NEC Society

NEC Society We are building a 🌎 without necrotizing enterocolitis by advancing research, education, & advocacy. Linktree for resources: https://linktr.ee/NEC.Society

The NEC Society represents a diverse global community dedicated to building a world without necrotizing enterocolitis.

We’re building a world without NEC for babies like Xochitl 🩵Xochitl was born prematurely at 29 weeks gestation, and thri...
06/01/2026

We’re building a world without NEC for babies like Xochitl 🩵

Xochitl was born prematurely at 29 weeks gestation, and thrived in the NICU for three weeks. When she was 32 weeks, she became very sick very fast and was diagnosed with necrotizing enterocolitis (NEC). Xochitl was flown to a higher-level hospital in critical condition, where she had an emergency bowel resection and lost 19cm of her small intestine. Xochitl was given a stoma, which was reversed after two months.

After many challenges and 110 days in the NICU, Xochitl's loving family brought her home with a G-tube.

Today, Xochitl is a happy 10-month-old, in feeding therapy, and meeting all of her developmental milestones.

Xochitl's loving mother, Treney, shares that she had never heard of NEC until her daughter was diagnosed. Treney emphasizes that parents are their baby's voice in the NICU – families should ask questions, advocate, and remember that they are the most important members of their baby’s care team.

We are working tirelessly to so no baby has to endure the devastation of this cruel disease.

Join us as we build a world without NEC at NECsociety.org

Necrotizing enterocolitis and the NICU experience affect families of all backgrounds and compositions. We stand with eve...
06/01/2026

Necrotizing enterocolitis and the NICU experience affect families of all backgrounds and compositions. We stand with every family affected by NEC and the trauma of the NICU, including our LGBTQ+ community members.

As we strive to build an ever-more inclusive community, we hope everyone touched by NEC feels a sense of belonging within the NEC Society. We are stronger together. Together, we are better equipped to build a world without this devastating disease, for everyone.

You can join us as we bring together families, clinicians, scientists, and everyone who cares about NICU babies at NECsociety.org

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies lik...
05/29/2026

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies like Brylee Faith 🩵

Brylee and her twin sister were born prematurely at 30 weeks gestation. Brylee initially thrived in the NICU and was up to full feeds, but then everything suddenly changed. Brylee got very sick very fast and was diagnosed with necrotizing enterocolitis (NEC) at 10 days old.

Brylee was transferred to a different children’s hospital for surgery, but it was tragically too late. All of Brylee’s intestines were necrotic, and there was nothing to save💔

Brylee tragically passed away from NEC.

Brylee’s loving mother, Tatiana, wants everyone to know that mother’s own milk offers the best protection against NEC.

When mother’s own milk is not available, pasteurized donor is the next best option.

To build a world without NEC, all babies need equitable access to human milk. We must prioritize maternal health and lactation support in and beyond the NICU.

Join us in our work to for babies like Brylee Faith at NECsociety.org

🩵💛 North Carolina has become the 13th state to officially recognize Month and Day! Governor has officially recognized...
05/28/2026

🩵💛 North Carolina has become the 13th state to officially recognize Month and Day! Governor has officially recognized May 17, 2026, as “Necrotizing Enterocolitis (NEC) Awareness Day” in North Carolina. Additionally, North Carolina Representative gave a representative statement from the well of the State House in recognition of NEC Awareness Month.   

NEC Society Communications Director, Sarah Piephoff, and Dr. Misty Good led the initiative to gain recognition for in their state.

Dr. Good is the Chief of Neonatology at and has served as a Scientific Advisor for the NEC Society since 2017, and co-chaired the 2025 NEC Symposium in Chicago. Dr. Good leads the multi-center NEC Biorepository through her laboratory at UNC.

We are deeply grateful to clinicians and scientists for their dedication to building a world without this devastating disease.

đź’› Click the link in our bio to read more about North Carolina Recognizing NEC Awareness Day & join us this Month at NECsociety.org

05/28/2026

🩵💛 Virginia has become the 12th state to officially recognize Day! Governor has officially recognized May 17, 2026, as “Necrotizing Enterocolitis (NEC) Awareness Day” in Virginia through a Governor’s Proclamation. Additionally, Governor Spanberger has proclaimed May 31, 2026, as NEC Remembrance Day.

Bereaved mothers, Jocelyn and Lori, led this initiative in honor of their daughters, Jewelz and Calvary, who tragically passed away from NEC.

