Believe In Your Heart Foundation

09/01/2026

This is amazing! Worth the read - especially if a pulmonary valve repair or replacement is in your child’s future!

08/31/2026

Hi I’m Alexandra and I’m just a few weeks I will be running my first half marathon for a cause that is very near and dear to my heart! I will be running for The Believe In Your Heart Foundation, which funds vital pediatric cardiology research at Boston Children’s Hospital. Two of my children have had multiple heart surgeries at Boston Children’s so I know first hand how important this is. I am so ready to put in the miles for them and all those who fight congenital heart disease! Please consider donating on this post for my race! ❤️
Donations can be made on this post or through Venmo at

08/27/2026

🏈 The American Heart Association and the NFL are once again stepping up to help kids get moving with NFL PLAY 60! This year, 15 NFL mascots are serving as PLAY 60 Ambassadors, encouraging kids to get at least 60 minutes of physical activity each day to support their heart health, physical wellness and mental health.

Is your favorite mascot on the list?

08/21/2026

It’s not uncommon to take medication to help with congenital heart disease. Medications are often prescribed to manage symptoms, control blood pressure, and improve heart function. Though for babies and children it can be hard to get them to take their medicine. Here are some tips from Children’s Hospital of Los Angeles broken down by age group! Check the link here—-1 https://www.chla.org/blog/advice-experts/tips-and-tricks-giving-your-child-medicine

08/19/2026

GIVEAWAY! So many of our little heart warriors are starting back up at school! Drop a picture below of your heart warriors on their first day back! We hope you all have a healthy and fun year!! We’ll pick a few kiddos to win heart themed school supplies! What a fun way to share to your friends about CHD! ❤️

08/16/2026

Wow what an amazing story!! 🥰❤️

08/14/2026

CHD Spotlight- Atrial Septal Defect - An atrial septal defect (ASD) is a hole in the middle of the heart wall (septum) that separates the upper-right and upper-left chambers (atria) of the heart. It causes oxygen-rich blood and oxygen-poor blood to mix, which can lead to problems such as high blood pressure or an increased risk of stroke.

Atrial septal defects in children and adults may need treatment if they are large or cause poor health. Most atrial septal defects can be treated with a nonsurgical approach called cardiac catheterization, but some may require surgery.

ASDs are one of the more common forms of CHD. Patients can present with an ASD alone or have an ASD along with other heart defects as well.

Do you or your child have an ASD? Was it repaired via cath or surgery?

Picture and information courtesy of Boston Children’s Hospital. ❤️

08/11/2026

Does your child have trouble sleeping or staying asleep? 😴 People with congenital heart disease (CHD) face a much higher risk of sleep disruptions and sleep-disordered breathing, such as obstructive and central sleep apnea. Poor sleep quality places extra stress on the cardiovascular system, impacts daytime functioning, and can worsen overall heart health and cognitive outcomes.Common Sleep Issues in CHD are:

Sleep-Disordered Breathing: Rates of sleep apnea range from 31% to 63% in adults and up to 57% in children with CHD.

Frequent Night Wakings: Infants and young children with heart defects often struggle to stay asleep due to physical discomfort, feeding schedules, or medical history.

Short Sleep Duration: Insufficient rest in adults with CHD has been linked to increased accumulation of epicardial adipose tissue and higher cardiometabolic risk.Oxygen Desaturation: Infants with CHD are more prone to drops in blood pressure or oxygen levels during sleep.

If you or your child have CHD routine screening for sleep disorders is critical for both pediatric and adult congenital heart patients! 💤

08/07/2026

CHD by the numbers….
-Congenital heart disease (CHD) affects an estimated 2.3 to 2.5 million newborns globally each year.
-CHD accounts for 1.4% to 2.3% of all live births worldwide (about 8 to 12 per 1,000 births)
-Ventricular Septal Defect (VSD) is the most common subtype, representing 30% to 40% of all cases.
- Atrial Septal Defect (ASD) makes up 7% to 10% of cases and is the most frequently diagnosed defect in adults.

08/06/2026