Give Pain A Voice US

12/02/2025

On so many levels, much suffering would be avoided if we just believed women.

Medical professionals say a 2021 report supported by Health Canada could have a major impact on how the medical system can better understand chronic pain and the best ways to diagnose it — but with its release during the height of COVID-19 pandemic, the report flew under the radar, and some doctor...

01/22/2024

https://www.painnewsnetwork.org/stories/2024/1/11/nbsp-90-of-us-pain-patients-have-trouble-filling-opioid-prescriptions

By Pat Anson, PNN Editor Nine out of ten pain patients with an opioid prescription in the United States experienced delays or problems in the past year getting their prescription filled at a pharmacy, according to a large new survey by Pain News Network.  Nearly 20% of patients were not ab

01/22/2024

https://www.painnewsnetwork.org/stories/2024/1/12/pain-patients-struggle-to-find-relief-as-rx-opioid-supply-dwindles

By Pat Anson, PNN Editor Many pain patients feel abandoned by the U.S. healthcare system and say it’s increasingly difficult to find a doctor or obtain opioid analgesics, according to a large new survey by Pain News Network. Some patients have turned to other substances – both legal and illegal ...

12/31/2023

Hello Invisible Disabilities Association Community!

We are partnering with a team of researchers from the University of Toronto, Harvard Business School and the University of Virginia, conducting research to help people with invisible disabilities. In this survey, we are studying how you use or would use our IDA invisible disability cards!

If you are interested in taking part in our survey, we would greatly appreciate your participation! The only requirement to take part is that you have an invisible disability. The link is available below:

https://rotman.az1.qualtrics.com/jfe/form/SV_cD7SPdmPriOvOGW

The survey will take you approximately 5 minutes to complete. Please feel to reach out to the primary researcher, Chloe Kovacheff ([email protected]), with any questions. Thank you in advance!

12/31/2023

https://www.who.int/news/item/16-06-2023-people-with-medical-needs-are--left-behind-in-pain--reveals-new-report

The World Health Organization (WHO) has published a new report on access to morphine for medical use, which describes how the global distribution of morphine, as a vital pain medicine, is unequal and does not fulfil the medical need.

09/19/2023

We tried to warn you.

05/15/2023

Legal Rx Oxycodone has not contributed significantly to the opioid crisis. Street Fentanyl has.

By Pat Anson, PNN Editor A new study by the CDC highlights the sharply rising death toll in the U.S. caused by illicit fentanyl, while at the same time revealing the minor role played by oxycodone in the nation’s overdose crisis. The study , released this week by the CDC’s National Center for He...

04/15/2023

The doctor seemed to listen, but heard only one or two of the symptoms while ignoring others -- the ones that didn't fit their preconceived notion of what we might have. Or didn't fit the textbook description. As a result, we often don’t get the correct diagnoses, and without the right one there is no way to treat the condition or pain correctly.

By Carol Levy, PNN Columnist Have you ever seen a platypus? The semiaquatic mammal from Australia that lays eggs and is duck-billed, beaver-tailed and otter-footed?

02/16/2023

This made me tear up; it’s so real. The delayed diagnosis. The not being believed. The losing ability to do things that once brought you joy. The piling on of new diagnoses because once you finally get one & it’s an autoimmune disease they like to cluster. The endless trying of new treatments. The loss of a career you worked so hard for. Loss, confusion, isolation, grief, sadness, anger, acceptance. And then, the daily practice of letting go of your old life for a new normal & the discovery of new things to find joy in & to be thankful for every day.

Patient Jerry Williams and Pfizer scientist Janet Buhlmann discuss the challenges of living with Dermatomyositis.

02/06/2023

02/04/2023

If I wasn't believed when seeking care, what chance do non-physicians have?