Global Action Network for Sickle Cell & Other Inherited Blood Disorders

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Global Action Network for Sickle Cell & Other Inherited Blood Disorders The GANSID serves the inherited blood disorders community.

How much do you really know about sickle cell disease? Put your knowledge to the test with our Sickle Cell Myth vs Fact ...
10/14/2026

How much do you really know about sickle cell disease? Put your knowledge to the test with our Sickle Cell Myth vs Fact Quiz.

From pain crises and silent strokes to organ complications and acute chest syndrome, some of the realities of SCD may surprise you.

Then take the next step: access the WIBD Toolkit and register for our webinar this Saturday to learn more about inherited blood disorders, patient advocacy, early diagnosis and equitable access to emerging therapies.

🔹 Access the FREE WIBD Toolkit: https://tinyurl.com/WIBD2026
🔹 Register for our special GLOBAL WIBD webinar happening this Saturday! https://tinyurl.com/WIBDWebinar2026
🔹 Share your : https://tinyurl.com/GANSIDWIBDStory



Sources: Centers for Disease Control and Prevention (CDC), National Heart, Lung, and Blood Institute (NHLBI), American Society of Hematology (ASH)

GANSID Congress 2026 is just 10 days away!The countdown is on! We can’t wait to welcome everyone to Hyderabad for three ...
10/13/2026

GANSID Congress 2026 is just 10 days away!

The countdown is on! We can’t wait to welcome everyone to Hyderabad for three days of learning, collaboration, and meaningful conversations advancing care for people living with inherited blood disorders.

📅 October 23–25, 2026
📍 Hyderabad International Convention Centre, Hyderabad, India

Haven’t registered yet? There’s still time to be part of it!

🔗 Register today: https://tinyurl.com/GANSIDCongress2026

We look forward to seeing you there!

Tie Red. Flex Arm x In marking World Inherited Blood Disorders Month, we are honoured to share Muhammad’s story today, ...
10/13/2026

Tie Red. Flex Arm x

In marking World Inherited Blood Disorders Month, we are honoured to share Muhammad’s story today, who is a sickle cell advocate from Nigeria. Please read his story below and share your support.

You can continue to advocate for by:
🔴 Sharing your own : tinyurl.com/GANSIDWIBDStory
📖 Accessing the WIBD Toolkit: tinyurl.com/GANSIDWIBDS2026
🎙️ Joining the WIBD Webinar: tinyurl.com/WIBDWebinar2026

"I was born with HbSS, and living with sickle cell disease has shaped my life in many ways. I have experienced painful crises, hospital admissions, and times when my health made it difficult to continue with school and everyday activities. One of my hardest experiences was spending almost two months in the hospital. It was a difficult period, but it taught me patience, strength, and the importance of never giving up. After recovering, I returned to my studies and continued pursuing my dream of becoming a Computer Science professional. Every step forward reminds me that sickle cell disease does not have to stop me from achieving my goals. My faith, family, and determination give me strength. To everyone living with an inherited blood disorder, I want you to know that your condition does not define your potential. Keep fighting, keep believing, and keep moving forward."

What can YOU do for inherited blood disorders this October?Every action counts! Swipe through our week-by-week guide for...
10/13/2026

What can YOU do for inherited blood disorders this October?

Every action counts! Swipe through our week-by-week guide for simple, meaningful ways to learn, raise awareness, share stories, and turn advocacy into action this World Inherited Blood Disorders Month.

Not sure where to start? Our FREE WIBD Toolkit has you covered with campaign materials, advocacy guidance, sample letters, and practical resources to help you make a difference.

📘 Access the WIBD Toolkit: tinyurl.com/WIBD2026
📅 Register for the October 17 webinar: tinyurl.com/WIBDWebinar2026
💬 Share your : tinyurl.com/GANSIDWIBDStory

Whether you share a story, start a conversation, or advocate for change, your voice matters. Let’s make every week count!

POV: You live with sickle cell. 🩸There’s so much about living with sickle cell that people may never see, understand, or...
10/12/2026

POV: You live with sickle cell. 🩸

There’s so much about living with sickle cell that people may never see, understand, or think to ask about.

