National MPS Society

National MPS Society The National MPS Society exists to cure, support, and advocate for MPS and ML.

❤️ Hope Given. Courage Shared.❤️Join us at our Columbus Conference for a Blood & Plasma Drive, a meaningful opportunity ...
06/20/2026

❤️ Hope Given. Courage Shared.❤️

Join us at our Columbus Conference for a Blood & Plasma Drive, a meaningful opportunity to give back and help save lives.

Inspired by the compassion and generosity that have supported our community through every challenge and triumph, we are coming together to give hope to others through the gift of donation. Sign up online now using the search 'MPS': https://ow.ly/jbHw50Z7xyk

As a special bonus, anyone who donates blood or plasma as part of this event will be entered into a drawing for a chance to win a National MPS Society backpack 💜🤩

We know what we're most looking forward to at our upcoming conference—but we want to hear from you! Whether it's connect...
06/19/2026

We know what we're most looking forward to at our upcoming conference—but we want to hear from you!

Whether it's connecting with other families, attending educational sessions, meeting researchers and advocates, or simply being together as a community, there's so much to be excited about.

Tell us in the comments: What are you most excited for at this year's conference? ⬇️

There's just TWO WEEKS left to take advantage of early-bird pricing for our 40th Annual Family & Scientific Conference! ...
06/16/2026

There's just TWO WEEKS left to take advantage of early-bird pricing for our 40th Annual Family & Scientific Conference! Beginning July 1st, registration fees will increase.

Take advantage of the time. Register today and join us for a truly unforgettable experience in Columbus: tinyurl.com/mpsfamily2026

Our 2026 edition of Angels Among Us: Remembering Our Loved Ones, honoring individuals with MPS or ML who have passed awa...
06/14/2026

Our 2026 edition of Angels Among Us: Remembering Our Loved Ones, honoring individuals with MPS or ML who have passed away, is now available. Please help us celebrate and remember our cherished community members by viewing the 2026 edition: https://ow.ly/APg050Zbla5

Conference shirts are arriving, and we’re loving seeing them out in the wild! 🦓🦏✨Have you received yours yet? Drop a pho...
06/13/2026

Conference shirts are arriving, and we’re loving seeing them out in the wild! 🦓🦏✨

Have you received yours yet? Drop a photo in the comments and show off your 40th Annual Family & Scientific Conference swag! We can't wait to see our community representing this special anniversary year.

Still waiting on yours? There’s still time to order and be ready for Columbus! Don’t miss your chance to celebrate 40 years of connection, support, and hope in style: https://ow.ly/ZrpN50ZblhG

06/13/2026

“Maybe you'll meet your miracle-worker at Conference. I know we did.” — Steve Chesser, MPS II dad and National MPS Society Board Member

Every family has their own reason for attending the National MPS Society Family & Scientific Conference. Some come to learn, some come to connect, and some come searching for hope. No matter the reason, we hear one message time and again: the connections made at Conference can be life-changing.

From meeting other families who understand your journey to connecting with researchers, clinicians, and advocates, Conference brings our community together in meaningful ways.

Join us and be part of something special: https://ow.ly/Bvgh50ZaCkE

We are proud to share a landmark peer-reviewed article published recently in Molecular Genetics and Metabolism that high...
06/12/2026

We are proud to share a landmark peer-reviewed article published recently in Molecular Genetics and Metabolism that highlights the potential of cerebrospinal fluid (CSF) heparan sulfate (HS) as a validated biomarker for measuring treatment efficacy in neuronopathic MPS, including MPS I, II, III, and VII.

This important work strengthens the scientific and regulatory foundation for accelerating the development and approval of therapies that target the brain disease associated with these rare disorders. 🔬

We are especially honored that National MPS Society President & CEO Terri L. Klein and former Chief Scientific Officer Dr. Matthew Ellinwood contributed as co-authors to this international collaboration, reflecting our ongoing commitment to advancing research and improving outcomes for individuals and families affected by MPS. 💜

Read the full article: https://doi.org/10.1016/j.ymgme.2026.109911

At Camp Courage, every child gets to just be a kid. 🦁🌿For children living with MPS and ML, Camp Courage is more than a p...
06/10/2026

At Camp Courage, every child gets to just be a kid. 🦁🌿

For children living with MPS and ML, Camp Courage is more than a program—it's a place filled with laughter, friendship, and the kind of joy that every child deserves. This year, we're heading on a safari adventure, and we can't wait to share it with your family at our 2026 conference in Columbus!

There are two meaningful ways to help make this year's Camp Courage unforgettable:

🎟️ Join us at the conference and experience the safari magic firsthand: https://ow.ly/jlnN50Za9EQ

🎁 Shop our Amazon Wishlist—most items go home with the kids to enjoy long after the conference ends: https://ow.ly/7HZU50Za9EO

Together, we can make this safari a memory our families will carry with them forever. 💜

No matter your style, there's something for everyone when shopping for our special 40th Annual Family & Scientific Confe...
06/09/2026

No matter your style, there's something for everyone when shopping for our special 40th Annual Family & Scientific Conference swag 🥰

Whether you're joining us in Columbus or not, you won't want to miss out on the opportunity to collect a small piece of the Society's history. Purchase yours now: https://www.bonfire.com/40th-annual-family-amp-scientific-conference/

Address

P. O. Box 14686
Durham, NC
27709

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+19198060101

Website

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