Apert OWL

08/09/2026

Amarah has been having a great summer, Catskills NY, Philadelphia, lakes in NJ, pool time , summer school fun and many mall trips :)

08/09/2026

Share your best summer pics with us!!! Let us know about Apert or special needs friendly places!!!

07/18/2026

Meet our little Warrior Walker Rex from Utah!!! He goes for his first surgery tomorrow..Lets welcome Walker and send positive vibes to his family may all go well tomorrow!!!!! Thanks Kyley Fernandez Tobler for sharing

07/17/2026

Welcome Nissa Victorique A. Aquino from the Philippines !!! Thanks Earvin Silva Aquino for sharing her with us. Follow her Nissa’s Adventure with Apert Syndrome

07/08/2026

Looking for a job and don’t know where to start? SourceAmerica’s Employment Resources are specifically tailored to people with disabilities, including veterans. Learn about all the resources available to you, including SourceAmerica’s own Job Board, at: https://bit.ly/3kVoTe0

07/06/2026

Check this page for Disability Pride Month 2026 events in your state, participate and represent!!!

What Disability Pride Month is, the 2026 theme “The World Works Better With Us,” why it matters now, and ways to celebrate and take action.

07/06/2026

July is Disability Pride Month!!!! Disability Pride Month is observed every July to celebrate disability identity and community, mark the anniversary of the Americans with Disabilities Act (ADA), and push for full inclusion in everyday life. The 2026 theme is “The World Works Better With Us.”

07/01/2026

We are proud to partner with Dr. Tran and his colleagues who are helping advance and study the outcomes of craniosynostosis surgery. We are happy to have our members' help with their submissions for the Advancing Craniosynostosis Treatment (ACT) Rare Diseases Consortium studies.

Thank you for being a part of this important research!

https://www.research.chop.edu/cornerstone-blog/chop-leads-rare-diseases-consortium-to-evaluate-craniosynostosis-surgeries

07/01/2026

With Children's Craniofacial Association – I just got recognized as one of their top fans! 🎉