We are deeply grateful to Jocelyn, Lori, and Governor for joining us in building a world without NEC for babies like Jewelz and Calvary 🩵

đź’› Click the link in our bio to read more about the Virginia NEC Awareness Proclamation & join us this Month at NECsociety.org

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies lik...
05/27/2026

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies like Jay 🩵

Jay and his triplet brothers were born prematurely at 30 weeks and six days gestation. When Jay was two weeks old, he began having bloody stool and a swollen, discolored belly - potential early warning signs of NEC. Jay was given antibiotics, but he didn’t get better. Jay was diagnosed with necrotizing enterocolitis (NEC), and within 48 hours, Jay needed surgery and received an ostomy. Jay’s condition became so severe that his family was told to begin preparing themselves for the worst.

Every day, Jay remained sick but stable. Days turned into weeks, then months. Jay needed an additional surgery, where 5% of his intestines were removed, and he started to do much better.

After six months in the NICU, Jay was able to go home with his loving family and triplet brothers. Today, Jay is 10-months-old and has a G-tube. He is currently in the hospital to receive help with his feeds and TPN, but he will make it home soon.đź’› His family plans to spend the summer taking Jay and his brothers to the lake.

Jay’s loving mother, Giselle, wants everyone to know that it is not your fault if your baby develops NEC. Babies develop NEC for many reasons, even when they have the most dedicated parents and healthcare providers.

We are working tirelessly to advance NEC research, education, and advocacy so no baby or family has to endure the devastation of NEC.

Join us as we spread for babies like Jay at NECsociety.org

05/26/2026

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies like Cash 🩵

🩵💛 Our Board member, Shannan, and her husband, Casey, hosted their annual fundraiser to honor their precious son, Cash, who tragically passed away from necrotizing enterocolitis (NEC).

Shannan and Casey have hosted the Courageous Cash fundraiser for the past five years.

Every year, their community shows up to honor Cash, spread , and raise funds to advance NEC research, education, and advocacy. We are deeply inspired by their dedication to building a world without NEC in honor of Cash and all babies.

We are so grateful to Cash’s loving parents and their beautiful community. We are carrying Cash in our hearts, always ♥️

Every event dedicated to raising awareness and funds helps to advance our mission for babies and families.

See our step-by-step guide on how to host an event at NECsociety.org/host-an-event

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies lik...
05/22/2026

With May being Month, we have events taking place around the globe to build a world without NEC in honor of babies like Novalie🩵

Novalie was born prematurely at 32 weeks and 4 days gestation. Novalie initially thrived in the NICU, and her loving family was looking forward to her upcoming discharge when Novalie suddenly got very sick very fast.

Novalie was rushed to a larger hospital where she was treated with antibiotics and TPN for about a week. Novalie spent 37 days in the NICU and four days in the pediatric unit after her initial discharge due to complications.

We are grateful to share that today, Novalie is almost 3 months old. Novalie will need additional care and follow-ups with GI specialists, but she is doing great.

Novalie’s loving mother, Justice, wants everyone to know that NEC does not end when a family leaves the NICU. The long-term trauma and challenges from this cruel disease can last a lifetime.

We are working tirelessly to advance NEC research, education, and advocacy so we can .  

Join us this Month at NECsociety.org

05/22/2026

🩵💛 Clinicians and scientists are deeply dedicated to protecting babies from the devastation of necrotizing enterocolitis (NEC) and helping us build a world without this cruel disease.

We are so grateful for the clinicians and scientists who integrate patient-families at the beside and work tirelessly to advance NEC research, education, and advocacy.

We love seeing photos of our clinical partners recognizing Month🌟

Share your photos with your merch so we can show you off by emailing [email protected]!

Get involved this Month at NECsociety.org

To build a world without necrotizing enterocolitis (NEC), we need much more We are so grateful to Rep. and   for re-i...
05/21/2026

To build a world without necrotizing enterocolitis (NEC), we need much more

We are so grateful to Rep. and   for re-introducing the Resolution in the U.S. House of Representatives, designating May 17 as Day

With the Resolution introduced to the U.S. House - and passed in 14 states and counting - we are building the momentum we need to advance science and protect infants from NEC.

To , we need policy and advocacy in place that prioritizes evidence-based medicine, research, and family-integrated care.

Thank you, , , and for putting babies and families first.

Join us this NEC Awareness Month at NECsociety.org

Address

907 3rd Street #128
Davis, CA
95616

Website

http://NECsociety.org/

Alerts

Be the first to know and let us send you an email when NEC Society posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to NEC Society:

Shortcuts

Share

Category