Addison Jo Blair Foundation

02/03/2026

This is great news…🎗️

‼ JUST IN: The House has PASSED the shutdown-ending spending package that INCLUDES the Mikaela Naylon Give Kids a Chance Act and the Accelerating Kids' Access to Care Act!

These bills represent the most comprehensive childhood cancer legislation in more than a decade, a moment that our community has been working toward for years. It also includes provisions from the Innovation in Pediatric Drugs Act, which gives FDA the authority to penalize drug companies that do not fulfill their pediatric study requirements -- a long-standing priority of Children's Cancer Cause.

The package provides slight increases in funding for the National Institutes of Health and its National Cancer Institute, including full funding for the Childhood Cancer Data Initiative and Childhood Cancer STAR Act. ⭐

The package now heads to the president's desk to be signed into law. ✍️

Thank YOU for making this moment possible. Because thousands of advocates like you spoke up, kids with cancer have a brighter future today.

01/28/2026

Appreciate Norton Children’s asking for input from surrounding communities for the new hospital campus they are building. They came to Elizabethtown a few weeks ago to get input and Wes and I were able to attend. 💙

12/25/2025

Merry Christmas from our family to yours! Thank you for your continued support over the years. We hope you all have a wonderful holiday with your family and friends.

12/22/2025

11/28/2025

Happy Thanksgiving! This is our 15th year without having Addison at our table but we know she was shining down on us today as we gathered with family. 🧡 Hugs and prayers to those who also had an empty seat at their table today. It never is easy and know you are not alone.

Happy Thanksgiving from the Rylan Strong Network.

Today we gather with gratitude — for family, for community, and for moments of peace in a busy world.
But today we also honor the families who sit down at a table marked by an empty seat.

A seat where a child should be laughing, eating, coloring, or simply being held.
A seat that reminds us that pediatric cancer does not pause for holidays, traditions, or family gatherings.
A seat that carries both memory and immeasurable love.

To the families still fighting — we see your strength.
To the families missing their child — we carry their light with you.
To the children no longer here — we speak their names, honor their stories, and keep their legacy alive.

May this season bring comfort, connection, and hope.
May we always remember that no family walks this journey alone.

In honor of the empty seat.
In honor of the children.
In honor of love that never fades.

11/28/2025

Happy Thanksgiving! This is our 15th year without having Addison at our table but we know she was shining down on us today as we gathered with family. 🧡 We hope everyone enjoyed their day with family and friends.

Happy Thanksgiving from the Rylan Strong Network.

Today we gather with gratitude — for family, for community, and for moments of peace in a busy world.
But today we also honor the families who sit down at a table marked by an empty seat.

A seat where a child should be laughing, eating, coloring, or simply being held.
A seat that reminds us that pediatric cancer does not pause for holidays, traditions, or family gatherings.
A seat that carries both memory and immeasurable love.

To the families still fighting — we see your strength.
To the families missing their child — we carry their light with you.
To the children no longer here — we speak their names, honor their stories, and keep their legacy alive.

May this season bring comfort, connection, and hope.
May we always remember that no family walks this journey alone.

In honor of the empty seat.
In honor of the children.
In honor of love that never fades.

10/30/2025

Please keep Abby’s family in your prayers.

Dear squad,

Our sweet warrior Abigail has gone home. She stepped into heaven today, Monday, October 27, with her loved ones close by. She fought bravely and ferociously for two years, but now she is completely healed and pain free. We are forever grateful for this community that rallied behind us in this fight. The love and support you all have showered over her, and all of us, is truly treasured by our family.

Arrangements will be shared once finalized. Thank you💛🎗️

10/04/2025

Thank you John Hardin High School for your continued support of Addison’s foundation. When speaking to Mr. Wells, principal of JHHS, he shared with us that the students initiate this fundraiser each year. He said they come to him and ask to do it year after year. This truly warms our hearts and speaks volumes for the kids in our community. Wes and I love being invited to this event and seeing how excited and proud the students are for their contribution to the fight against childhood cancer. JHHS you all are amazing and we truly appreciate your support! 🎗️❤️🎗️

The most important part of the annual JHHS Powder Puff game is our school-wide fundraising for the Addison Jo Blair Foundation. The foundation raises awareness for pediatric cancer and allocates funds that directly benefit children undergoing cancer treatment at Norton Children’s Hospital. All proceeds from hat day, concessions, and participation fees go to the foundation. Thank you, Mr. And Mrs. Blair, for joining us today, thank you Tender Touch for donating all of the concession items to be sold, and thank you JHHS Student Council for all of the planning that goes into making this successful.

10/01/2025

09/30/2025

This is the type of cancer Addison had. It’s an absolute beast! It’s exciting that there may be more options coming to treat this monster.

Neuroblastoma is one of the toughest childhood cancers to treat, especially in high-risk cases. � Thanks to St. Baldrick’s support, Dr. William Weiss and his team developed a new lab model that shows how the immune system interacts with these tumors.

Their research revealed that an immunotherapy drug (anti–PD-L1) not only slowed tumor growth, but also cleared out harmful immune cells and allowed the body’s T-cells to fight back.

This breakthrough could lead to new treatment strategies that make high-risk neuroblastoma more vulnerable—and bring hope to kids and families facing this aggressive disease. �

Like and share this to raise awareness for kids facing high-risk neuroblastoma. �