US MEF2C Foundation

05/29/2026

📣 Calling all MEF2C families! Join us for a Resource Connect webinar featuring physical therapist Stella Jeong, DPT for a presentation and Q&A on low muscle tone, home skill-building tips, and navigating therapy services through IEP and 504 plans.

📅 Saturday, June 6, 2026 | 9:00AM CT / 10:00AM ET
Register now 👉 https://usmef2c.click/26Connect_PT
or https://forms.gle/aoiirHwjgvhf9GFYA

05/14/2026

Today we celebrate MEF2C Awareness Day with our growing MEF2C Family to advocate for our rare community. You are all in our hearts. A special shout out to Judy Daprano for all the hours spent to commemorate this special day with a heartwarming video & the lighting of 61 landmarks in 34 US states & Canada, and to MEF2C advocates & organizations across the globe who have helped to shed light on MEF2C 💙💙💙

05/14/2026

📅May 14th, it's more than just a date. It's a symbol! 💙
🧬The MEF2C gene is on the 5th chromosome in region 14.3. Thus, MEF2C Awareness Day is on May 14th.

https://www.youtube.com/watch?v=dIEcBrvgs4A
Please celebrate with us on May 14, 2026 by giving your attention to our beautiful families and learning about MEF2C-Related Syndrome.

Please share our video 🎥Give it a thumbs up 👍Subscribe to our YouTube channel. 💙

🏙Visit any of the 61 participating landmarks in 34 states listed and at the end of the video on the evening of May 14, 2026 from sunset to sunrise to see them illuminated for MEF2C Awareness Day. Share a photo on social media of our impact in spreading awareness. Please also share those photos with the US MEF2C Foundation.
* Watch the livestream of Niagara Falls at 10:00 pm (EST) for a 15 min duration
https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str
*Watch the livestream of Cleveland's Terminal Tower on May 19th .
https://rtsp.me/embed/FQZ6SEF2/
2026 MEF2C Awareness Day Landmark Illumination List https://docs.google.com/document/d/1HKeZwYt1qMFn3PVM-vFRerNvGvHk4oxx/edit?usp=sharing&ouid=117048140155223306375&rtpof=true&sd=true

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2026 MEF2C Awareness Day Family Video from the US MEF2C Foundation

05/08/2026

6 Days until the 2026 MEF2C Awareness Day!
📅The US MEF2C Foundation is inviting you to celebrate with all of the following landmarks to illuminate in raising awareness for the 2nd annual MEF2C Awareness Day on May 14, 2026.

🕯 Light a candle (Blue if you have one).💙Put a blue light bulb in your porch light.💙Program your LED house lights blue! 💙Ask friends and family to light candles and light their houses.💙 Post a message in your local Facebook groups asking for the community to light candles and illuminate their houses in blue. Sample post https://tinyurl.com/55h7wzbn

🏙Visit any of the 60 participating landmarks in 33 states on the evening of May 14, 2026 from sunset to sunrise to see them illuminated for MEF2C Awareness Day. Share a photo on social media of our impact in spreading awareness. Please also share those photos with the US MEF2C Foundation.
* Watch the livestream of Niagara Falls at 10:00 pm (EST) for a 15 min duration
https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str
* New England Patriots-Gillette Stadium is lighting on Tues, May 12th.
*Watch the livestream of Cleveland's Terminal Tower on May 19th .
https://rtsp.me/embed/FQZ6SEF2/

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05/01/2026

Links in comments

04/23/2026

🏙 Join us on May 14, 2026 along with 56 landmarks in 30 U.S. states illuminating for MEF2C Awareness Day.

🎥 Keep those videos clips coming. The video is coming together spectacularly! 🤩If your MEF2C family is participating in the video, please send those family video clips to Judy Daprano in Facebook Messenger or in an email to [email protected]. DUE in one week BY May 1st!

04/18/2026

🚨 RESCHEDULED 🚨

Our FIRST Family Resource Connect webinar
TBD - updates will be announced soon

Featuring Physical Therapist Stella Jeong, DPT
A presentation and Q&A on low muscle tone, home skill-building tips, and navigating therapy services through IEP and 504 plans.

04/17/2026

04/10/2026

📅The US MEF2C Foundation is inviting you to celebrate with all of the following landmarks to shine a light and raise awareness for the 2nd annual MEF2C Awareness Day on May 16, 2026. We are planning multiple events to commemorate this significant date.

🎥 For MEF2C families, if your family would like to participate in a video project for the US MEF2C Foundation, please let Judy Daprano know by sending her an email at [email protected] or a private message on Facebook Messenger and she will send you the directions. Video submissions are due by May 1, 2026

🕯 Light a candle (Blue if you have one) 💡 Put a blue light bulb in your porch light💡Program your house lights blue!
Ask friends and family to light candles and light their houses. Post a message in your local Facebook groups asking for the community to light candles and illuminate their houses in blue.. Sample post https://tinyurl.com/55h7wzbn

🏙Visit any of the participating landmarks (see photos) on the evening of May 14, 2026 to see them illuminated for MEF2C Awareness Day. Share a photo on social media of our impact in spreading awareness. Please also share those photos with the US MEF2C Foundation.

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