NeuroKids, Inc.

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NeuroKids, a 501(c)3 non-profit organization, makes it possible for children with hydrocephalus and spina bifida to live longer and better lives through innovative treatments, comprehensive training programs, and unwavering support.

Life-saving surgery can change a child’s future. But for many families, getting to the hospital is only part of the jour...
10/12/2026

Life-saving surgery can change a child’s future. But for many families, getting to the hospital is only part of the journey.

In this Health Business article, parents in Kenya share their experiences seeking care for children with hydrocephalus, a condition where fluid builds up in the brain. They describe long journeys, delays finding specialized care, and medical bills, alongside the ongoing costs of transport, supplies, and follow-up visits. Some parents have had to leave their jobs to care for their children.

These stories show why support before and after surgery matters so much.
At NeuroKids, we work with local partners to train and support surgical teams closer to where children live. Families also need timely referrals, affordable care, and continued support when they return home.

Thank you to HealthBusiness Magazine, journalist Samwel Doe Ouma, our partners at BethanyKids.KE , and the families who shared their experiences for bringing attention to these challenges.

Every child deserves the chance to receive life-saving care, and every family deserves support along the way.

Read the full article:
https://healthbusiness.co.ke/10791/beyond-the-operating-room-kenyas-infant-hydrocephalus-insurance-coverage-exposes-a-crushing-care-gap/

When an ultrasound during her fifth month of pregnancy revealed that her unborn child had hydrocephalus and spina bifida, Mama

Sustainable healthcare systems don’t start in the operating room, they start with the dedicated people and systems behin...
10/09/2026

Sustainable healthcare systems don’t start in the operating room, they start with the dedicated people and systems behind the scenes.

Brian, our Systems and Infrastructure Manager, fills a critical role on the healthcare team. From managing digital medical records to supporting offline data tools, Brian helps ensure surgeons and hospitals have everything they need to treat children with hydrocephalus and spina bifida.

“Behind the technology and the data are children who deserve access to treatment and families hoping for a better future.”

Click here to read his story: https://neurokids.org/meet-brian-the-systems-behind-better-care/

Every child with hydrocephalus deserves access to timely, high-quality care. In order do this, we must scale surgical tr...
10/08/2026

Every child with hydrocephalus deserves access to timely, high-quality care. In order do this, we must scale surgical training worldwide.

NeuroKids is thrilled to collaborate with the Surgical Data Science Collective (SDSC). By turning operative video into an AI-assisted training tool, we’re helping local surgeons across Africa and beyond access continuous, expert-level feedback right from their home hospitals.

Joining us at ISPNeurosurgery this week? Come visit the NeuroKids booth to meet the team, discover our latest research, and learn how you can get involved.

Dive into Part 2 of our blog series to see how data science is democratizing surgical knowledge: https://neurokids.org/sdsc-part-2/

We've partnered with the Surgical Data Science Collective (SDSC) because surgery remains underemphasized in global healt...
10/05/2026

We've partnered with the Surgical Data Science Collective (SDSC) because surgery remains underemphasized in global health, and AI offers an opportunity to extend the reach of expert surgical mentorship.

In Uganda, 10,000 infants develop hydrocephalus each year, but there aren't enough trained teams to reach them all.

Through our partnership with SDSC, we’re exploring how AI can support expert surgeons in mentoring more colleagues across borders, helping more children access skilled care close to home.

Read the full story: https://neurokids.org/neurokids-x-sdsc-the-human-cost-of-unequal-access-to-surgery-part-1/

What does it take for a child with hydrocephalus to get care? For families in Kenya, the journey can mean long distances...
10/02/2026

What does it take for a child with hydrocephalus to get care?

For families in Kenya, the journey can mean long distances, delayed referrals, and costs that continue well after surgery.

Thank you to HealthBusiness Magazine, journalist Samwel Doe Ouma, and our partners at BethanyKids.KE for bringing these families’ experiences into focus. Their stories show why strengthening surgical care also means addressing the barriers families face before and after treatment.

