The Vanishing Family

10/01/2026

The Vanishing Family book by Robert Kolker tells a heartbreaking story of a family’s struggle with genetic dementia across generations.
But it isn't just one family's story.
It is all of ours.
Across the world, families are watching parents, spouses, siblings and loved ones disappear to dementia — while knowing that the same genetic mutation may threaten the next generation.
We refuse to accept this future.
We are fighting for a cure.
Watch. Share. Help us change the ending.
DONATE NOW (link in bio) — Help Cure MAPT FTD accelerate the path to a cure.

Bob Kolker Doubleday Books The FTD Brothers - Jordan Adams

09/29/2026

Join Dr. Marc Agronin, Chief Medical Officer of the Frank C. and Lynn Scaduto MIND Institute at Miami Jewish Health, for a special evening with #1 New York Times bestselling author Robert Kolker.

Dr. Agronin will lead a discussion on Kolker’s new book, The Vanishing Family, exploring one family’s journey with frontotemporal dementia and the ongoing search for answers through dementia research.

📅 Thursday, October 1 | 7 pm
Coral Gables Congregational United Church of Christ

To get your ticket or learn more, visit: https://www.eventbrite.com/e/an-evening-with-robert-kolker-in-conversation-with-marc-agronin-tickets-1995518757321?utm_experiment=test_share_listing&aff=ebdsshios&sg=51d0e9314a5947c68f07a7d2d6fe397e7d5ce6eb9963c8f466b6db57d42080031df0edbc42e63f5ab08c8b1c0f8c3246058f5f01138031ac8b2c0d61e16e045da4cea246fa1b03cf40384e5c2d

09/25/2026

"a profoundly human account of what it is like to face dementia – as well as how we might one day end it.”

Thank you to New Scientist for the fantastic review of The Vanishing Family book by Bob Kolker.

https://www.newscientist.com/article/2589981-dont-miss-this-tragic-story-of-a-family-with-a-rare-form-of-dementia/



Cure MAPT FTD
Doubleday Books

Robert Kolker's The Vanishing Family explores grief, enduring love and medical hope as a group of siblings in Pennsylvania come to terms with their fate, says Carissa Wong

09/22/2026

Don't miss this essay by Bob Kolker in the The Wall Street Journal, adapted from The Vanishing Family book, which will be on shelves Sept. 29!

https://www.wsj.com/health/wellness/dementia-kolker-karaoke-identity-soul-self-a89b3578?st=DuPYQJ&reflink=desktopwebshare_permalink

Doubleday Books

Cure MAPT FTD

As frontotemporal dementia degrades social awareness, loved ones and neuroscientists confront the heartbreaking boundary between a changing mind and the enduring self.

08/26/2026

The New York Times has named THE VANISHING FAMILY as one of the books everyone will be talking about in 2026!

From the bestselling author of HIDDEN VALLEY ROAD comes a deeply moving story of one family's unimaginable fate: a 50% chance of inheriting a rare form of FTD (frontotemporal dementia). This powerful narrative of resilience and discovery may help unlock new breakthroughs in the prevention and treatment of all dementia.

Pre-order your copy today! On sale 9.29.

08/14/2026

On shelves next month and you can pre-order now! Bob Kolker masterfully captures the heartwrenching story of our family's journey with genetic FTD and our quest to end dementia, together with Cure MAPT FTD.

The New York Times has named THE VANISHING FAMILY as one of the books everyone will be talking about in 2026!

From the bestselling author of HIDDEN VALLEY ROAD comes a deeply moving story of one family's unimaginable fate: a 50% chance of inheriting a rare form of FTD (frontotemporal dementia). This powerful narrative of resilience and discovery may help unlock new breakthroughs in the prevention and treatment of all dementia.

Pre-order your copy today! On sale 9.29.