National Spasmodic Torticollis Association

09/01/2026

Fountain Valley, CA Dystonia Group Meeting this Saturday! Saturday, September 5, 2026

08/25/2026

Saturday, September 5, 2026 - Fountain Valley, CA Dystonia Support Group Meeting – Lunch Included

We will have an informative presentation from Vima Therapeutics about the Stride Dystonia Study, which explores a new investigational oral medication for adults with isolated dystonia. After the presentation, we’ll have a “care and share” session where everyone can share their experiences and support one another. Plus, Dr. Karen Frei, NSTA Chairperson, will be on hand to answer questions.

Lunch will be provided by Katella Deli in Los Alamitos, featuring delicious sandwiches, pasta salad, and fresh fruit! We’d love for you to join us, so please RSVP by September 1, 2026. You can call NSTA at 657-554-0661 or drop us an email at [email protected] to let us know you’re coming.

Justin and Vi,
NSTA Office

08/13/2026

Orange County, California In-person Support Group Meeting
The National Spasmodic Torticollis Association (NSTA) is excited to invite you to a support group meeting for cervical dystonia! We’ll kick things off with an informative presentation from Vima Therapeutics about the Stride Dystonia Study, which explores a new investigational medication for adults with isolated dystonia.

After the presentation, we’ll have a “care and share” session where everyone can share their experiences and support one another. Plus, Dr. Karen Frei, NSTA Chairperson, will be on hand to answer any questions you might have.

Lunch will be provided by Katella Deli in Los Alamitos, featuring delicious sandwiches, pasta salad, and fresh fruit!

We’d love for you to join us, so please RSVP by September 1, 2026. You can call NSTA at 657-554-0661 or drop us an email at [email protected] to let us know you’re coming. Looking forward to seeing you there!

Saturday, September 5, 2026
10:00 AM to 1:00 PM
Orange Coast Memorial Medical Center
Health and Wellness Pavillion
18035 Brookhurst Street
Fountain Valley, CA 92708

06/03/2026

The 2025 NSTA Symposium was held in Las Vegas, Nevada on April 7th and 8th, 2025. The symposium was held at Palace Station Hotel and Casino located in Las Vegas, Nevada. Attendees had the opportunity to hear presentations from movement disorder specialists and specialists discussing various topics about spasmodic torticollis, which is more commonly referred to as cervical dystonia.

The goal of Tom Seaman is to spread as much education and awareness as possible to help people suffering with any physical and/or emotional health condition.

Tom’s presentation is on "Managing the Stress & Emotions of Dystonia." has just been uploaded to the NSTA YouTube channel. You can view it at:

The 2025 NSTA Symposium was held in Las Vegas, Nevada on April 7th...

06/02/2026

This is a video of the Saturday, May 30, 2026, NSTA Online Information and Support meeting. Ken Price hosted and moderated the meeting. Presentations were made by Luke Kramer, Director of Patient and Community Partnerships and Michael Oldham, MD, MPH, Vice President of Clinical Development at Vima Therapeutics. A Question-and-Answer session followed the presentation.

This is a video of the Saturday, May 30, 2026, NSTA Online Information and Support meeting. Ken Price hosted and moderated the meeting. Presentations were ma...

05/26/2026

Vima Therapeutics is a team of doctors, scientists, and experts and movement disorders. The people at Vima are united by a shared mission to advance a new era in treatments for movement disorder. They are currently conducting a phase two study for the first oral medication for dystonia.

On Saturday, May 30, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Luke Kramer, Director of Patient and Community Partnerships from VIma Therapeutics will discuss Vima, the basics of clinical research, and talk about their current study, its mechanisms, and how people can get involved.

We will have an open-group discussion afterwards and our presenters will be answering questions about the Stride Dystonia clinical research study.

For more information, you can view it online at www.stridedystonia.com or www.vimatx.com

If you are interested in attending, please email us at [email protected] to let us know and we will provide you with the log in information.

There are over 1 million people with dystonia and related movement disorders in the US and over 100,000 people with isolated dystonia.

05/21/2026

On Saturday, May 30, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Luke Kramer, Director of Patient and Community Partnerships from VIma Therapeutics will discuss Vima, the basics of clinical research, and talk about their current study, its mechanisms, and how people can get involved.

We will have an open-group discussion afterwards and our guests from Vima Therapeutics answer questions about the Stride Dystonia clinical research study.

For more information, visit the NSTA website at:
https://www.cdtorticollis.org/fv-group/

05/20/2026

This video was filmed on April 6, 2025 at the Las Vegas symposium providing us with the opportunity to get to know the people in the dystonia community who have focused on helping people living with dystonia. Tom developed a debilitating neurological movement disorder called cervical dystonia that turned his world upside down, altering the course of his life in ways never imagined possible.

Countless people in the dystonia community have had the opportunity to meet with him or hear him talk. For those who have not, this is an opportunity to know more about Tom Seaman. He is a Life Coach, Author, Speaker Living with Cervical Dystonia.
His presentation at the 2025 Symposium will follow this video shortly.

The video was filmed at the 2025 symposium in Las Vegas, NV. Tom developed a debilitating neurological movement disorder called cervical dystonia that turned...

02/28/2026

On Rare Disease Day, we stand with the cervical dystonia community.

Today, the National Spasmodic Torticollis Association (NSTA) recognizes the strength and resilience of individuals and families living with cervical dystonia (spasmodic torticollis).

We are deeply grateful to the researchers and investigators for advancing science toward more treatments — and ultimately, a cure. We also celebrate the dedicated healthcare professionals who provide compassionate, expert care to this community every day.
Rare diseases may be uncommon — but together, our voice is strong.