Above & Beyond Rare International Foundation

Above & Beyond Rare International Foundation A positively based social network for people with rare diseases and those who love them (in any sense

A positively based & supportive community for people with rare diseases and their community. Everyone who cares about people with rare diseases is welcome. It has been well documented that positivity is effective in healing, and our aim is to spread positivity as far & wide as possible! We aim to make a real, tangible difference to the international rare disease community, and to spread the word t

hat rare diseases are more common than the name implies. With many people helping a little bit each, we can reach far & wide! Love, light, and positivity are contagious- let's spread them!!

03/01/2026
Happy Rare Disease Day!!
02/28/2026

Happy Rare Disease Day!!

The National Organization for Rare Disorders (NORD) is the official U.S. Sponsor of Rare Disease Day.

Tomorrow is Rare Disease Day. What a truly thoughtful statement from the Surgeon General. It made this rare disease pati...
02/28/2026

Tomorrow is Rare Disease Day. What a truly thoughtful statement from the Surgeon General. It made this rare disease patient feel seen. 😎

07/23/2025

Alpha-gal syndrome affects an estimated 500,000 individuals in the U.S. but remains significantly underrecognized and underdiagnosed.

Learn about the cardiovascular implications of Alpha-Gal Syndrome, a tick-borne allergic condition in : https://bit.ly/4nYNi3Z

02/12/2025

6000+ conditions. 🏥
300 Million people. 🗺️
One community. 🫂

Through raising awareness, we can bring attention to the research, care and effort needed to support those living with rare diseases.

Our infographics contain more facts like this that can help to educate people about rare diseases.

Find our Infographics on our website through the following link: https://www.rarediseaseday.org/downloads/

Address

Ellicott City, MD
21042

Telephone

(410) 599-3221

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