Team Luca

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Team Luca Team Luca 🦁❤️
CF warrior | Liver transplant survivor
Raising awareness & funds for a cure
Luca’s 5K Day • May 17
⬇️ Donate / Join Team Luca

Welcome to the official page of Team Luca! MISSION

The mission of Team Luca is to elevate awareness of Cystic Fibrosis and to fund its cure. ABOUT CYSTIC FIBROSIS

Cystic fibrosis (CF) is a life-threatening genetic disease that affects approximately 30,000 children and adults in the United States. CF causes mucus to build up and clog some of the organs in the body, particularly in the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that leads to lung damage. Mucus also can block the digestive tract and pancreas. The mucus stops digestive enzymes from getting to the intestines. The body needs these enzymes to break down food, which provides important nutrients to help us grow and stay healthy. People with cystic fibrosis often need to replace these enzymes with capsules they take with their meals and snacks to help digest the food and get the proper nutrition.

🤍 9/11/2001. After every flight was grounded, only a few were allowed to fly this day. This is the story of the liver th...
09/11/2026

🤍 9/11/2001. After every flight was grounded, only a few were allowed to fly this day. This is the story of the liver that was flown from Nashville to Houston for a six month old baby with hours to live. It was delivered to Texas Children’s, where Luca’s transplant surgeon, Dr. John Goss, received it. 25 years later, we celebrated Dr. Goss‘s 3,000th transplant and met the mother of that young special girl who is alive and well today. 

A newborn died in Nashville overnight on September 10, 2001. His family, in the worst hours of their lives, decided to donate his organs. Only the liver could be used.

Early the next morning a match came back: a 6-month-old girl in Houston named Kareena, dying of liver failure. A charter plane was booked and the recovery surgery at Vanderbilt Children's Hospital was nearly finished. Then the country closed.

Jill Grandas ran Tennessee Donor Services. Her phone rang, and it was her own staff member standing in the operating room. "What are we going to do? No planes are allowed to leave the ground."

There was a liver in a cooler with hours left on it, a baby in Texas who did not have longer, and not one civilian aircraft in America was permitted to move. So Grandas reached for the phone book.

"Believe it or not, 20 years ago in the blue pages, there was a listing for the tower," she said.

Somebody at Nashville International picked up, handed her to a supervisor, and the supervisor's calls reached Senator Bill Frist, a transplant surgeon before he was a politician, who did not need the situation explained to him. The Tennessee Air National Guard was cleared to fly.

They started up a C-130 Hercules, an aircraft built to carry a tank, and put 10 ounces in it.

"We usually take some pretty interesting things in the back of a C-130," co-pilot John Howard said. "And that was probably the lightest payload, next to being empty, that I've ever flown in my life."

Nobody spoke for the first half of the flight. The sky was empty and patrolled by fighters, and the crew understood what could happen to an aircraft that appeared where it should not be. They landed in Houston and handed the cooler over without shutting down the engines.

Dr. John Goss was waiting at Texas Children's Hospital. The transplant went smoothly.

Kareena is 25 now. "All these people who didn't know this little baby, who had no connection with this child, worked together on a day that really tested our nation," she said.

This week, 25 years later, she finally met Jill Grandas in person.

CFF staying on the leading edge of science!  Investing in AI to help find a cure 👇 https://www.cff.org/news/2026-09/7-3-...
09/10/2026

CFF staying on the leading edge of science! Investing in AI to help find a cure 👇


https://www.cff.org/news/2026-09/7-3-million-ride-therapeutics-ai-delivery?fbclid=IwZnRzaAUPr-RwZG9mBWZkaWQWUOJ00Aak0E0NftH5A972yiNbOfVme2V4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR6JnRaU06gZd9VeHKXMgwi05yuG6tiPoj3CZRoHc2Vy4B0xsy44CzRXc6R1Og_aem_yXQDC0OptGxv02O6br2i2A

Ride Therapeutics plans to use its artificial intelligence-powered screening technology to construct and test millions of genetic therapy delivery vehicles and identify the ones that could transport a genetic therapy into the lung cells of people with cystic fibrosis.

Luca has been fighting a lingering cough, and at his pulmonologist appointment this week, his PFTs (pulmonary function t...
09/05/2026

Luca has been fighting a lingering cough, and at his pulmonologist appointment this week, his PFTs (pulmonary function tests) were a little lower than normal.

He fought hard to get his numbers up during the PFT and was quite bothered by the fact that it wasn’t his PR this time. He really does take “Beat CF” to heart.

In moments like this, I know that it’s not a coincidence that we came up with “Luca the Lion” and “Beat CF” as our motto for Team Luca. He has the heart of a lion, and I know he is going to fight with all of his might against this disease and keep living his life to the fullest.

