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Steps aHEAD for Malia: Keeping Up with a Hydro and PMG Warrior

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Steps aHEAD for Malia: Keeping Up with a Hydro and PMG Warrior

A place to keep up with the progress and happenings for Malia’s journey in the world as a Hydrocephalus and PMG (Polymicrogyria) Warrior

10/07/2026

Someone was very excited for Wacky Wednesday at school today for Homecoming Week!!!

We know we don’t keep this page updated as much as Malia updates should be done. We are beyond blessed and impressed with how much change she has shown in school, and at home, year to year. We hope to keep up and share more of her fun times and memories like this one today more often!!

06/05/2026

The first school year of all-day class and Kindergarten is ALL DONE 👏👏
It was quite the year for Malia and we couldn’t be happier with her love for school!! She couldn’t hold in her excitement of looking forward to a full summer off with Mom and seeing all her friends at baseball games soon. (Credit to Willow Creative Studio for the incredible shirt she loves to show off)

03/22/2026

We took Malia to a local venue featuring Christian music and family-friendly entertainment, where she enjoyed her time dancing and well as imitating others' praise, bringing joy to the community we shared this auditorium with. The warm response of smiles and laughter that those around us shared with us touched our hearts, and we're grateful for these shared experiences.

02/28/2026

Happy Rare Disease Day 2026!!!
While we don’t always keep this page fully updated on our happenings and progress with Malia, this is a day we can’t ignore to commemorate here. We are so grateful that we have had all the great experiences, learning, teaching and even downfalls because of Malia’s rare disease of Polymicrogyria. We find ourselves daily saying “I wonder what is actually going on in that brain of hers” after she will perform some feat that leaves us awe-struck, laughing or nervous as can be!
Today is for the rares. Happy Rare Day to all of our other rare friends!!!

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