Support Emily - ATRT Brain Cancer Awareness

04/21/2026

Meet Sawyer ❤️ 15 | blind | singer Uniting the world, one song at a time 💌 [email protected] Managed by mom

09/01/2015

Emily's first day as a 2nd grader!! ♡

08/18/2015

We havent posted in a while so heres an update:
Emily turned 8 in April of this year. She continues to get her 6 month mri's. Her last one was this past June and shes still doing well. She is continuing her pt, ot and speech therapies and has come along way! She will begin school as a 2nd grader in just a few weeks and is very excited. She gets to be on the second floor this year with a big girl locker :) i will post pics soon of the first day of school. ♡

02/05/2015

In an effort to find a donor for a critically ill BBCH patient, there will be a bone marrow screening at Maine Medical Center's Impressions Cafe Monday, February 9, 7am-6pm. The objective is to find a bone marrow match for a girl currently receiving care at The Barbara Bush Children's Hospital who is in critical need of a transplant. Screening requires a simple mouth swab with a q-tip. Contact Matt Parks [email protected] for more information.

In 2008 6-year-old Hayley Desjardins had her life turned upside down when she was diagnosed with aplastic anemia. At an age where most kids are dreaming of the extraordinary, Hayley simply dreamed of being normal and living a life that didn't revolve around blood transfusions and hospital visits. When her treatment was deemed a success in 2009 the Desjardins family thought their prayers had been answered and their fears left behind, but in October their hopes came crashing back... down: Hayley's aplastic anemia was back and her time was running out.

Due to the severe nature of her relapse Hayley's doctors have decided that the best option will be to receive a bone marrow transplant. Unable to find her ""perfect match"" Hayley is now in a desperate race against time. Please share Hayley's story with your friends and family and encourage them to take this opportunity to give hope to Hayley and the thousands of other patients in need.

For information regarding eligibility please visit www.deletebloodcancer.org

09/11/2013

*UPDATE* It has been a while since we have posted an update on here... Emily celebrated her 6th birthday back in April!! She had a scan a couple weeks ago which was 100% clear!! She just started Kindergarten and absolutely LOVES it! She wakes up every morning excited and ready to go to school! Emily is looking forward to Halloween coming up, which is her favorite holiday! :)

Here is a picture of her first day of school with her brothers Ean (her twin) and Ethan (big brother).

05/01/2013

05/01/2013

the incurable. A teenager raising awareness about cancer and cancer research, after two friends died of cancer within three months.

01/24/2013

Hi everyone! Sorry it's been so long since we've updated on here... Emily is continuing to do well and is still working hard on progressing further with her speech and therapies.

We did hear some sad news today, another AT/RT fighter named Rylan lost his battle. We have added a link to his page so if any of you'd like to send prayers and support for him and his family.

https://www.facebook.com/RibbonsForRylan

Welcome to Ribbons for Rylan. Through this page we hope to keep our many supporters updated about our quest to beat Childhood Cancer. Rylan we love you!!

04/08/2012

Happy Easter everyone!!!

03/19/2012

We have started a prayer list for children with life-threatning illnesses... If you would like to add a child please let us know! You can comment here or on Emily's page with their Name, Age, City/State and Illness. Also, if you would like to add a certain prayer to the list, you are more then welcome to send it to us and we will add it on there!