Lysosomal and Rare Disorders Research and Treatment Center - LDRTC

Lysosomal and Rare Disorders Research and Treatment Center - LDRTC Non-profit 501(c)(3) organization founded in 2013 by
Dr. Ozlem Goker-Alpan.

Registration is still OPEN for the LDRTC Fabry Patient Workshop!Join patients, families and experts for a day of learnin...
06/12/2026

Registration is still OPEN for the LDRTC Fabry Patient Workshop!

Join patients, families and experts for a day of learning, connection and support.

Reserve your spot today: rare-disorders-education.com/

At LDRTC, supporting you throughout your journey is our first priority.
06/05/2026

At LDRTC, supporting you throughout your journey is our first priority.

The LDRTC team is currently attending the 2026 International MPS Symposium in Florence, Italy.Meet Dr. Ozlem Goker-Alpan...
06/05/2026

The LDRTC team is currently attending the 2026 International MPS Symposium in Florence, Italy.

Meet Dr. Ozlem Goker-Alpan at poster #51 to learn more about our latest work.

Meet Dr. Ozlem Goker-Alpan and LDRTC team at the 2026 International MPS Symposium in Florence, Italy.We are pleased to s...
05/29/2026

Meet Dr. Ozlem Goker-Alpan and LDRTC team at the 2026 International MPS Symposium in Florence, Italy.

We are pleased to share that Dr. Goker-Alpan’s poster, #51, will be presented in the session: Emerging Therapies and Treatment Innovations.

We’re excited to welcome Fabry patients, caregivers, and families to the LDRTC Fabry Patient Workshop: “Same Gene, Diffe...
05/22/2026

We’re excited to welcome Fabry patients, caregivers, and families to the LDRTC Fabry Patient Workshop: “Same Gene, Different Journeys: Fabry Disease in Men, Women, and Families.”

Registration is now open:
rare-disorders-education.com

05/20/2026

On the Clinical Trials Day we honors the patients, clinical research professionals, and scientific progress advancing healthcare around the world. Today, we recognize those at the center of every study—patients who place their trust in research, families who carry hope forward, and future generations who will benefit from better treatments and brighter outcomes.

April is Fabry Awareness Month. As April comes to a close, people are still living with Fabry disease every day. Togethe...
05/08/2026

April is Fabry Awareness Month.
As April comes to a close, people are still living with Fabry disease every day. Together, we stay committed to raising awareness, advancing research, and strengthening support for patients and our community.

Save the date: June 27, 2026
Fabry Patient workshop: “Same Gene, Different Journeys: Fabry Disease in Men, Women, and Families.”
Hosted by: LDRTC
Location: Reston, Virginia

Tay-Sachs disease is a rare, inherited genetic disorder that affects the nervous system.Learn more about Tay-Sachs disea...
05/01/2026

Tay-Sachs disease is a rare, inherited genetic disorder that affects the nervous system.
Learn more about Tay-Sachs disease and connect with the NTSAD community at the Annual Family Conference.
Date: May 1st – May 3rd | Location: Hyatt Regency,1800 Presidents St. Reston, Virginia 20190

We started the day with Stacy Kallish, DO, University of Pennsylvania“Care transition is the shift from pediatric-led ca...
04/25/2026

We started the day with Stacy Kallish, DO, University of Pennsylvania

“Care transition is the shift from pediatric-led care to adult, self-directed care.”

Growing with Gaucher: stepping into adult careFor teens and young adults with Gaucher disease (GD1 and GD3) and their fa...
04/24/2026

Growing with Gaucher: stepping into adult care
For teens and young adults with Gaucher disease (GD1 and GD3) and their families
Big step: transitioning to adult care. You don’t have to do it alone.
https://www.rare-disorders-education.com/

Address

3702 Pender Drive, Suite 170
Fairfax, VA
22030

Opening Hours

Monday 8:30am - 5pm
Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm

Telephone

+17032616220

Website

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