InclusiVibe Foundation

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InclusiVibe Foundation Patient advocacy at the intersection of music and health for people with CCI, AAI, EDS, brainstem compression, tethered cord, and related conditions. Research.

Empathy interventions. Real pathways to care. Denton, TX | 501(c)(3) | inclusivibe.org Bridging music & medicine to empower disabled artists & amplify patient voices.

✨ InclusiVibe Peer Support Circle this Sunday! ✨Living with complex neuro/connective tissue conditions can mean navigati...
08/22/2026

✨ InclusiVibe Peer Support Circle this Sunday! ✨
Living with complex neuro/connective tissue conditions can mean navigating not only symptoms, but also the difficult moments when our medical experiences leave us feeling dismissed, misunderstood, or without the care we need. Join our free, safe, virtual community space to connect, share, and support one another. 💜

👉 Register here: https://shorturl.at/Xqauj

🗣️𝐓𝐡𝐢𝐬 𝐖𝐞𝐞𝐤’𝐬 𝐓𝐨𝐩𝐢𝐜:
𝐑𝐞𝐬𝐩𝐨𝐧𝐝𝐢𝐧𝐠 𝐭𝐨 𝐌𝐞𝐝𝐢𝐜𝐚𝐥 𝐈𝐬𝐬𝐮𝐞𝐬: 𝐃𝐢𝐬𝐦𝐢𝐬𝐬𝐚𝐥, 𝐍𝐞𝐠𝐥𝐞𝐜𝐭 & 𝐌𝐢𝐬𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐖𝐡𝐢𝐥𝐞 𝐂𝐚𝐫𝐢𝐧𝐠 𝐟𝐨𝐫 𝐎𝐮𝐫𝐬𝐞𝐥𝐯𝐞𝐬

🎙️ 𝐅𝐚𝐜𝐢𝐥𝐢𝐭𝐚𝐭𝐨𝐫: Mark Michalica, LPC
Licensed Professional Counselor with 25+ years in healthcare & his own personal medical journey

📅 Sunday, Aug 23 at 4:00 PM CST
📍 Free on Zoom
👉 Register here: https://shorturl.at/Xqauj

Come as you are—camera on or off, speak up or simply listen. There is no pressure to share. 💙

𝐖𝐞’𝐫𝐞 𝐠𝐫𝐚𝐭𝐞𝐟𝐮𝐥 𝐭𝐨 𝐞𝐯𝐞𝐫𝐲𝐨𝐧𝐞 𝐰𝐡𝐨 𝐜𝐨𝐧𝐭𝐢𝐧𝐮𝐞𝐬 𝐭𝐨 𝐬𝐡𝐨𝐰 𝐮𝐩, 𝐬𝐡𝐚𝐫𝐞 𝐭𝐡𝐞𝐢𝐫 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞𝐬, 𝐚𝐧𝐝 𝐡𝐞𝐥𝐩 𝐦𝐚𝐤𝐞 𝐭𝐡𝐢𝐬 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐬𝐭𝐫𝐨𝐧𝐠𝐞𝐫. 𝐘𝐨𝐮𝐫 𝐩𝐚𝐫𝐭𝐢𝐜𝐢𝐩𝐚𝐭𝐢𝐨𝐧 𝐚𝐧𝐝 𝐨𝐩𝐞𝐧𝐧𝐞𝐬𝐬 𝐚𝐫𝐞 𝐡𝐞𝐥𝐩𝐢𝐧𝐠 𝐮𝐬 𝐛𝐮𝐢𝐥𝐝 𝐚 𝐬𝐩𝐚𝐜𝐞 𝐰𝐡𝐞𝐫𝐞 𝐥𝐢𝐯𝐞𝐝 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞 𝐢𝐬 𝐡𝐞𝐚𝐫𝐝, 𝐜𝐨𝐧𝐧𝐞𝐜𝐭𝐢𝐨𝐧 𝐢𝐬 𝐜𝐫𝐞𝐚𝐭𝐞𝐝, 𝐚𝐧𝐝 𝐦𝐞𝐚𝐧𝐢𝐧𝐠𝐟𝐮𝐥 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐢𝐦𝐩𝐚𝐜𝐭 𝐜𝐚𝐧 𝐠𝐫𝐨𝐰.

