South Florida - Hydrocephalus Association WALK

09/20/2026

Day 19 — “Is it the shunt?” 💙🧠

It’s a question many people living with hydrocephalus—and the people who care for them—may find themselves asking.

A headache can simply be a headache.

Fatigue can simply mean someone needs rest.

Nausea can have countless causes.

But some common, everyday symptoms can also overlap with symptoms of a shunt problem.

That’s one reason knowing an individual’s normal can be so important.

What do their typical headaches look like?

Is this fatigue unusual for them?

Are symptoms getting worse or appearing together?

Is there a change in behavior, alertness, vision, balance or another area that isn’t typical?

Shunt malfunction can be serious, and concerning or unusual symptoms should be discussed with the person’s medical team or evaluated urgently when appropriate.

But living with hydrocephalus shouldn’t mean living every moment expecting something to go wrong.

For many individuals and families, part of the journey is learning that balance:

Be informed. Know the warning signs. Know your normal. And keep living. 💙

Day 19 of Hydrocephalus Awareness Month.

09/05/2026

September is Hydrocephalus Awareness Month 💧🧠💙

One of the simplest ways we can make a difference is by sharing our stories.

Talk about hydrocephalus. Share what it looks like in your life—the hard days, the victories, the surgeries, the uncertainty, the strength, the humor, the hope and everything in between.

Because you never know who’s listening.

Your story might educate someone who has never heard of hydrocephalus, help another family feel less alone, or inspire someone to get involved and make a difference.

Every story shared spreads awareness. Every conversation matters. 💙

09/02/2026

Get your HA Merch! "Chilling My Ventricles" is a must have!

Hydrocephalus Awareness Month starts tomorrow! 💙
Get ready to raise awareness all September long with HA gear from our online store. We’ve added new products, making now the perfect time to find something for yourself or someone you love.
Shop now: https://secure2.convio.net/hydro/site/Ecommerce?VIEW_DEFAULT=true&store_id=1221

09/01/2026

💙 Sometimes the most beautiful days don’t look anything like we planned.

Saturday’s GOLF to End Hydrocephalus & Community Celebration certainly didn’t look the way it normally does. The day challenged us. Plans changed. We had to adjust, regroup and make the best of what was in front of us.

And somehow, in the middle of all of that, something beautiful happened.

We found time to hug. To laugh. To catch up. To meet a new family. To reconnect with familiar faces. To remind one another that this community has never really been about a perfectly planned event.

It has always been about people showing up for each other.

In a way, Saturday felt a little like hydrocephalus itself.

Hydrocephalus can bring enormous challenges into our lives — challenges we would never choose and circumstances we certainly wouldn’t plan for. But when those challenges are met with love, positivity, strength and people willing to walk beside you, they can also bring some of the most incredible blessings.

Friendships we never would have known.
A community that becomes family.
A deeper appreciation for the good days.
Perspective.
Strength.
And more love than we ever knew we could hold.

Saturday reminded us of all of that.

The weather may have changed what our community celebration looked like, but it could never change what this community is.

And we look forward to finding more opportunities to get together, connect, support one another and continue building this beautiful community.

Because whatever the day — or life — throws at us, we’ve learned something pretty special:

When this community comes together with love, we can turn even the hardest days into something beautiful. 💙

08/29/2026

⛳️💙 HOST SPONSOR SHOUTOUT: JACARANDA GOLF CLUB

A very special THANK YOU to Jacaranda Golf Club, our Host Sponsor for the 2026 GOLF to End Hydrocephalus Tournament & Community Celebration!

Jacaranda Golf Club has truly embraced this event and our hydrocephalus community, helping make it possible year after year.

This one is especially personal. Kasey Andrew, CFO of Jacaranda Golf Club, has been part of the Jacaranda family for 26 years, making the club her second home for more than half her life. As Spenser’s mom, the support Jacaranda has shown to her family, Team Spenser, and the Hydrocephalus Association means more than we can say.

The people at Jacaranda are far more than coworkers and friends — they are family. We are incredibly grateful to the entire team for continuing to open their doors, give their time and help make this event such a special day. 💙

🌐 www.jacarandagolfclub.com

08/28/2026

Shout Out to the South Florida - Hydrocephalus Association WALK GOLF and Community Event and Montana Virtual WALK happening this weekend! 🎉🎉 Best of Luck! 🩵💙

08/27/2026

⛳️💙 HOLE SPONSOR SHOUTOUT: THE MAGGIORE FAMILY

A very special THANK YOU to the Maggiore Family, longtime supporters of the GOLF to End Hydrocephalus Tournament and Team Alex!

We’re so grateful for their continued support year after year and for once again joining us as a Hole Sponsor for the 2026 event.

Thank you, Maggiore Family, for always showing up for Team Alex and helping us support the Hydrocephalus Association! 💙

08/26/2026

⛳️💙 SPONSOR SHOUTOUT: TOPIA FINE WOOD WORK & DESIGN

A big THANK YOU to Topia Fine Wood Work & Design, a longtime supporter of both GOLF to End Hydrocephalus and Team Alex!

Based in South Florida, Topia specializes in high-end custom cabinetry, millwork and woodworking, creating one-of-a-kind designs for homes throughout South Florida and beyond.

We’re incredibly grateful for their continued support year after year and for once again helping us raise funds and awareness for the Hydrocephalus Association. 💙

Learn more:
🌐 www.topiafinewoodworking.com

08/26/2026

⛳️💙 HOLE SPONSOR SHOUTOUT: THE FEINERS

A big THANK YOU to The Feiners for supporting the 2026 GOLF to End Hydrocephalus Tournament as a Hole Sponsor!

As Jacaranda members and longtime supporters of this event and Team Spenser, their continued support means so much. We’re grateful to have them helping make this special day possible year after year.

Thank you, Feiners, for supporting Team Spenser and the Hydrocephalus Association! 💙

08/25/2026

⛳️💙 HOLE SPONSOR SHOUTOUT: THE NOLLMANS

A big THANK YOU to The Nollmans for supporting the 2026 GOLF to End Hydrocephalus Tournament as a Hole Sponsor!

As part of the Jacaranda team, their support means so much, and we’re so grateful to have them standing behind Team Spenser and helping make this event special year after year.

Thank you, Nollmans, for being part of the Jacaranda family and for supporting Team Spenser and the Hydrocephalus Association! 💙