Mission Statement: “To improve the quality of life for children with severe multiple impairments, as well as their families, through physical, emotional, and financial support. Raising awareness for and supporting research of Alexander Disease and other types of Leukodystrophies; for a cure!”
Olivia Kay Borodychuk, lived her beautiful life in Dewitt, Michigan. Olivia was diagnosed with a rare de
generative brain disease called Alexander Disease, a from of Leukodysgtrophy. Because of her battle with this disease, her parents had the desire to start a foundation in her honor to help other children and their families who battle severe multiple impairments on daily basis with support, resources and the tools they need to help their child. Serving the community and beyond, Chad and Lisa's desire is to provide that emotional, physical and financial support to the child where their needs are heavy. Because of their journey with Olivia and taking care of her, they want other children and families to get the help that they need because of the trials that both Chad and Lisa have encountered through their walk with Olivia's illness. As well, it is their duty to bring awareness to this horrible disease that affects about 400 published cases in the world. They want to share about Olivia and show people what it is like to care for a child who is sick. There is currently no know cure for Alexander Disease. God graciously used the life of Olivia to make a difference in the community that surrounded her. Her parents wanted to give back in a way where it truly could help bring comfort and help to a child living with severe multiple impairments. The Olivia Kay Foundation received their official tax exempt status in June 2015 from the IRS.
