RDII - Rare Disease Innovations Institute

RDII - Rare Disease Innovations Institute A global non-profit focused on educating, engaging, and equipping the rare disease community

What a GREAT tool. Sharing to raise awareness!
07/31/2024

What a GREAT tool. Sharing to raise awareness!

We are excited to announce the official launch of our new mental health course Youth Mental Health First Aid (YMHFA). This 8-hour public education program equips participants with the knowledge to identify unique risk factors and warning signs of mental health issues in adolescents.

Living with a rare diagnosis can significantly strain and stress patients and their caregivers, and siblings are often impacted as parents tend to dedicate more time to the child with a disability. YMHFA emphasizes the importance of recognizing early signs and symptoms of potential mental health challenges and provides essential skills for early intervention. This program is designed for adults who regularly interact with adolescents and transition-age youth, ages 12-18, to help support and guide them during mental health challenges or crises.

Our next course is scheduled for September 2024! Learn more at https://buff.ly/3zRIuZs

Sharing to spread awareness.
07/31/2024

Sharing to spread awareness.

We’re gearing up for another Together on Tuesdays on September 3.

Throughout 2024, we’re hosting sessions covering a wide variety of topics, the goal of which is to be informative and interactive.

This session will be focused on palliative care.
Sign up at: https://udnf.org/what-is-palliative-care-really/

Reasons why rare disease patients face depression/anxiety.
07/25/2024

Reasons why rare disease patients face depression/anxiety.

“It’s time for Congress to step up and reform PBM practices to ensure that middlemen aren’t driving up costs for North C...
07/23/2024

“It’s time for Congress to step up and reform PBM practices to ensure that middlemen aren’t driving up costs for North Carolina’s most vulnerable communities.”

In a new Daily Reflector opinion, RDII founder and president Tara Britt urges Senators Budd, Tillis, and Congress to prioritize critical reform of health industry middlemen, known as pharmacy benefit managers or .

Read more today:

North Carolina patients are being forced to choose between affording health care or putting food on the table thanks to health industry middlemen who are raising costs for consumers.

Sharing to raise awareness!
07/22/2024

Sharing to raise awareness!

Here are a few reasons why rare disease caregivers face depression and/or anxiety.
07/15/2024

Here are a few reasons why rare disease caregivers face depression and/or anxiety.

Interested in starting a Rare Disease Advisory Council? We can help! Message us for details.
07/11/2024

Interested in starting a Rare Disease Advisory Council? We can help! Message us for details.

Did you know our CEO, Tara Britt, also does consulting on rare disease policy? Message us for more details!
07/09/2024

Did you know our CEO, Tara Britt, also does consulting on rare disease policy? Message us for more details!

This article from Psychology Today is a couple of years old, but it still resonates today.
06/10/2024

This article from Psychology Today is a couple of years old, but it still resonates today.

New research finds that LGBQ+ women with rare disorders experience intersectional stigma. The study highlights the need for accessible community events.

What a great start to Seattle Children’s Rare Fair. Powerful!
05/30/2024

What a great start to Seattle Children’s Rare Fair. Powerful!

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