United Leukodystrophy Foundation

United Leukodystrophy Foundation The United Leukodystrophy Foundation serves families affected by leukodystrophy by promoting progress on research, treatment, and prevention.

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to providing patients and their families with information about the disease and with assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an i

nformation source for healthcare providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies make up a group of genetic, nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations.

08/24/2026

Everyone has a story, and yours matters. We welcome you to share your leukodystrophy journey and your voice with us to help raise awareness and shine a light on the leukodystrophy community year-round. Share your story today. Visit: https://ulf.org/get-involved/share-your-story/

08/19/2026

September is just around the corner, and Leukodystrophy Awareness Month is the perfect time to turn awareness into action. Join the ULF LeukoAware Fundraising Team and rally your friends, family, coworkers, and community to help make a difference for people and families affected by leukodystrophy.
Every fundraiser helps us work toward:
Expanding support for families
Advancing research
Bringing us closer to treatments and cures
Ready to make an impact this September? Join our team and become a LeukoAware fundraiser and help us turn awareness into action! Visit: https://givebutter.com/2026-leukoaware

September is almost here, and so is Leukodystrophy Awareness Month! This September, your story can inspire. Your network...
08/11/2026

September is almost here, and so is Leukodystrophy Awareness Month! This September, your story can inspire. Your network can make an impact. Together, we can make a difference by joining our ULF LeukoAware Fundraising Team.
Whether you’re personally connected to leukodystrophy, supporting a loved one, or simply want to make a difference, your fundraising can help expand support for families, improve quality of life, accelerate research, and bring us closer to lifesaving treatments and cures.
Ready to join us? Become a fundraiser to get started and make this September one to remember! Visit: https://givebutter.com/2026-leukoaware

Join the United Leukodystrophy Foundation (ULF) tomorrow, Sunday, August 9th at 1:00 PM ET/ 12:00 PM CT for a virtual su...
08/08/2026

Join the United Leukodystrophy Foundation (ULF) tomorrow, Sunday, August 9th at 1:00 PM ET/ 12:00 PM CT for a virtual support group designed specifically for caregivers of families affected by leukodystrophies.
Register here: https://us02web.zoom.us/meeting/register/lY3UG0_RRvejfALZyJ1NIg #/registration

08/07/2026
08/07/2026
Mark Your Calendars! September is Leukodystrophy Awareness Month!Awareness means more than knowing a name.It means:💙 Und...
08/05/2026

Mark Your Calendars! September is Leukodystrophy Awareness Month!
Awareness means more than knowing a name.
It means:
💙 Understanding families’ journeys
💙 Supporting research
💙 Connecting communities
💙 Creating hope for the future
We can’t wait to share how our community will come together for Leukodystrophy Awareness Month. Stay tuned; more to come!

Address

224 N. Second Street, Suite 2
Dekalb, IL
60115

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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