Melofund

Melofund Finding a cause and cure for melorheostosis My name is Stephanie Papke. I was diagnosed with a rare bone disease called melorheostosis in 2002. Thank you!

I suffer from severe, chronic pain on a daily basis and have lost over 50% of the strength and function in my left arm. Melo affects children most frequently – the majority are diagnosed under the age of 20. I was fortunate enough to have a successful volleyball career at Washington State University from 1993–1997 before feeling the painful effects and limitations of this debilitating disease. Ple

ase join me in finding treatment, a cure, and a cause; it all starts with funding for research. Together we can give hope to all people affected by melorheostosis.

Shirts are in!!
12/05/2019

Shirts are in!!

SAVE THE DATE! Saturday December 7th, Melofund pub crawl 2019 1-6pm in renton, WA.This years theme will be holiday deely...
10/06/2019

SAVE THE DATE! Saturday December 7th, Melofund pub crawl 2019 1-6pm in renton, WA.
This years theme will be holiday deely bobbers (or any kind of head wear)! Be a part of the fun for a good cause!! Message me to reserve a spot and a T-shirt!

12/12/2018

Thank you so much to everyone that supported the melofund pub crawl this year! It was so much fun once again and it was a huge success! We were able to send over $3500 to the melorheostosis association to help them run their conferences and bring patients and families together so they don’t have to fight this disease alone! My friends and family are the best and you continue to amaze me!❤️

Address

29005 Military Road S, Federal Way
Federal Way, WA
98003

Telephone

+12062550304

Website

Alerts

Be the first to know and let us send you an email when Melofund posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Melofund:

Shortcuts

Share

Category