Matt Harmon Memorial Golf Tournament

Matt Harmon Memorial Golf Tournament Please join us in the fight against Huntington's Disease by sponsoring, donating or participating in the Matt Harmon Memorial Golf Tournament.

Huntington’s disease (HD) is a fatal, genetic disorder that causes the progressive breakdown of nerve cells in the brain. There is currently no cure and nothing to slow the progression. But there is hope. There is exciting and promising research. There is real support. And these come at a cost. We ask for your support of the Matt Harmon Memorial Golf Tournament. This tournament honors the life and

strength of Matt Harmon, who lived to the fullest until 2010 when he lost his fight to HD, and strives to raise awareness and funds that support vital research, education, family services and support to those affected by this fatal disease.

Important update regarding our tournament. Thank you all!
01/15/2026

Important update regarding our tournament. Thank you all!

Thank you!

12/03/2025

***Registration Closed***🎀 🎀 is pleased to be giving qualifying / families relief towards a meal. This program is on a first-come basis & fills quickly so APPLY NOW!

https://www.help4hd.org/events

11/22/2025

💙~ Save the Date ~💙
's virtual event will be coming up in February 2026! We can't wait to meet you online for this education event!

Watch our socials/website for updates: https://www.help4hd.org/events

Please sign this petition for our loved ones afflicted by Huntington’s Disease. Uniqure’s AMT-130 has proven to slow th...
11/14/2025

Please sign this petition for our loved ones afflicted by Huntington’s Disease. Uniqure’s AMT-130 has proven to slow the progression of the disease and we need the FDA to uphold their accelerated approval.

The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!

HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.

https://c.org/vfJyPMKbQM

Key Asks of the FDA:

Honor Your Previous Guidance: Fully uphold the previously agreed-upon accelerated approval pathway for AMT-130, including the use of external control data from natural history studies.

Recognize the Urgency: Acknowledge the dire, unmet medical need in the HD community and act with the expediency that Breakthrough Therapy and RMAT designations demand.

Expedite Review: Make the review and approval of AMT-130, and any other future HD therapies, a top priority to get this potentially life-altering therapy to patients without further delay.

Sign the Petition Today! Don’t forget to confirm your email to make it count

10/31/2025

☕Coffee for Caregivers Giveaway☕

& Caregivers, you are invaluable to your family. Help 4 HD wants to buy you a cup of coffee for , please submit information on our portal so that we can send you this free gift. (Limited Availability)

https://www.help4hd.org/events

15 years ago today, Matt lost his life to Huntington’s Disease. Sadly, he lost so much of his life before he passed away...
10/24/2025

15 years ago today, Matt lost his life to Huntington’s Disease. Sadly, he lost so much of his life before he passed away. The HD journey is a hard one, physically, mentally and emotionally for the person and their loved ones. This is a day of sadness yet also one of reflection and gratefulness for the support of the tournament that honors his life and his journey. Together, we have contributed to research, helped families in the struggle and brought hope to so many. Thank you all for honoring Matt ♥️.

10/08/2025

This song was made for Help 4 HD’s Symposium (an original) and it’s sooo good. It says so much. Pictures of the amazing community along with it is fantastic!

09/26/2025
07/04/2025
06/25/2025

Update on the tournament…

We raised over $37,000 with a net check just shy of $30,000!!! Thank you all so much for your incredible support and generosity!

Our auction closes tomorrow morning - don't miss out!
06/04/2025

Our auction closes tomorrow morning - don't miss out!

Check out some of the fantastic silent auction packages:

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Des Moines, IA

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