08/10/2025
A victory worth sharingโฆCystic fibrosis isnโt just a lung diseaseโit affects digestion, metabolism, inflammationโฆ really, the whole body. One of the lesser-known challenges is blood sugar instability. Many with CF eventually develop CF-related diabetes (CFRD), and for a while, it looked like we were heading that way with Dean. His glucose levels kept rising, and we were gently being prepared for a visit to an endocrinologist.
But after a long stretch of working to get his liver enzymes in check from the modulator he is on, we felt ready for this glucose challenge. And Dean was just as determined. Heโs been eating more veggies (fortunately he loves broccoli), swapping processed snacks for berries and yogurt, sticking with his apple slices and peanut butter, and (this was huge!) cutting way back on soda. But sometimes that isn't enough so we had to take it a step further. We tried a clean brand of supplements thatโs quietly made a big difference for our whole family, but especially for Dean. No medical claimsโjust sharing whatโs helped support Dean's body. CF puts a lot of stress on the body, and these products have supported him in ways weโre so grateful for. Every marker is now "in the green", our appointments are 3 times a year instead of quarterly and he only needs bloodwork 1x a year instead of quarterly. Little wins, big rewards! I truly believe these tools were placed in our path for a reasonโand if they can bless someone else, Iโm grateful to pass that blessing along.
Weโre still learning, still walking this road one step at a time. Praying and trusting in the Lord to lead usโbut this summer, weโre celebrating a big win. A win that means not another specialist, not another visit, not another layer of worry added to the pile. Just a little more peace, and a whole lot of thankfulness for the grace that got us here.
โThe Lord will guide you always; He will satisfy your needs in a sun-scorched land and will strengthen your frame.โ โ Isaiah 58:11
This is his superhero picture from our clinic last week, where he had an astounding 127% PFT, his highest ever!