He also started flag football this week, and we are looking forward to watching him do his thing this season. 🏈

Overall, it was a good checkup. His doctor prescribed antibiotics to kick that cough, and Luca will be back to beating CF in no time. ❤️🦁

🏥 This is the man who performed Luca‘s liver transplant. Dr. John Goss recently celebrated his 3,000th liver transplant ...
09/01/2026

🏥 This is the man who performed Luca‘s liver transplant. Dr. John Goss recently celebrated his 3,000th liver transplant - 1,000 of which were pediatric.

🏔️ It’s quite possible no doctor has ever performed that many pediatric liver transplants in the world. The vast majority of hospitals will only do 5 to 6 PER YEAR.

🪽 We learned during Luca’s stay in the ICU that angels walk among us every day. Some of them look like Dr. Goss and his brilliant and compassionate staff.

Thank you Texas Children's ❤️

☀️ Last summer, Luca was still considered a “fresh transplant,” which meant weekly blood draws at TX Children’s, frequen...
08/18/2026

☀️ Last summer, Luca was still considered a “fresh transplant,” which meant weekly blood draws at TX Children’s, frequent doctor visits, lots of medications, and no traveling. We were strictly focused on keeping him healthy.

😎 This summer, we were able to celebrate just how far Luca has come. We traveled to visit our families in FL and CT. He played summer basketball, played outside with Dominic and Annabella and did all the things a 12 year old should do.

🙏 We are so grateful for the memories we were able to make and will never take it for granted.

❤️ So long, summer of ‘26!

🌟12 years ago we started Team Luca to become a part of the solution, a piece of a cure. 🏊 This weekend, three amazing fr...
08/10/2026

🌟12 years ago we started Team Luca to become a part of the solution, a piece of a cure.

🏊 This weekend, three amazing friends - Dave Kennedy, Tucker Williams and Corey McCarragher swam from Alcatraz Island to San Francisco in sub-60 degree water all while raising over $3,000 for the Cystic Fibrosis Foundation.

🤝 They are what we always hoped Team Luca would become - a big group of people dedicated to this fight.

👊 That’s what it’s going to take - A TEAM.

💙💛 We’re blessed with a great one, that’s growing everyday.

Our great friend DeeKay is swimming the Sharkfest Swim, an open water 1.5 mile swim from Alcatraz Island to San Francisc...
08/05/2026

Our great friend DeeKay is swimming the Sharkfest Swim, an open water 1.5 mile swim from Alcatraz Island to San Francisco. 100% of the proceeds raised will benefit the Cystic Fibrosis Foundation . Let’s get behind Dave and Beat CF! Link to donate in comments ❤️🦁👇

🌴What an unforgettable Bushwacker Festival weekend for Team Luca! 💗 Our hearts are overflowing with gratitude.🎗️This pas...
08/04/2026

🌴What an unforgettable Bushwacker Festival weekend for Team Luca!

💗 Our hearts are overflowing with gratitude.

🎗️This past weekend, because of an incredible community and the generosity of so many people, Team Luca raised over $12,000 for the Cystic Fibrosis Foundation!

💪 Once again, we were reminded how powerful a community can be when it comes together for a cause.

🍹🎶The Sandshaker has been part of our family’s story for years, so seeing so many people rally around Team Luca and the Cystic Fibrosis Foundation was incredibly meaningful. Bushwacker Weekend has always been about bringing people together, and this year it brought people together for something that truly matters.

🫶To everyone who bought a raffle ticket, purchased a Whack CF shirt, volunteered, shared our fundraiser, or simply stopped by to learn about Luca’s story…thank you.

✨Because of you, we’re helping fund the research that gives families like ours hope.

💙💛 100% of the proceeds raised will go directly to the Cystic Fibrosis Foundation through Team Luca to help advance research, improve treatments and bring us closer to a cure.

🙏 From our family to yours, thank you for believing in Team Luca and standing beside us in the fight against cystic fibrosis.

We truly couldn’t do this without you.

Together, we will BEAT CF. ❤️🦁

What a weekend! 🐐🏆👏 Congratulations to Luca on being named the Be Someone Sports GOAT Award winner! We’re so proud of th...
08/01/2026

What a weekend! 🐐🏆

👏 Congratulations to Luca on being named the Be Someone Sports GOAT Award winner! We’re so proud of the player he’s becoming—not just because of his talent, but because of his heart, perseverance, and love for the game.

🤝 We’re also excited to welcome Coach Brandon to Team Luca! He’s already become a great friend and is passionate about helping us Beat CF!

❤️ Thank you to everyone who continues to support Team Luca. The best is yet to come!

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Friendswood, TX
77546, 77549

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