When an ultrasound during her fifth month of pregnancy revealed that her unborn child had hydrocephalus and spina bifida, Mama

When Virginia's baby Devine was diagnosed with hydrocephalus at just two months old, she faced unimaginable challenges. ...
10/02/2026

When Virginia's baby Devine was diagnosed with hydrocephalus at just two months old, she faced unimaginable challenges. Her husband abandoned the family because of the diagnosis, but Virginia refused to give up on her son.

She traveled to University Teaching Hospital in Lusaka, Zambia where she found something she hadn't expected: a community of mothers facing the same journey, and a team of doctors who treated her with compassion and respect.

On November 25, 2024, Dr. Kabelele Sipalo, a NeuroKids-trained surgeon, performed critical surgery to treat Devine’s hydrocephalus.

Today, Devine is a healthy, active little boy meeting milestones. Virginia is healing too, building a new life that is full of hope.

Read Devine and Virginia's full story here: https://neurokids.org/devines-journey-to-healing/

This is why access to care matters.

Exciting News! Our Team is Heading to Cairo! 🇪🇬We're thrilled to announce that NeuroKids will be attending the 52nd Annu...
09/30/2026

Exciting News! Our Team is Heading to Cairo! 🇪🇬

We're thrilled to announce that NeuroKids will be attending the 52nd Annual Meeting of the ISPNeurosurgery (ISPN) in Cairo, Egypt, from October 7–11, 2026!

This conference gathers pediatric neurosurgeons and innovators from around the world, and we couldn't be more excited to be part of it. Why are we going? Because our mission is to ensure that every child, no matter where they're born, has access to life-saving brain and spine surgery.

At ISPN, we'll be connecting with surgeons, researchers, and partners who share our vision of a world where no child dies from a treatable neurosurgical condition.

If you or anyone you know will be attending ISPN, please share this post and encourage them to stop by our booth! We'd love to connect and explore how we can work together to advance pediatric neurosurgery.

09/29/2026

One child dies every three minutes from untreated hydrocephalus. The tragedy is not that treatment doesn't exist, it's that most children still cannot reach it.

During UNGA, we came together around a clear call to action: put surgery on the global public health agenda, invest in local surgical teams, and build health systems that can reach families in time.

A single surgery can save one child. A locally led system can keep saving children.

Grateful to our partners for their leadership in this movement, including Watsi, The G4 Alliance, Operation Smile, Kafika House, MiracleFeet, East Central and Southern Africa Health Community - ECSA HC, and The Global Surgery Foundation.

This critical work will take all of us.

Dr. Daniel Donoho, founder of the Surgical Data Science Collective recently spoke to the Guardian on an approach to AI t...
09/28/2026

Dr. Daniel Donoho, founder of the Surgical Data Science Collective recently spoke to the Guardian on an approach to AI that strengthens, rather than replaces, human expertise in healthcare.

Together, we're exploring how surgical video combined with AI-supported analysis and expert mentorship can support surgeons across distance, bringing specialized knowledge to more patients who need it.

Read more:

Plus: NHS anti-Semitism; pensioner poverty; AI in healthcare; Monty Don’s wisdom; Navy staff shortage; the power of letters; and car snooker

Last week, 35 passionate people gathered to learn about NeuroKids' mission, and hear stories that underscored why this w...
09/25/2026

Last week, 35 passionate people gathered to learn about NeuroKids' mission, and hear stories that underscored why this work matters so deeply.

We heard from the Johnson family who shared what it's like to navigate a hydrocephalus diagnosis, board member Dr. Jacob Lepard showed us the global reality of a lack of access to neurosurgical care, and long-time supporter Kurt Ling shared about how giving back goes far beyond one patient or family.

Every child deserves access to life-saving neurosurgical care, no matter where they're born. And together, we're making that possible.

Thank you to everyone who joined us in Atlanta. Your presence, your questions, and your support are critical.

Together, we’re making sure that every child has access to healthcare close to home.

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10169 Bessmer Lane
Fairfax, VA
22032

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