We’re keeping the momentum going after an incredible time at the EDS Conference! 💫Join the InclusiVibe Foundation this S...
08/14/2026

We’re keeping the momentum going after an incredible time at the EDS Conference! 💫

Join the InclusiVibe Foundation this Saturday, August 15th at the Dallas Human Rights Fair! We’ll be set up on the 6th floor of the J. Erik Jonsson Central Library, and we’d love to see you there. 💙

Here’s what we have planned:
✨ Interactive Community Booth (11:00 AM – 3:00 PM): Stop by to connect, pick up resources, and learn about our ongoing initiatives.
🎭 Special Mime Performance: Catch Amy sharing a creative live performance during the fair!
🗣️ Workshop (2:30 PM – 3:00 PM): “My Health, My Voice: Community Advocacy and Healthcare Rights”
An open conversation about healthcare dignity, accessibility, self-advocacy, and the right to be heard. Together, we’ll discuss what it takes to feel respected and supported in medical spaces, plus real, practical ways to advocate for yourself or support loved ones navigating care.

📍 Location: J. Erik Jonsson Central Library (6th Floor) — 1515 Young St, Dallas, TX
🚗 Free Parking (9 AM – 4 PM): Enter garage via 1541 Wood St
🎟️ Admission: Free & open to the public!

🤝 Want to volunteer with us? (10 AM – 3 PM)
👉 Swipe to slide 2 to scan the QR codes, or use the direct links below / in our bio:

📋 General Booth Support: https://inclusivibefoundation.app.neoncrm.com/forms/volunteer?opportunityId=50
📸 Media & Social Lead: https://inclusivibefoundation.app.neoncrm.com/forms/volunteer?opportunityId=51
See you this Saturday! 👋✨

✨ InclusiVibe Peer Support Circle returns this Sunday! ✨Living with complex neuro/connective tissue conditions isn't eas...
08/07/2026

✨ InclusiVibe Peer Support Circle returns this Sunday! ✨
Living with complex neuro/connective tissue conditions isn't easy, but you don't have to navigate it alone. Join our free, safe, virtual community space to connect and recharge. 💜
🗣️ This Week’s Topic:
Needs, asking them and getting them
Checking In with Yourself: Identifying & Expressing Your Needs
🎙️ Facilitator: Mark Michalica, LPC (Licensed Professional Counselor with 25+ years in healthcare & his own personal medical journey)
📅 When: Sunday, Aug 9 at 4:00 PM CST
📍 Where: Free on Zoom
👉 Register here: https://shorturl.at/Xqauj
Come as you are—camera on or off, speak up or just listen in! 💙

07/23/2026

We are honored to introduce the InclusiVibe Foundation Medical Advisory Board.

These are the clinicians and researchers who are lending their expertise to advance diagnostic accuracy for people with complex neurological and connective tissue conditions. They advise on our research, our programs, and the clinical framing that makes our work credible and precise.

We are humbled they said yes.

Meet our Medical Advisory Board:

Dr. Fraser Henderson Sr., MD — Neurosurgery, Craniocervical Junction, Chiari Malformation

Dr. Linda Bluestein, MD — Hypermobility Medicine, Ehlers-Danlos Syndromes, Integrative Pain Medicine

Dr. Leslie Russek, PT, DPT, PhD, OCS — Physical Therapy, Hypermobility, Chronic Pain

Dr. Sunil J. Patel, MD — Neurosurgery, Skull Base, CSF Disorders, Tethered Cord, EDS

Full bios at inclusivibe.org

EDS

🌿 This Sunday, join us for a welcoming space to connect, listen, and share.Living with a complex neurological conditions...
07/17/2026

🌿 This Sunday, join us for a welcoming space to connect, listen, and share.

Living with a complex neurological conditions can often feel isolating—but you don't have to navigate it alone. Whether you're joining for the first time or returning, this session is an opportunity to meet others who understand, share your experiences if you'd like, or simply listen in a supportive, judgment-free space.

🌈 Register here: https://shorturl.at/Xqauj

The InclusiVibe Peer Support Circle is a facilitated virtual series for people living with complex neuro-connective tissue conditions. This week, Mark Michalica, LPC joins us. With more than 25 years of healthcare experience and his own personal medical journey, Mark creates a compassionate space where every voice is welcome. There is no pressure to share—come as you are.

