ALS United Mid-Atlantic

10/13/2026

Chris Nowinski is the Co-Founder and CEO of the Concussion and CTE Foundation. In this ALS United Mid-Atlantic GOALS Podcast, Chris talks about what he's learned about concussions and long-term brain health, as well as how brain donation and science can help us understand and treat ALS.

To watch the full podcast, visit: https://youtu.be/mXhVI9yhoFE?si=gbtkTJCEOwqtrEDl

10/13/2026

🧡Self-Care Tip for Caregivers 🧡

Make sure you keep up with your own health. Start by scheduling a doctor’s appointment that you keep putting off. Ask for help from your family or friends, so you can take care of your health and well-being.

To learn more about caregiver resources and resource groups, visit www.alsmidatlantic.org

10/08/2026

For Kelly Slipakoff and her team, Green Team and Coreen’s Caddies, the ALS United Walk is deeply personal. Kelly has spent more than two decades as a Visiting Volunteer, walking alongside families affected by ALS and honoring the friends she has lost along the way — while continuing to stand in support of those living with ALS today.

Together, the team is turning remembrance into action, raising funds and awareness to support local families and advance the fight for treatments and a cure. 💚

Read the full story of Green Team and Coreen’s Caddies at https://alsmidatlantic.org/green-team-and-coreens-caddies/

10/07/2026

We’re proud to honor Eric and Allie with this year’s Flame of Hope Award in Innovation for their incredible commitment to raising awareness and giving a voice to the ALS community. From Eric’s Flickering Souls: Illuminating ALS art project featuring more than 250 portraits of people living with ALS to their continued advocacy, the Brunners are making an impact far beyond their own story.

To read Eric and Allie’s full story, visit the link in our bio.

10/06/2026

10/06/2026

Colin Quinn, MD, helps lead the Penn Comprehensive ALS Center in Philadelphia, PA. In this video, Dr. Quinn discusses what led him to ALS research, his work in veterans care, advances in understanding of TDP-43, and the value of multidisciplinary care.

To watch the full podcast, visit: https://youtu.be/y4Hzh1x6Lho?si=6PU95YlC3Af0T-Ju

10/06/2026

ALS United Mid-Atlantic offers resource groups for people living with ALS, family members, and friends. All groups are free of charge.

Our October calendar is available now! To find a resource group, visit https://alsmidatlantic.org/navigating-als/resource-groups/

10/05/2026

The 13th Annual Roger Kirk ALS United Golf Outing Hosted by Greg Gross would not be possible without our amazing sponsors. ⛳️

We are so grateful for the support of our sponsors: CNI Sales, Extreme Networks, the Kirk Family, Billy Lake Basketball, Meridian Bank, MobilityWorks, and NewSquare Capital.

09/29/2026

This year, we are deeply grateful to honor Board Chair Emeritus Ellyn C. Phillips with our Visionary Leadership Award at the Annual Celebration.

After losing her husband, Alan, to ALS in 1984, Ellyn turned her personal experience into a lifelong commitment to supporting people living with ALS and their families.

For decades, her vision, compassion, and unwavering dedication have helped shape our organization and build a stronger community of care. Her leadership has left a lasting mark on countless families, and a legacy that will continue for generations to come.

We are so grateful for all Ellyn has given to our ALS community. Please join us in celebrating her incredible legacy on Friday, November 13, at our Annual Celebration. Learn more at www.alsmidatlanticeventscelebration.org/

09/29/2026

Jeremy Shefner, MD, PhD, had decades of experience leading ALS research at the Barrow Neurological Institute. In this GOALS Podcast, he talks about measuring the success of potential therapies, what is needed for successful clinical trials, and early ALS symptoms and diagnosis.

To watch the full podcast, visit: https://youtu.be/Ep1VuZ77JZw?si=MMvsXuPRzhcBSBH6