National Spasmodic Torticollis Association

04/14/2026

On Saturday, April 18, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Board member and NSTA President Ken Price is moderating the meeting. We will have an open group discussion.

If you plan on attending, we ask that you log into the meeting five minutes before we start so we can begin on time. When entering the meeting, your camera and microphone is turned off by default. If you would like to be seen by others during the meeting, please turn your camera on. We ask that you mute your microphone when you are not speaking to reduce background noise during the meeting.

If you would like to attend the meeting or have question about the meeting, please email us at [email protected].
We look forward to seeing you there!

03/23/2026

On Saturday, March 28, 2026, the NSTA is hosting an online group meeting at 10:00 AM Pacific Time. Board member and NSTA President Ken Price is moderating the meeting. We will have an open group discussion. If you plan on attending, we ask that you log into the meeting five minutes before we start so we can begin on time.

If you would like to join, please go to the link below and it will provide you with the information to log in to the meeting that day. If you have questions, please email us at [email protected].
Justin, NSTA

NSTA is inviting you to a scheduled Zoom meeting. Topic: NSTA Online Group Meeting hosted by Ken PriceTime: Mar 28, 2026 10:00 AM Pacific Time (US and Canada) Click here to Join Zoom Meeting Meeting ID: 867 5932 2087Passcode: 078303

03/18/2026

Linda Marie Furiate’s Cervical Dystonia Encouragement Group

Hello to all my Friends with Cervical Dystonia,

This month of March 2026 marks the third anniversary of my encouragement group. I am so appreciative to all of you who have stood beside me and have attended my monthly group meetings. Over the past three years, I am thankful to see so many new friendships blossom as we share our stories and our heart.

Living with cervical dystonia may often feel as though we are observing life from the outside. It is not uncommon for many of us to isolate and isolate ourselves from world we knew before dystonia. It is a comfort to know that my/our encouragement group is a safe space, surrounded by people who truly understand our situation and potential struggles.

The goal and purpose for my group is to offer hope, motivation and encouragement to support others as we seek to ease the physical burden of cervical dystonia.

My next Encouragement group meeting will be on Wednesday, March 18, 2026 from 7:00 – 8:00 pm ET. Please email me at [email protected] for log in information for the meeting or if you have any questions/comments or may need support.

Kindly,
Linda Marie
[email protected]

02/28/2026

On Rare Disease Day, we stand with the cervical dystonia community.

Today, the National Spasmodic Torticollis Association (NSTA) recognizes the strength and resilience of individuals and families living with cervical dystonia (spasmodic torticollis).

We are deeply grateful to the researchers and investigators for advancing science toward more treatments — and ultimately, a cure. We also celebrate the dedicated healthcare professionals who provide compassionate, expert care to this community every day.
Rare diseases may be uncommon — but together, our voice is strong.

01/29/2026

There is no one better equipped to educate and influence legislators and government officials than someone who lives with dystonia. You can encourage how much money is allocated to medical research year, access to treatments, and other issues that impact people living with dystonia.

The NSTA is a part of a consortium of dystonia organizations that have come together under the Dystonia Advocacy Coalition. Together with the Benign Essential Blepharospasm Research Foundation (BEBRF), Dysphonia International and the Dystonia Medical Research Foundation (DMRF), advocates educate legislators about the needs of the dystonia community. More than ever, we need to make our voices heard.

The Dystonia Advocacy Network (DAN) will be on Capitol Hill Day on Thursday, March 12th in Washington D.C. This is your opportunity to have your voice heard to fund research and support policies that help dystonia patients. The deadline to register is Monday, March 2nd.

If you are interested in becoming an active dystonia advocate, please register using the link below.

https://dystoniafoundation.formstack.com/forms/advocacy_days_registration

11/20/2025

Want to learn more about Daxxify®, the newest botulinum toxin? Read Dr. Han Lee's article in the NSTA Spring/Summer 2025 magazine. To receive a physical copy of the magazine or a PDF version via email, please email [email protected].

09/30/2025

On Saturday, October 4th, at 10:00 a.m. Pacific Time, NSTA will host an Online Group Meeting. Board member Ken Price will host and moderate the meeting. If you are interested in attending, please email us at [email protected] for the login information.

Topic: Weekend Online Group Meeting
Time: Oct 4, 2025 10:00 AM Pacific Time (US and Canada)

07/17/2025

The 2025 NSTA Annual Symposium was held in Las Vegas, Nevada on April 7th and 8th, 2025 (Monday and Tuesday). The symposium was held at Palace Station Hotel and Casino located in the Las Vegas, Nevada. Attendees had the opportunity to hear presentations from movement disorder specialists and specialists discussing various topics about spasmodic torticollis more commonly referred to as cervical dystonia.

Lisa Carlton, PT, DPT, DSc, received her clinical doctorate in physical therapy at Loma Linda University School of Allied Health Professions in 2007. She went on to obtain her Doctorate of Science in Physical Therapy in 2014, with her doctoral dissertation focus on Torticollis. She completed her board certification as a clinical specialist in Neurology in 2019. She has been an adjunct faculty and a guest lecturer at the LLU School of Allied Health Physical Therapy Program, Azusa Pacific University Physical Therapy program, and Chapman University Physical Therapy program.

You can view Dr. Carlton's presentation on "Physical Therapy for Cervical Dystonia." at the following link.

The 2025 NSTA Annual Symposium was held in Las Vegas, Nevada on April 7th and 8th, 2025 (Monday and Tuesday). The symposium was held at Palace Station Hotel...