🌿This week's topic:
𝐌𝐞𝐞𝐭, 𝐆𝐫𝐞𝐞𝐭 & 𝐒𝐡𝐚𝐫𝐞 — 𝐀𝐧 𝐎𝐩𝐞𝐧 𝐚𝐧𝐝 𝐒𝐮𝐩𝐩𝐨𝐫𝐭𝐢𝐯𝐞 𝐂𝐨𝐧𝐯𝐞𝐫𝐬𝐚𝐭𝐢𝐨𝐧
A relaxed conversation to build community, share experiences, ask questions, and connect with others who truly understand life with chronic illness.

📅 Sunday, July 19
🕓 4:00 PM CST
💻 Free on Zoom

Register here: https://shorturl.at/Xqauj

Our community doesn't advocate with one voice — it advocates with hundreds of them. Illustrators, photographers, writers...
07/04/2026

Our community doesn't advocate with one voice — it advocates with hundreds of them. Illustrators, photographers, writers, and today, a young artist named Lena.

Lena created what she calls the "Medical Gaslighting Symbol" — an old gas lamp with a medical caduceus glowing inside it. She describes it simply: a picture representing what it feels like to be gaslit by the very system meant to help you.

If you live with CCI, AAI, or any complex neuro-connective tissue condition, you don't need it explained further. You've felt it.See Me. Hear Me. Advocate for Me.This is why exists — because awareness told through one polished narrative isn't enough. It has to come through the artist who's still learning her diagnosis, the photographer documenting a flare, the writer who finally found the words.

Every voice adds a piece the others couldn't.Follow and support the creators putting their pain and their skill into something the rest of us can point to and say — yes, that's it, that's exactly it.🔗 inclusivibe.org

This Sunday, we're shining a light on the untold stories of those living with chronic illness: the relationships that tr...
07/03/2026

This Sunday, we're shining a light on the untold stories of those living with chronic illness: the relationships that transform because of your strength!
💫 Explaining your condition to loved ones.
💫Asking for what you need.
💫Feeling empowered.
💫Navigating conversations when your illness is invisible.
Relationships can become one of the most triumphant parts of living with a complex neuro-connective tissue condition.

🌈 Register here: https://shorturl.at/Xqauj

The InclusiVibe Peer Support Circle is a facilitated virtual series for patients living with complex neuro-connective tissue conditions. This week, Mark Michalica, LPC joins us. He's a Licensed Professional Counselor with 25+ years in healthcare and understands the emotional impact chronic illness can have on our relationships. He's not here to tell you what to do—he's here to create a space where we can rise above these experiences together.

This week's topic:
𝐑𝐞𝐥𝐚𝐭𝐢𝐨𝐧𝐬𝐡𝐢𝐩𝐬: 𝐍𝐚𝐯𝐢𝐠𝐚𝐭𝐢𝐧𝐠 𝐑𝐞𝐥𝐚𝐭𝐢𝐨𝐧𝐬𝐡𝐢𝐩𝐬 𝐰𝐢𝐭𝐡 𝐂𝐡𝐫𝐨𝐧𝐢𝐜 𝐈𝐥𝐥𝐧𝐞𝐬𝐬 𝑴𝒊𝒓𝒓𝒐𝒓𝒊𝒏𝒈, 𝒄𝒐𝒎𝒎𝒖𝒏𝒊𝒄𝒂𝒕𝒊𝒏𝒈 𝒚𝒐𝒖𝒓 𝒏𝒆𝒆𝒅𝒔, 𝒂𝒏𝒅 𝒆𝒙𝒑𝒍𝒂𝒊𝒏𝒊𝒏𝒈 𝒚𝒐𝒖𝒓 𝒄𝒐𝒏𝒅𝒊𝒕𝒊𝒐𝒏 𝒕𝒐 𝒓𝒆𝒍𝒂𝒕𝒊𝒗𝒆𝒔 𝒂𝒏𝒅 𝒇𝒓𝒊𝒆𝒏𝒅𝒔.
📅 𝐒𝐮𝐧𝐝𝐚𝐲, 𝐉𝐮𝐥𝐲 𝟓
🕓 𝟒:𝟎𝟎 𝐏𝐌 𝐂𝐒𝐓
💻 𝐅𝐫𝐞𝐞 𝐨𝐧 𝐙𝐨𝐨𝐦
Register here: https://shorturl.at/Xqauj

This is .Not everyone raises awareness with a microphone or a walk and roll. We do it from creativity.Some do it with a...
07/02/2026

This is .

