Heterotaxy Connection

Heterotaxy Connection Heterotaxy Connection is a nonprofit supporting individuals and families affected by heterotaxy.

We provide education, advocacy, and community connections to improve awareness, care, and outcomes

How You Can Show Up for a Heterotaxy Warrior 🫆💛* Learn the Basics | Educate yourself* Infection Awareness | Take illness...
06/23/2026

How You Can Show Up for a Heterotaxy Warrior 🫆💛

* Learn the Basics | Educate yourself

* Infection Awareness | Take illness seriously around them

* Practical Help | Ask specific questions

* Follow Their Lead | Every Warrior is different

* Celebrate the Wins | Cheer loudly for all the milestones

* Emotional Support for Caregivers | Check in on parents

* Spread Awareness | Share their story

Heterotaxy Warriors don’t fight alone..because of people like YOU! 💛

Visist Heterotaxy.org for more information

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Some heroes wear scrubs. Some wear work boots. Some run on coffee, little sleep, and pure love for their child.Today, we...
06/21/2026

Some heroes wear scrubs. Some wear work boots. Some run on coffee, little sleep, and pure love for their child.
Today, we celebrate the Dads who show up every single day for their Warriors. 💛

The Dads who learn medical terms they never expected to know.
The Dads who hold steady during the hard moments.
The Dads who carry fear quietly while still making their child feel safe.
The Dads who celebrate every milestone, no matter how small.
The Dads who advocate, protect, comfort, and love with everything they have.

Whether you are bedside at the hospital, cheering from the sidelines, navigating loss, or watching your Warrior thrive, we honor you today.

HAPPY FATHER’S DAY!

Your strength matters.
Your presence matters.
YOU matter.

From all of us at Heterotaxy Connection, Happy Father’s Day to the incredible dads and father figures in our community. Thank you for walking this journey with courage, compassion, and unwavering love.

Share a photo 📸 of a special Dad in your Warrior’s life or leave a 💛 to celebrate the amazing fathers in our community.

💫THE MORE YOU KNOW: What digestive issues can occur with Heterotaxy?Some patients can develop intestinal malrotation, wh...
06/19/2026

💫THE MORE YOU KNOW:

What digestive issues can occur with Heterotaxy?
Some patients can develop intestinal malrotation, where the intestines are positioned incorrectly and may twist dangerously.

HETEROTAXY 💛 TOGETHER WE THRIVE

⭐️ Heterotaxy.org

FACING HETEROTAXY TOGETHER💻 This year we will be hosting a Virtual Conference in September. Mark your calendars.🗓️ Septe...
06/15/2026

FACING HETEROTAXY TOGETHER

💻 This year we will be hosting a Virtual Conference in September. Mark your calendars.

🗓️ September 23-24, 2026 | Medical & Research
🗓️ September 25, 2026 | Family & Caregivers

💛 For all updates visit Heterotaxy.org 💛

SUMMER OF ACTION💛 Recurring Giving | CIRCLE OF HOPE: https://heterotaxyconnection.networkforgood.com/projects/260370-tog...
06/08/2026

SUMMER OF ACTION

💛 Recurring Giving | CIRCLE OF HOPE: https://heterotaxyconnection.networkforgood.com/projects/260370-together-we-thrive-monthly

💻 HC Virtual Conference Sept. 23-35 | FACING HETEROTAXY TOGETHER: https://www.heterotaxy.org/events-2-1

🎥 Video Storytelling | YOUR VOICE MATTERS: https://senja.io/p/heterotaxyconnection/r/warriorstories

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Instagram users, please visit link in bio for all direct links🔝
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💫THE MORE YOU KNOW: No two people with Heterotaxy have the exact same anatomy.HETEROTAXY 💛 TOGETHER WE THRIVE⭐️ Heterota...
06/05/2026

💫THE MORE YOU KNOW:

No two people with Heterotaxy have the exact same anatomy.

HETEROTAXY 💛 TOGETHER WE THRIVE

⭐️ Heterotaxy.org

👤Have you used the Interactive body map on our website? If you haven’t, you are missing out!!!🫀Go check it out right now...
06/01/2026

👤Have you used the Interactive body map on our website? If you haven’t, you are missing out!!!

🫀Go check it out right now!!! Heterotaxy.org

🗣️ Loads of information has been added to this map. It even gives the option to have everything read aloud to you! It is a tool we are very proud of. It took a lot of time, effort, energy and a team of people to get this up and running. We hope you are able to use it to your advantage. It can be a great resource to share with others as well.

💛 Please let us know what you think. We welcome your feedback.

Address

2882 E Ruby Valley Drive
Draper, UT
84005

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