This World Inherited Blood Disorders Month, let’s keep learning, listening, and advocating for better understanding, earlier diagnosis, and equitable access to care.

📚 Explore the WIBD Toolkit for resources, advocacy tools, and ways to take action: https://tinyurl.com/GANSIDWIBDS2026

🎙️ Join our WIBD Webinar on patient advocacy, early diagnosis, and equitable access to emerging therapies: https://tinyurl.com/WIBDWebinar2026

10/12/2026

In marking World Inherited Blood Disorders Month, GANSID is honoured to share Lincy’s story, a patient advocate from Kakamega, Kenya. Please share your support

In this , Lincy shares her experiences living with sickle cell disease and what she wants the world to know. 🌍

❤️ Share your story: https://tinyurl.com/GANSIDWIBDStory

📚 Explore our toolkit: https://tinyurl.com/GANSIDWIBDS2026

💻 Join our webinar on October 17: https://tinyurl.com/WIBDWebinar2026

Together, let’s raise awareness and amplify patient voices!

Did you know? Aplastic anemia is a rare and serious disorder where the bone marrow stops producing enough blood cells.It...
10/09/2026

Did you know? Aplastic anemia is a rare and serious disorder where the bone marrow stops producing enough blood cells.

It can occur when blood-forming stem cells or the bone marrow environment become damaged or defective.

🗓️ Save the date - On October 17, GANSID will be holding an exclusive WIBD webinar!

Register here: https://tinyurl.com/WIBDWebinar2026

GANSID has developed the FREE World Inherited Blood Disorders Toolkit, with resources to support awareness, advocacy, and community engagement throughout the month and beyond.

🔗 Explore the toolkit: https://tinyurl.com/GANSIDWIBDS2026

A reminder that in recognition of World Inherited Blood Disorders Day on October 18, GANSID is hosting a virtual global ...
10/09/2026

A reminder that in recognition of World Inherited Blood Disorders Day on October 18, GANSID is hosting a virtual global conversation, “Bridging the Gap: Expanding Patient Advocacy, Early Diagnosis, and Equitable Access to Emerging Therapies,” bringing together government leaders, advocates, and experts to discuss how we can turn awareness into meaningful action.

📅 October 17, 2026
⏰ 8:30–10:00 AM EDT
💻 Virtual | Zoom

🌍 Register today and be part of the global conversation:
https://tinyurl.com/WIBDWebinar2026

Speakers: Dr. Charles Senessie | Dr. Alayo Sopekan | Mr. Prem Roop Alva
Session Moderator: Prof. Adekunle Adekile

Join us as we explore practical ways to strengthen patient advocacy, improve early diagnosis, and expand equitable access to emerging therapies.

10/08/2026

⏱️ 3 ways to make a difference for World Inherited Blood Disorders Day in 60 seconds:

1️⃣ Take a photo of you with a red ribbon around your arm for and tag on socials!
2️⃣ Register for GANSID’s “A Conversation with Global Governments” webinar on Oct 17
🔗 https://tinyurl.com/WIBDWebinar2026
3️⃣ Check out our FREE WIBD Toolkit to find resources on building awareness and advocating to governments: https://inheritedblooddisorders.world/world-inherited-blood-disorders-day

Small actions can help make inherited blood disorders more visible. ❤️

Did you know? Von Willebrand disease (VWD) is the most common inherited bleeding disorder. It occurs when the body has t...
10/08/2026

Did you know? Von Willebrand disease (VWD) is the most common inherited bleeding disorder. It occurs when the body has too little von Willebrand factor or produces a form of the protein that does not work properly.

Without enough functional von Willebrand factor, platelets cannot stick properly to damaged blood vessels, so bleeding can take longer to stop.

🗓️ Save the date - On October 17, GANSID will be holding an exclusive WIBD webinar! Register here: https://tinyurl.com/WIBDWebinar2026

GANSID has developed the FREE World Inherited Blood Disorders Toolkit, with resources to support awareness, advocacy, and community engagement throughout the month and beyond.

🔗 Explore the toolkit: https://tinyurl.com/GANSIDWIBDS2026

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