10/28/2026
Are you a parent or caregiver of a child diagnosed with Twin Anemia Polycythemia Sequence (TAPS) and hearing loss? We invite you to participate in a research study by completing an online survey. This study aims to gather parental perspectives on hearing loss in children with TAPS to help create valuable resources for both parents and professionals, including informative reference sheets. Additionally, your input will help shape future research questions in this area.