Not everyone raises awareness with a microphone or a walk and roll. We do it from creativity.

Some do it with a violin.
Some with a guitar.
Some with a paintbrush.
Some with digital illustration.

And now,
some with a camera.

Every creative contribution helps someone feel seen.

When Ellie started sharing her photography for Complex Neuro-Connective Tissue Conditions Awareness Month, we were at the very end of our month, but we really don't think this campaign should stop just as the awareness month ends.
It's a perfect representation of our illnesses as she says,
"Time is something you battle when you have a Complex Neuro-Connective Tissue Condition"

It stops what you love to do.
The symptoms
The flares
And the unknown.
Her hope for us is powerful.
It is a united effort that will make things move.

That's the thing about this community. We are not one voice or one profession. We are patients, artists, musicians, researchers, clinicians, caregivers, and allies, and each of us contributes what we do best. Thank you for Ellie turning an invisible fight into something people can actually look at and understand.

Thank you for trusting us with your work and for helping people outside this community see what living with a Complex Neuro-Connective Tissue Condition actually feels like.
Please support her work by following and following her journey
Because awareness grows when creativity meets lived experience.



inclusivibe.org/awareness-month and follow up on our news & update page: inclusivibe.org/news

07/01/2026

On the last day of Complex Neuro-Connective Tissue Conditions Awareness Month, our founder Amy Wang-Hiller and pianist Sharon Niessen share Fauré's Après un Rêve (After a Dream) for violin and piano.

Amy chose this piece for a deeply personal reason. In the dream of this music, she can walk. She can run. When she wakes, she is confined to a body that can barely move.

In Amy's words: 'My injury was a cascade from tethered spinal cord to craniocervical instability to AAI, to something that we know is mechanical and still haven't figured out. This journey has given me many lessons and purpose. The music is what inspired me to start this movement, because the system is broken. Helping the people who don't understand would be the way for us to save our own lives.'
In Sharon's words: 'Music reaches the deepest layers of me, the places words cannot touch. Even when CCI and hypermobility limits my body, music helps me feel, process, and keep going.'

Two musicians. The same diagnosis. The same fight to keep creating when their bodies fight them every day. Sharon Niessen is InclusiVibe's Director of Artistic Programming and a pianist also living with CCI. When they play together, nothing needs to be explained.

Amy spent today sharing the art, music, and poetry of community members who participated in throughout June. Lou, Maddy, and others who trusted InclusiVibe with their stories and their talent. This performance is the final note of the month.

This month started with a question: does anyone care about what we have? Two proclamations, two states, dozens of community submissions, and one awareness month later, the answer is yes.
Thank you to every person who participated, shared, tagged, submitted, donated, and showed up for this community.
June 2027, we come back.

inclusivibe.org/awareness-month

07/01/2026

Today is the last day of June — and this is our last stretch.

Earlier this month I put out a call to artists and performers to share their journey with Complex Neuro-Connective Tissue Conditions — the spinal manifestations, the coexisting conditions, CCI, AAI, Chiari Malformation, CSF leaks, and everything in between that keeps getting dismissed or delayed.

People showed up. They shared. And there are still more stories coming.
I am so grateful to everyone who spoke out — including our pianist and artistic programmer who are part of this conversation too. This is what a preconcert talk looks like when it's rooted in real experience: not just awareness, but pushing toward actual solutions to the ongoing cycle of dismissal and diagnostic delay.

More to come — listening sessions are on the horizon and I want everyone to have a chance to participate. And stay tuned for an exciting announcement about our new Medical Advisory Board members.

Disability Pride Month starts in less than 24 hours. We are not stopping here.

Address

3200 West Windsor Drive, Apt 2101
Denton, TX
76203

Telephone

+19402535008

Website

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