Lysosomal and Rare Disorders Research and Treatment Center - LDRTC

08/11/2026

We’re excited to announce that our abstract has been accepted for an oral presentation by Dr. Ozlem Goker-Alpan at the 2026 Annual Symposium of the Society for the Study of Inborn Errors of Metabolism (SSIEM), taking place in Helsinki, Finland, August 25–28, 2026.

Abstract details

Title: An AI-Driven Multilayer Model of Lung Involvement in Neuronopathic Gaucher Disease (nGD) and Management Strategies

Presentation Number: O-077

08/07/2026

Exciting news — abstract submissions are now open for GRIDS Symposium 2026!
Share your research, spark new conversations, and connect with colleagues advancing care and discovery in lysosomal disorders.

Join us in Melbourne, Florida, October 18–19, 2026, and submit your work for consideration as a platform or poster presentation.

Don’t miss the deadline: September 30, 2026.

https://lnkd.in/evJ6DZJw

This link will take you to a page that’s not on LinkedIn

08/01/2026

The LDRTC team at the National MPS Society: the 40th Annual Family & Scientific Conference in downtown Columbus!

07/29/2026

We are excited to celebrate a wonderful milestone with the National MPS Society: the 40th Annual Family & Scientific Conference, taking place in downtown Columbus, Ohio on July 31 - August 2, 2026.
The LDRTC team is grateful to be part of this inspiring gathering of families, researchers, clinicians, and advocates coming together to connect, learn, and celebrate progress for the MPS community.
For More Information: https://mpssociety.org/en/eventcalendar/mps40/

07/11/2026

"You are not alone "
LDRTC team is supporting and having fun at the NNPDF Family Support and Medical Conference in Orlando, FL

07/06/2026

We are pleased to be in Orlando with the Niemann-Pick disease community, connecting with families, advocates, researchers, and care partners.

We look forward to learning from one another and continuing to support meaningful progress together.





https://nnpdf.org/conference/

07/01/2026

Thank you to everyone who joined our Fabry Patient Meeting, “Same Gene, Different Journeys: Fabry Disease in Men, Women, and Families,” in Reston, VA on June 27th, 2026, The event brought together patients, families, advocates, and clinical experts for education, shared experiences, and meaningful discussion about the different ways Fabry disease affects individuals and families. We are grateful to our speakers, panelists, patient representatives, advocacy partners, and sponsors for helping make this program possible.

06/27/2026

The room is full and the conversations are just getting started! 💙
We're excited to kick off the LDRTC Patient & Family Meeting, bringing together patients, families, and advocates to learn, connect, and support one another.

06/26/2026

Proud to represent LDRTC at the GCA On The Hill event in Washington, D.C. Advocating, connecting, and helping bring awareness to the communities we serve. 🇺🇸

06/12/2026

Registration is still OPEN for the LDRTC Fabry Patient Workshop!

Join patients, families and experts for a day of learning, connection and support.

Reserve your spot today: rare-disorders-education.com/