Joshua's Future Of Promises

10/10/2026

Joshua had an amazing time at Rutgers University yesterday, showcasing the exciting world of power wheelchair hockey! 🏒

Along with some of his Philadelphia PowerPlay teammates, Joshua participated in a live demo and mini hockey game alongside a Volt Hockey athlete and members of the audience —giving everyone a chance to experience the fun and excitement of adaptive sports firsthand!

Before his own demo, Joshua watched teams play adaptive soccer and another form of floor hockey.

The expo was hosted by Rutgers’ disability assistance staff and its partners to raise awareness about the importance of adaptive sports. It also served as an opportunity for Rutgers to explore opportunities to establish their own adaptive sports teams.

Events like these help highlight the power of inclusion, accessibility, and ensuring that everyone has the opportunity to experience the joy of sports!

09/29/2026

Last call for our Keystone Candle Fundraiser orders! 🕯️

All order forms must be dropped off/post marked to Buss Paints BY OCTOBER 1st!

Didn’t complete yours yet? Download our order form & share it with your friends! 💚💙

https://drive.google.com/file/d/1Z7kUx0losQbllc0f3VVoO2rGQtEYFtRM/view?usp=sharing

09/24/2026

Less than 1️⃣ week left of our Keystone Candle Fundraiser! 🕯️

Tell your friends! Family! Coworkers!

So many scents to enjoy! & Just in time for the holidays! 🎃🎄🎁

⚠️ Order forms must be dropped off and/or have a postage date BY OCTOBER 1st! ⚠️

09/10/2026

Just a reminder that our Keystone Candle Fundraiser is happening ALL MONTH LONG!

Download our order form, share with your friends & family, and submit your form by October 1st!!!

Make your house smell great while also supporting a great cause! 😌

09/01/2026

Our annual Keystone Candle fundraiser is back! 🕯️🍂

It's officially candle season, and we're excited to kick off our annual candle fundraiser with our wonderful friends at Keystone Candle Company!

Throughout the entire month of September, you can purchase beautifully handcrafted candles while supporting Joshua's Future Of Promises and our mission to fund research for FOP.

To order:
📝 Complete an order form (linked at the bottom for you to download & print).
💲 Make checks payable to "Joshua's FOP"
📍 Mail or drop off your payment and order form to Buss Paints in Emmaus BEFORE OCTOBER 1ST!

We are so grateful to Keystone Candle Company for partnering with us year after year, and to each of you for your continued generosity and support. Every order helps move our mission forward, and we couldn't do it without this amazing community.

Thank you for helping us light the way toward a cure. 💚🕯️💙

Questions? Send us a message or call 610-349-8479 📞

https://drive.google.com/file/d/1Z7kUx0losQbllc0f3VVoO2rGQtEYFtRM/view?usp=sharing

08/20/2026

The IFOPA is pleased to share breaking news-approval of Regeneron's drug in the US! Thanks to all who took part in the trial! 💙💚

💡 Do you know what Pasatru™ is?
It is the brand name for Regeneron's drug garetosmab, which has been approved today in the 🇺🇸 United States to treat FOP.

Pasatru™ (garetosmab) is only the second drug approved for FOP in the U.S., and the first shown to have an impact on both bone growth and flare-ups.

As we announce this decision, we are deeply grateful to people living with FOP from around the world who participated in two pivotal trials of garetsomab: LUMINA-1 Phase 2 and OPTIMA Phase 3 🙌

We also want to thank Regeneron and its employees for their long-standing commitment and dedication to the FOP community. This drug was invented by scientists at Regeneron who were looking for ways to treat FOP by blocking heterotopic bone growth 👏

📌 Learn more and read Regeneron’s press release: ifopa.org/garetosmab-fda-approval

Congratulations to the FOP community on this very special day! 💚💙

06/27/2026

What an AWESOME night at the Luke Bryan concert! 🎶🎤🎸

Josh had lots of fun and even ran into (& got a picture with) one of the openers, Shane Profitt. 🤠

06/25/2026

First of many concerts this year for Joshua! 🎶🎤🎸

Luke Bryan @ PPL Center in Allentown 🤠

06/03/2026

Buy Pizza, Raise Dough! 🍕💸

Don't forget to use our code when you purchase Papa John's pizza!

Use "JFOP" to receive a discount AND support our cause! Fundraising never tasted so delicious! 😋

*Only at select locations*

05/12/2026

This is exciting news for the FOP community! 💙💚

Mirum Pharmaceuticals announced that it has acquired the rights to zilurgisertib, a drug currently being studied as a possible treatment for FOP in the PROGRESS Phase 2 trial.

Even more encouraging, results from Part 1 of the trial (patients ages 12+) have been submitted to the FDA and granted Priority Review (meaning the review process will move faster than normal). The FDA is expected to make a decision by September 26, 2026.

The Scoble family is beyond grateful for your support for the past 19 years. A large portion of the funds donated to Joshua’s Future Of Promises have helped us reach this research milestone. Your donations are making a difference. Thank you to everyone who has supported our cause. 💙💚

For more information, visit ifopa.org.

We’re expanding our commitment to the rare disease community.

Mirum has in-licensed exclusive worldwide rights to zilurgisertib, an investigational oral therapy in development for fibrodysplasia ossificans progressiva (FOP)—an ultra-rare genetic disease, from Incyte.

The FDA has accepted the NDA for zilurgisertib and granted Priority Review, with a PDUFA date of September 26, 2026.

This moment reflects years of progress driven by the FOP community, and we’re honored to add our voice to that foundation.

For patients living with FOP and their families, new treatment options cannot come soon enough. We’re committed to working with urgency to bring this potential therapy forward.