Cystic Fibrosis Association of Erie County

01/15/2024

https://cysticfibrosisnewstoday.com/columns/must-we-always-focus-intently-cf-life-expectancy/?utm_source=CF&utm_campaign=6c9e99e4e7-CF_ENL_3.0_US&utm_medium=email&utm_term=0_b075749015-6c9e99e4e7-73929097

With modern advancements in CF treatment, it's time to change our discussions about CF life expectancy, writes columnist Jennifer Bleecher.

08/08/2023

Please consider supporting our organization during Erie Gives Day!

I’m ready to support Cystic Fibrosis Association of Erie County on August 8, 2023 during Erie Gives. Learn more about Cystic Fibrosis Association of Erie County and all the other nonprofits participating in Erie Gives.

07/31/2023

https://cysticfibrosisnewstoday.com/news/awareness-campaign-improve-diagnosis-after-newborn-screening/?utm_source=CF&utm_campaign=02ea82272f-CF_ENL_3.0_US&utm_medium=email&utm_term=0_b075749015-02ea82272f-73929097

A Chicago hospital is launching an awareness campaign to improve newborn screening, especially in non-white infants.

04/21/2023

https://cysticfibrosisnewstoday.com/columns/managing-seasonal-allergies-spring-cystic-fibrosis/?utm_source=CF&utm_campaign=aa4f059294-CF_ENL_3.0_US&utm_medium=email&utm_term=0_b075749015-aa4f059294-73929097&cn-reloaded=1

While spring brings hope to many, it also brings challenging seasonal allergies for columnist Kristin Entler, who has CF.

03/09/2023

https://cysticfibrosisnewstoday.com/news/trikafta-boosts-production-immature-cftr-protein-study/

Trikafta increased the production of the faulty CFTR protein in cystic fibrosis patients, but it remained in an immature state, a study says.

03/03/2023

Read below to see what we cover for our patients! Reimbursements are always paid directly to them.

1. Reimbursement relief for medical insurance deductibles.
2. The copay for CF prescriptions.
3. The copay of CF medical appointments and hospitalization.
4. Evidence of treatment, at an eligible CF treatment center, is reimbursable at $250 per round-trip,
5. The CFA provides cash assistance of $599 per year, on a quarterly for incidental CF-related needs not coverable through medical insurance.
6. Additional funds are available for CF-related expenses through the "special request" relief program.
7. Available benefits to a caregiver with the hospitalization of a CF patient are:
The caregiver may submit original meal receipts for $50 per day up to 14 days.
A caregiver who wishes to stay with the patient may submit reimbursement for a hotel room up to 14 days per hospital stay.

02/27/2023

https://cysticfibrosisnewstoday.com/news/cdx-7108-shows-promise-epi-common-symptom-phase-1-trial/?utm_source=CF&utm_campaign=75f8eacf24-CF_ENL_3.0_US&utm_medium=email&utm_term=0_b075749015-75f8eacf24-73929097

CDX-7108, an experimental treatment for exocrine pancreatic insufficiency, may safely boost fat absorption in CF, according to trial data.

02/17/2023

https://cysticfibrosisnewstoday.com/columns/health-journeys-nfl-inspired-me/

Columnist William Ryan shares how, as a teenager, football helped him find the courage to keep going in the face of CF-related diabetes.

02/03/2023

https://www.verywellhealth.com/cystic-fibrosis-exercise-5324517

Exercise can offer many benefits to people with cystic fibrosis. Learn more about potential benefits, activities to avoid, and general tips

10/11/2022

If anyone knows of anyone that has been newly diagnosed with CF please be sure to share our resource page with them.

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