Greater Florida Chapter - Cure SMA

07/08/2026

Mark Your Calendar: Cure SMA Orlando Summit of Strength Saturday, September 26

Join us for a morning of learning, connection, and community. The Summit of Strength is a free program featuring national and local experts who will share the latest updates on SMA research initiatives and clinical trials, as well as practical insights on valuable topics like physical therapy, mental health, and much more.

Whether you’re a parent, a caregiver, or an adult living with SMA, we hope you will leave feeling informed and supported!

We look forward to seeing you in Orlando!

Registration Page: https://summit-curesma.donordrive.com/OrlandoSummit

04/06/2026

More treatment progress!

Scholar Rock has resubmitted its Biologics License Application (BLA) to the U.S. Food and Drug Administration for apitegromab, an investigational therapy for spinal muscular atrophy.

Scholar Rock anticipates FDA acceptance of the BLA within 30 days of resubmission and a review period of up to six months from the date of resubmission.

Cure SMA will continue to monitor progress and share updates with the community.

Click the link to read the full update: https://www.curesma.org/scholar-rock-resubmits-biologics-license-application-bla-for-apitegromab-to-the-fda/

03/30/2026

Incredible news for the SMA Community!

Biogen today announced that it has received approval from the U.S. Food and Drug Administration (FDA) for the High Dose regimen of SPINRAZA to treat people living with SMA. With broad label approval for all those living with SMA, this is an excellent result for the SMA community.

This FDA approval marks another important step forward in the ongoing effort to treat and manage SMA. The High Dose regimen of SPINRAZA has the potential to provide additional benefit for those currently receiving treatment, offering new possibilities for improved outcomes and quality of life. Cure SMA is committed to working closely with Biogen, healthcare providers, and the SMA community to support timely education and access to this new dosing option, in alignment with its approved use.

To learn more, please visit: https://www.curesma.org/biogen-receives-fda-approval-of-high-dose-spinraza-for-the-treatment-of-sma/

12/02/2025

Today is ! We’re still accepting donations at https://walk-curesma.donordrive.com/GreaterFlorida if you are able to give. Thank you for supporting our chapter’s fundraising efforts and for your continued support!

11/26/2025

This Thanksgiving, we’re grateful for YOU. 💜🧡

These snapshots from the 2025 Greater Florida Walk-N-Roll capture the spirit, joy, and community we share. Thank you for being part of it!

A special thank you to C. Hall Photography for capturing these beautiful moments.

View the full gallery by China Hall Photography here: https://challphotography.zenfolio.com/p196820658/h47a8f942