nurse today. BP is up, heart rate is up, there is wheezing in his right lung. She feels like we need to increase visits to twice a week, and I agree.
I sat with Marik today for about 2 hours in his room. He showed me a few things on Minecraft, complained that there wasn’t anything good on Netflix, and looked through until he found a game he just had to have. I made a secret video of him talking, so I will never forget the sound of his voice. His breathing is labored. 24 hours a day. I said, “Man, is it always so hard to breathe?” His reply, “yep.” Y’all, it’s so unfair.
We do everything we can for his anxiety, but ultimately his chest is filling with tumors. He is running out of space for air. The human body is wired to get anxious when your oxygen levels go down. His heart rate is so high during the day, it’s working so hard to pump oxygen. His levels are even lower when he sleeps, because his heart isn’t pumping as rapidly, so his oxygen declines even more.
His nurse said Marik’s diagnosis is like rolling a snowball uphill. It’s stable for a bit, but once you get to the top, and the snowball rolls over, it’s fast, furious, and there is no pushing it back up, no matter how hard you try. Then, she said our snowball just went over the top.

03/17/2018

Love this!