Autoimmune Encephalitis Alliance

06/04/2026

Ed Arditte became a driving force within the AE Alliance — connecting with physicians, advocating for greater awareness, and traveling wherever he could to shine a light on a disease that too often went unrecognized.

His boundless energy and belief in what was possible inspired everyone around him. He helped build our Medical Advisory Board and helped establish the Community Seed Grant Program, creating opportunities for researchers to pursue promising ideas that might otherwise never receive funding.

When Ed passed away from ALS in April 2023, the AE community lost a remarkable leader, advocate, and friend. His wife Bibi, his children, and his grandson Caleb carry his memory every day. So do we.

Yet his vision continues to guide us. Today, the Edward Arditte Community Seed Grant Program carries forward the work he cared about most.

No ask today. Just gratitude for a man who gave everything to this cause.

Learn more here --> https://bit.ly/AEAPossibilties

06/03/2026

We're coming to Rochester, Minnesota!

The AE Alliance is filled with excitement to spend the day at the Mayo Clinic Rochester and spend the day with our friends The Sumaira Foundation, The Stiff Person Syndrome Research Foundation, and most importantly YOU!

Check out all the details below.

Are you or your loved one impacted by: AE*, CIDP*, CNS Vasculitis*, MG*, MOGAD*, neurosarcoidosis, NMOSD*, or SPS*? TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper midwest region to join us on Saturday, June 20th at Mayo Clinic's Civic Center. To register, visit www.tinyurl.com/TSFRochester

Join us for a memorable and impactful day of education, community and fun to:
🦄 Meet local patients, partners, care-partners and clinicians
🦄 Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
🦄 Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with Dr. Eoin Flanigan and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance, MG Holistic Society and The Stiff Person Syndrome Research Foundation.

Registration is free and lunch will be served. We can't wait to see you in Rochester!

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💡 stands for autoimmune encephalitis
💡 stands for chronic inflammatory demyelinating polyneuropathy
💡 CNS Vasculitis stands for central nervous system vasculitis
💡 stands for myasthenia gravis
💡 stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
💡 stands for neuromyelitis optica spectrum disorder
💡 stands for stiff person syndrome See less

TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper midwest region!

06/01/2026

Join us tonight for an AEA Community Support Group Meeting at 7:00 PM Eastern.

Whether you have specific topics or questions you would like to discuss or simply feel like hanging out with people that understand what it's like to live life with AE, this is the place for you to be.

Email [email protected] and ask to register for the AEA Support Network.

06/01/2026

Some of the most important advances in autoimmune encephalitis begin with a single idea — and the support to bring that idea to life.

Today we launch our June campaign to fund two AE research grants in honor of Ed Arditte — a husband, father, board member, and one of the most passionate advocates this disease has ever had.

When his daughter was diagnosed with AE, Ed and his wife Bibi encountered what so many families find: limited awareness, scarce resources, and too little research. Rather than accepting those barriers, Ed set out to change them.

We named this program in his memory. This June, help us carry his work forward.

Our goal: $20,000 to fund two $10,000 seed grants.

Learn more here --> https://bit.ly/AEAPossibilties

05/11/2026

Every month the offers 6 support groups. Visit our website to see the schedule and learn more (https://aealliance.org/all-events/).

There is no reason for you to face AE alone! Let's be stronger together!

Email us and let us know which groups you would like to attend - [email protected].

04/17/2026

We're coming to Rochester, Minnesota!

The AE Alliance is filled with excitement to spend the day at the Mayo Clinic Rochester and spend the day with our friends The Sumaira Foundation, The Stiff Person Syndrome Research Foundation, and most importantly YOU!

Check out all the details below.

Are you or your loved one impacted by: AE*, CIDP*, CNS Vasculitis*, MG*, MOGAD*, neurosarcoidosis, NMOSD*, or SPS*? TSF is inviting patients and caregivers impacted by rare neuroinflammatory & related disorders from Minnesota and the upper midwest region to join us on Saturday, June 20th at Mayo Clinic's Civic Center. To register, click the link in our bio or visit www.tinyurl.com/TSFRochester

Join us for a memorable and impactful day of education, community and fun to:
🦄 Meet local patients, partners, care-partners and clinicians
🦄 Ask experts questions in real time about symptom management, treatments and therapies, comorbidities and more
🦄 Learn about updates on the latest research and findings from local key opinion leaders

This event is being organized in collaboration with Dr. Eoin Flanigan and Dr. John Chen (Mayo Clinic Rochester) and in partnership with Autoimmune Encephalitis Alliance, MG Holistic Society and The Stiff Person Syndrome Research Foundation.

Registration is free and lunch will be served. We can't wait to see you in Rochester!

---

💡 stands for autoimmune encephalitis
💡 stands for chronic inflammatory demyelinating polyneuropathy
💡 CNS Vasculitis stands for central nervous system vasculitis
💡 stands for myasthenia gravis
💡 stands for myelin oligodendrocyte glycoprotein antibody-associated disorder
💡 stands for neuromyelitis optica spectrum disorder
💡 stands for stiff person syndrome

01/15/2026

Nothing promotes an event better than hearing how much it means to someone else. If I wasn't already attending Maddy would make me start planning today.

Hope you will join us for the Feb. 20-22 World Encephalitis Day event!

Register and learn more here: https://bit.ly/4jLLlWK

12/26/2025

Merry Everything and Happy Always from the Autoimmune Encephalitis Alliance and our families to yours.

12/09/2025

The AE Alliance thanks you for an incredibly successful Giving TuesdAE. We are excited to share more about the AEA CARES programs throughout December.

Definitely check out our weekly updates and see if there is something we are doing that could benefit YOU! --> https://bit.ly/AEAThanksYou

12/02/2025

We have a BIG goal and we are seeing double this Giving TuesdAE!

We hope you’ll join us in making a meaningful difference for the AE community. Every dollar you give supports the AEA mission and our CARES programs and events — Community, Advocacy, Research, Education, and Support.

This year, the AE Alliance Board of Directors is personally matching every donation — dollar for dollar — up to $10,000 made on Giving Tuesday. That means your $25 gift becomes $50, doubling your impact and helping us continue our vital work.

Together, we can make this Giving TuesdAE our most impactful yet. Thank you for your generosity and support!

Make a difference today -> https://bit.ly/GivingTuesdAEA