Chordoma Foundation

10/12/2026

The pace of chordoma research is accelerating, and our global community is stronger than ever. Both were on full display at our recent International Research Workshop and Community Conference in Boston, where a record 230+ participants came together to share discoveries, forge connections, and help shape what's next.

Check out the highlights: https://www.chordomafoundation.org/latest-updates/2026-conferences/

Many thanks to our event sponsors: Mass General BrighamCancer Institute, Brown University Neurosurgery Foundation, Cedars-Sinai, Icotec, Northwell Health, NYU Langone Health, and Penn Medicine Radiation Oncology.

Members of our global community gathered in person to build connections, exchange insights, and help shape the next phase of chordoma care and research.

10/08/2026

Our community is full of chordoma patients and family members who are helping drive progress in all kinds of ways. We’d love to connect you with opportunities to participate in our shared mission, from research studies and sharing your experience to supporting others, fundraising, and more.

We invite you to take a moment to tell us what interests you via the form linked here—and our team will be in touch!

Every single person affected by chordoma can play a significant role in advancing progress. Fill out the form below to tell us what you're interested in,…

10/07/2026

Our Patient Navigation Service is getting stronger.

As chordoma care options have expanded considerably, treatment decisions have also become more complex. With the addition of our first Nurse Navigator, we can now provide more in-depth, clinically informed support to patients and loved ones, helping them access the right expertise and options and ultimately receive the best possible care.

Learn more about how we’re expanding our free Patient Navigation service to meet the changing needs of our community:

With the addition of our first Nurse Navigator, our free Patient Navigation Service now offers more clinical expertise to help patients and loved ones…

09/25/2026

We appreciated this look inside complex spine tumor surgery, featuring Dr. Joseph Schwab, a member of our Medical Advisory Board. While not chordoma-specific, the surgery it describes will feel familiar to many in our community. Thanks to Cedars-Sinai, the Acceleration sponsor of this year's International Chordoma Community Conference, for sharing this story!

09/23/2026

We’re excited to share our 2026–2030 Strategic Plan, and eager to bring it to life together!

Take a look, and let us know what stands out to you: chordoma.org/strategic-plan

We’d love to hear your ideas, questions, and what you’re most hopeful about in the years ahead.

This plan defines the change we aim to achieve by 2030 and how we will bring it to fruition. It reflects our unwavering commitment to improving the…

09/16/2026

Big news in our effort to develop new treatments for chordoma!

A team at X-Chem has achieved a major milestone via our TBXT Challenge, discovering a compound that binds to brachyury far more strongly than any previously published.

Brachyury is chordoma’s defining feature and key vulnerability, and finding compounds that can bind to it strongly has been a longstanding challenge. This discovery clears an important hurdle and opens the door to new approaches for developing brachyury-targeting drugs.

There’s more work to do, and the TBXT Challenge continues. But today, we’re celebrating a meaningful step toward something our community has been working toward for years: new and better treatment options for chordoma patients.

Thank you to everyone who helped make this progress possible!

Learn more:

A longstanding hurdle to developing drugs targeting chordoma’s key vulnerability and defining feature, brachyury, has been overcome, potentially paving…

09/10/2026

No matter where you are, you can be part of Team Chordoma on October 4! Join us in person in New Jersey, or participate virtually from anywhere.

However you join in, you'll be showing support and helping to raise funds for chordoma research and care. We'd be so grateful to have you on the team!

Learn more and register: chordoma.org/events

(And thanks again to The LIV Method for sponsoring our custom race shirts!)

08/19/2026

Team Chordoma is back—Sunday, October 4, in Jersey City! Pick your distance: 5K, 10K, or half marathon, with walkers welcome for the 5K. Virtual option also available.

Register: chordoma.org/events

Huge thanks to The LIV Method for sponsoring our custom race shirts again this year!

08/18/2026

The annual Swing Fore the Cure event began with Jeff Schilling, a chordoma patient who liked to say that "shavings make a pile" —that every small effort adds up. The Bates family has carried the tournament forward in Kansas City, and this year a record $60,000 in proceeds will benefit our chordoma research! Thank you to everyone who participated this year, to Jon and Maggie Bates who make it bigger and better each time, and to Jeff's friends and family, who still turn out every single year. 💙

Learn about hosting a fundraiser: chordoma.org/fundraise

08/17/2026

Registration for our International Chordoma Community Conference closes in one week! Join us in Boston on Sep. 18-20 to hear new progress, meet researchers and doctors, and forge bonds with people who understand your journey with chordoma. We can't wait to share this unforgettable weekend with our community!

(Many thanks to the sponsors making it possible: Mass General Brigham Cancer Institute, Cedars-Sinai, NYU Langone Health, Brown University Neurosurgery Foundation, UPenn Radiation Oncology Research Division, and Northwestern Medicine)

Improving the lives of those affected by chordoma. Leading the search for a cure.