National Spasmodic Torticollis Association

06/03/2026

The 2025 NSTA Symposium was held in Las Vegas, Nevada on April 7th and 8th, 2025. The symposium was held at Palace Station Hotel and Casino located in Las Vegas, Nevada. Attendees had the opportunity to hear presentations from movement disorder specialists and specialists discussing various topics about spasmodic torticollis, which is more commonly referred to as cervical dystonia.

The goal of Tom Seaman is to spread as much education and awareness as possible to help people suffering with any physical and/or emotional health condition.

Tom’s presentation is on "Managing the Stress & Emotions of Dystonia." has just been uploaded to the NSTA YouTube channel. You can view it at:

The 2025 NSTA Symposium was held in Las Vegas, Nevada on April 7th...

06/02/2026

This is a video of the Saturday, May 30, 2026, NSTA Online Information and Support meeting. Ken Price hosted and moderated the meeting. Presentations were made by Luke Kramer, Director of Patient and Community Partnerships and Michael Oldham, MD, MPH, Vice President of Clinical Development at Vima Therapeutics. A Question-and-Answer session followed the presentation.

This is a video of the Saturday, May 30, 2026, NSTA Online Information and Support meeting. Ken Price hosted and moderated the meeting. Presentations were ma...

05/26/2026

Vima Therapeutics is a team of doctors, scientists, and experts and movement disorders. The people at Vima are united by a shared mission to advance a new era in treatments for movement disorder. They are currently conducting a phase two study for the first oral medication for dystonia.

On Saturday, May 30, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Luke Kramer, Director of Patient and Community Partnerships from VIma Therapeutics will discuss Vima, the basics of clinical research, and talk about their current study, its mechanisms, and how people can get involved.

We will have an open-group discussion afterwards and our presenters will be answering questions about the Stride Dystonia clinical research study.

For more information, you can view it online at www.stridedystonia.com or www.vimatx.com

If you are interested in attending, please email us at [email protected] to let us know and we will provide you with the log in information.

There are over 1 million people with dystonia and related movement disorders in the US and over 100,000 people with isolated dystonia.

05/21/2026

On Saturday, May 30, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Luke Kramer, Director of Patient and Community Partnerships from VIma Therapeutics will discuss Vima, the basics of clinical research, and talk about their current study, its mechanisms, and how people can get involved.

We will have an open-group discussion afterwards and our guests from Vima Therapeutics answer questions about the Stride Dystonia clinical research study.

For more information, visit the NSTA website at:
https://www.cdtorticollis.org/fv-group/

05/20/2026

This video was filmed on April 6, 2025 at the Las Vegas symposium providing us with the opportunity to get to know the people in the dystonia community who have focused on helping people living with dystonia. Tom developed a debilitating neurological movement disorder called cervical dystonia that turned his world upside down, altering the course of his life in ways never imagined possible.

Countless people in the dystonia community have had the opportunity to meet with him or hear him talk. For those who have not, this is an opportunity to know more about Tom Seaman. He is a Life Coach, Author, Speaker Living with Cervical Dystonia.
His presentation at the 2025 Symposium will follow this video shortly.

The video was filmed at the 2025 symposium in Las Vegas, NV. Tom developed a debilitating neurological movement disorder called cervical dystonia that turned...

04/14/2026

On Saturday, April 18, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Board member and NSTA President Ken Price is moderating the meeting. We will have an open group discussion.

If you plan on attending, we ask that you log into the meeting five minutes before we start so we can begin on time. When entering the meeting, your camera and microphone is turned off by default. If you would like to be seen by others during the meeting, please turn your camera on. We ask that you mute your microphone when you are not speaking to reduce background noise during the meeting.

If you would like to attend the meeting or have question about the meeting, please email us at [email protected].
We look forward to seeing you there!

03/23/2026

On Saturday, March 28, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Board member and NSTA President Ken Price is moderating the meeting. We will have an open group discussion. If you plan on attending, we ask that you log into the meeting five minutes before we start so we can begin on time.

If you would like to join, please go to the link below and it will provide you with the information to log in to the meeting that day. If you have questions, please email us at [email protected].
Justin, NSTA

NSTA is inviting you to a scheduled Zoom meeting. Topic: NSTA Online Group Meeting hosted by Ken PriceTime: Mar 28, 2026 10:00 AM Pacific Time (US and Canada) Click here to Join Zoom Meeting Meeting ID: 867 5932 2087Passcode: 078303

03/18/2026

Linda Marie Furiate’s Cervical Dystonia Encouragement Group

Hello to all my Friends with Cervical Dystonia,

This month of March 2026 marks the third anniversary of my encouragement group. I am so appreciative to all of you who have stood beside me and have attended my monthly group meetings. Over the past three years, I am thankful to see so many new friendships blossom as we share our stories and our heart.

Living with cervical dystonia may often feel as though we are observing life from the outside. It is not uncommon for many of us to isolate and isolate ourselves from world we knew before dystonia. It is a comfort to know that my/our encouragement group is a safe space, surrounded by people who truly understand our situation and potential struggles.

The goal and purpose for my group is to offer hope, motivation and encouragement to support others as we seek to ease the physical burden of cervical dystonia.

My next Encouragement group meeting will be on Wednesday, March 18, 2026 from 7:00 – 8:00 pm ET. Please email me at [email protected] for log in information for the meeting or if you have any questions/comments or may need support.

Kindly,
Linda Marie
[email protected]

02/28/2026

On Rare Disease Day, we stand with the cervical dystonia community.

Today, the National Spasmodic Torticollis Association (NSTA) recognizes the strength and resilience of individuals and families living with cervical dystonia (spasmodic torticollis).

We are deeply grateful to the researchers and investigators for advancing science toward more treatments — and ultimately, a cure. We also celebrate the dedicated healthcare professionals who provide compassionate, expert care to this community every day.
Rare diseases may be uncommon — but together, our voice is strong.