08/14/2026
One thing about CF that I don’t think enough people realize is how much harder the body can have to work.
People with cystic fibrosis can have higher energy needs, even at rest. And for someone like Claire, whose pancreas does not produce the digestive enzymes she needs, her body cannot properly digest and absorb nutrients from food without taking enzymes every time she eats.
So while it’s not accurate to say every task takes a certain percentage more energy, it is true that a body with CF can be working harder and using more energy than we can see from the outside.
Just another invisible part of living with cystic fibrosis. 💜
SAVE THE DATE: May 7, 2027!
Our annual golf tournament will be back as we continue fundraising for a cure for CF. Registration opens in October!