06/22/2025
Face book asked what’s on my mind 🙂
First many of you have wondered where I have been as I have not been on here much lately or in many of the groups I belong to … I miss catching up with many of you .. read on and hopefully that will help explain
There are many things but tonight one is at the top of the list and that is my mom who I love and care for deeply. She is a beautiful wonderful caring soul who helps so many people and would give you anything if she knew it would help you. She loves people and loves helping and caring for them regardless of any label stereotype economic position there in etc she just loves them..,
For the last four or so months mom has been battling seizures. So on top of AFIB and battling leukemia ( CLL) for 16 years we now have this.
We have been to so many doctors and yet no answers. MY MOM IS A FIGHTER but this has been tough and wearing some days the seizures last over an hour and she may have 3-4 a day and it’s a rare day that she does not have one..
AND SO
After many test and about 15 days in the hospital they have determined she has a rather rate condition called FND or functionalneurological disorder. The best way to understand is to read here
https://neurosymptoms.org/en/about/
Click the three lines at the top of left of the page to learn more or use our good friend google .. but google does not have it all correct lol
We are scheduled to see , and this is a God miracle a leading neuro psychiatrist who is on a international team researching FND in September. Mom saw him in the hospital at the request of her neurological dr who is a leading specialist in epilipsy and seizures and is good friends with the above neuro psychatrist and he requested that his friend see mom in the hospital and take her on as a patient…. This is just a huge wow ! Something only God could put together
She is still having seizures almost daily often more than once. Which is very draining tiring and frustrating. On good days she has been able to plant some flowers and get out with me. Unfortunately with FND there is no medication that helps or can stop or slow down the seizures.
I dont really want to say much about me rigjt now as I am trying to stay mom focused. Quickly I am still not working, still in therapy, and will likely be applying for disability as funds are getting depleted all due to my injuries in the car accidents but the plus side is I am able to be with here with mom and help and be a full time caregiver. My sister Deb and brother Jon help out as their schedules allow and sister Rebekah helps as she can
From Montana …
Mom has a tough road ahead … My heart at times like tonight really hurts for her but also is very proud and thankful that she has not given up …, that is no easy choice.
Your prayers positive thoughts holding her in the light all would be appreciated.
Thank you in advance.
If you would like to send mom a card send me a private message and I’ll get you our address.
Once again thank you for your care support prayers and for reading this far! Huge hugs to you all from mom and me!
Selah and peace!
I started this site in 2009 for people with functional neurological disorders and symptoms. But I realise that readers need to know where this information comes from.